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02/29/2008 04:35 AM

How do you know if you have fibromyalgia?

lisavht
lisavht  
Posts: 377
Member

Hi,

Can anyone tell me what happens to them. How did you come arcoss the Dr diagnois? The reason I am asking is because I have this pain in my neck everyday. I get Migraines alot and I also my middle of my back goes numb alot. I have had MRI's. Nothing showed up on those tho! Would it show up in any tests? What kind of tests do the Dr's run for this? Do any of you get migraines or headaches alot? How about numbness? Is it only located in a specific spot. Can the spot be different in different people? Is there a specific Dr that you need to see for this? Did it take alot for the Dr to figure this diagnois out? Or did the Dr figure it out right away? Please give me all the details you can! I would greatly appeciate it. I am just trying to figure out what is going on with me.

best of luck to everyone and take care!

Lisa

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02/29/2008 05:44 AM
singingangel

You need to see a neurologist. Sorry I missed this yesterday. Lidocaine patches might help in the individual spots. My dr figures itout really quick.I dont know if that is normalor not. Mris never showed anything. The test they used was a emg to show the nerve problems.

02/29/2008 10:48 PM
joytobefreee
joytobefreee  
Posts: 121
Member

It took 3 months before I was diagnosed and had numerous tests which all came back normal. I see an internal med dr and he is the one who diagnosed after my family dr could not figure anything out. They have what is called the tenderpoint test. There are 18 of them and supposedly you are to have at least 11 of them for the diagnosis. My main pain is in my neck and shoulders but have pain pretty much everywhere else at different times. Also have alot of numbness in my arms, hands, legs and feet. Hope this helps some.

gentle hugs,

Susie


03/01/2008 07:24 AM
sweetheartsuzee
sweetheartsuzee  
Posts: 1079
Senior Member

Hi Lisa,

It took a couple of years for a dx for me. I had every blood test known done and then some. My family doc finally dx'd me with Fibro but I just knew it was something more. I just knew he had missed something! But, he was the only doc that didn't tell me to see a psychiatrist. So, that made him #1 for me! Someone finally listened to me!!! YAY~

I got a second opinion with a Rheumy. He pushed and prodded, MRI, CT, you name it...asked a lot of questions and said it was Fibro.

Still, I couldn't settle for this. I JUST KNEW that there was something they were missing.

I then went to a Pain Specialist that had a lot of Fibro patients and YUP...it was Fibro!

So, that made three different types of docs telling me the same thing and ruling out anything else. I was satisfied with my dx at that point. (except for the fact that I didn't WANT FIBRO). And, I didn't want to feel like I did any more! I wanted it to go away just as fast as it came on!

In my experiences, being diagnosed with Fibro is done by process of elimination. The things that resemble Fibro can be targeted by blood work, CT's, MRI's, etc. Fibro CAN'T! Everything else needs to be negative. Then, my doc asked a TON of questions, pushed on all of the 'points' and about put me through the roof with it! I had MANY more than the typical number you need to have to be dx with Fibro, but don't ask me how many or how many are needed for a dx. I can't remember and that would be the 'Fibro Fog' that makes me forget!

I've had headaches since I was a teenager. Then, as I got older...the migraines hit. Ohhhhh...and did they HIT! I couldn't go ONE day without a headache of some sort and I had a migraine at least once a week. This lasted for a few years...it was horrible. How is someone supposed to function with not only Fibro symptoms, but a darn headache ALL OF THE TIME?!?! Imitrex worked for the migraines, but they did finally go away for the most part. I still get them now and then...but not ANYTHING like I used to. I still have headaches...but I really don't complain about them too much because I know they could be A LOT worse, like they were before!

As far as numbness. My limbs go numb and also I get a spot on the top of my head that goes numb quite often! I haven't had any in my back (that I remember anyhow)...but other places...yes! And, out of the blue...it'll just go numb.

Everyone is different!!! Our sickness is the same, but our bodies react differently and what some of us suffer with...others don't! I've found MANY, MANY friends on this site that suffer with the same things as I do, but in one way (or more) or another, we're different!! My worst pain might be in my back where others might be their knees or elsewhere. It's just the way it is!

