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"My mother is dealing with chronic pain and has fibromyalgia" (worrieddaughter09)

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"When I was diagnosed I was scared didn't know what to do or where to go..I started reserching bipolar and somehow ended up here at MD....Again scared but needing to know what was in store I asked a question..WOW the people who care..I know I would be lost now if I did not join..made many friends and they have helped me through thick and thin. and never judged...........XX Thank you MD and all.Love all of you.......Laurie Pachin" (puppylover)
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02/29/2008 17:41
debbieacarrier
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Posts: 42
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I was just wondering how many of you are able to work outside your home? I took medical leave from my job as secretary at a university in early March of 2006. During that time, I had a major flare. My husband and I sat down to see if we could handle budget without my income. I gave up my car, that saved on car note and insurance, clothing expenses, having my nails done and anything else we could figure in to justify my resignation. We worked it out and I've not worked in 2 years. (No retirement)I miss having money of my own and since I lacked four quarters of paying into SS I'm not eligible for SS disability income. Which isn't easy to get anyway! I've been in a flare since November of last year and I'm so thankful that I don't have to go to work like this and worry about how much work I'm missing. In my case, my husband is on SS disability and is a disabled vet. He's ok with me not having an income, but I just feel so guilty! Did any of you experience that and how did you cope with the guilt complex and not having any money of "your own"? Also, I don't do a whole lot around the house, only what I have to do. On good days, I work in my yard, but I pay for it. And like today, we shopped for about 3 hours and I'm exhausted! I worry all the time that if something happens to him, where will that leave me. I can't draw SS income for another six years. And I also feel guilty that I don't enough around the house. My husband is a man of very few words but when we don't speak all day, I work myself up in to this frenzy of worrying that he thinks I'm lazy, that I ought to exercise, etc. I guess I need to pray harder. Please let me know if any of you are in a similar situation and how did you handle it?
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03/02/2008 23:35
teach123
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I work full-time. It is incredibly hard at times, but when I do have time off, I start to realize how easy it would be to give in to this disorder and just stay in bed all the time. That's what I do almost every weekend to catch up on sleep and try to recover. But, if I could I would just teach part-time. I'm pretty sure I feel better when I'm working (or doing something active) than on days I just lay around. But, full-time definitely wears on me. We have three young children too. My husband does 90% of the cooking, cleaning, etc. after his full-time job. It's hard for him, but would be impossible for me. It's like I can either teach or be a housekeeper, but not both. At least he understands. Hang in there!!
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03/03/2008 02:34
lanajo
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I work from home a real estate brokerage. It is so hard to stay motivated and work when ever where ever someone wants me to. I started asking clients to work around my schedule a ltl more. I will go show homes for a couple hours and just going up and down the steps and opening and closing the car door it feels like a hundred times makes me cringe. I hurt forever. But its my job.

I have found that exercise makes me hurt worse. I did get the red machine and that isn't too bad but skip the magic legs its not friendly at all! LOL! I have a gazelle too and I like it I used it alot before my boys broke it. It will still work but not like it use to.

I still have to clean, chaufer children everywhere, cook and do at least 90% of housework and still try to work my job. No wonder why my business isn't booming! If I could just get a little more help from them.

I think we all are in the same boat. We all wonder how we are going to make it financially, emotionally, and physically everyday. I know I do. I just cry and pray when I start feeling sorry for myself. Like now.

Make it a good day.

Lana

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03/03/2008 05:42
mamanordy
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Posts: 2218
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I havent worked now since Dec 06. Filed for disability. I do feel guilty for not bringing in some of the money, but hopefully it will pay off when I get my SSD when we get the back pay.

Debbi

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03/03/2008 16:03
debbieacarrier
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Posts: 42
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I've never been the 'weeping' type. (Whatever that is!) But since Friday I've begun to really feel sorry for myself!! I cry easy and I cry when I'm reading these forums.
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