I agree with singingangel that you should see a neurologist. They can rule everything else out and give you a dx. But, if you can't see one, your PCP (depending on what they know and what they believe in) can diagnose you just as easily! Some docs don't 'believe' in Fibro...so if yours doesn't...find a new doc!!! And if the new doc doesn't....find another one! You might have to see many before you find the right one...and it's very discouraging...but DO IT!! Once you get diagnosed, you can hopefully get on some meds to help you live a better life. That doesn't mean it's gonna be pain free and wonderful....but BETTER!!!

We're here for ya! Feel free to ask as many questions as you need! There are a lot of very smart friends on this site with tons of info!!!

Feel free to pm me as well.

Hope you learned SOMETHING from me...even if it was just a little bit!!

{{{{Fibro Hugs}}}}


03/01/2008 08:27 AM
lisavht
lisavht  
Posts: 377
Member

Thankyou everyone for your responces. It does help to be able to ask someone about this stuff. I do find this site a great place to go to. I do get knee pain and elbow pain. My regular Dr dx my elbow with tendonis. As for my knee pain she told me to make sure i wasn't turning my body wrong while I am at work. I make windows! I cut on a saw and have to turn alot to the bin. I did listen to her about this. I make sure I turn my whole body when I need to put materials in the bin. But I do know that I can't drive for long distances. If it gets more than 1/2 hour my knees start hurting. Badly!!!!!! My pain pills don't even touch the pain I get from it! I did tell my nero this. My nero did have a concerned look when she poked me with a saftey on my arms and when she checked my arms for reflexes. But she never said anything to me. I also cannot sit for along time. My legs go numb. So does this sound like it can be a symptom! And of course my back going numb alot! not to mention the pain in my neck!

My next question is does everyone get migraines/headaches when they have Fibro? Or could it possable to have 2 different things?

Lisa


03/02/2008 03:52 PM
fellowfibroer
fellowfibroer  
Posts: 25
Member

What is your neck pain like? Mine goes down to my arm into my hand with a numb like feeling. Also feels like a lump sometimes when I swallow, all on my right side, sleeping is terribly difficult.

03/02/2008 04:54 PM
lisavht
lisavht  
Posts: 377
Member

It is very hard to explain. It almost is like my head is way too heavy for my neck to handle. Or that I was stretched on one of those old time hoarse things....I can't remember what they are called. I have numbness off and on in my middle of my back.. Right side of the spine over to my side(always in the same spot) I feel like I have knots in my neck. Also like I pulled muscles. It never goes away. My numbess comes and goes as it pleases. It don't happen when I do anything in particular. I could be sitting ,Laying down, working, standing.....It don't matter..it just happens. I can't find no ryme or reason to it. I have had tests(MRI) and they all showed up as good. (except that I have a bone spur in my neck) (The Dr says that that won't cause the migrianes I get) WHY WHY WHY! I also get occationally a numbness in my left cheek of my face..Am I weird????? I wish I could crack my neck and the pain would go away. Like I said before even my pain pills don't touch it. I get alot of headaches/migraines. Which I am working with my nero on. But I did read on here that it is common for people with fibro to have these symptoms. I do have lumps in my throut. My reg. Dr has had me have my thyroid checked out several times. Now I just tell him not to waste the time or money. I have no insurance so I can't keep repeating tests unless they feel it is nessary. WOW I keep messing up on typing today that's not like me. I keep fixing things. I have fixed about 20 mistakes now. Sorry if htere is more. Now my knees get bad if I drive for more than 30 min. 1 hour they are in sooooo much pain. It makes me cry. The nero looked concerned when she was checking my reflexs in my arms. But of course she never said why! What do you think?

Lisa


03/02/2008 05:03 PM
fellowfibroer
fellowfibroer  
Posts: 25
Member

I think that Doctors don't know everything. I use to put them on a higher level than the rest of the world, why I don't know. I have not found a Dr. yet that REALLY listens and REALLY believes I have this. So now I spend hours worrying or looking up info online just trying to get some answers, some relief, and some support.

03/02/2008 10:25 PM
teach123
teach123  
Posts: 98
Member

I'm no expert, but I have a constant headache. Not migraine though. Just feels like tension in my temples and forehead. My neck is always stiff and tender too. I don't know if everyone with fibro. has headaches or not, but I know a lot that do. I'd see if you can get in to a rheumatologist if you suspect fibro. The first places I noticed mine was my neck and shoulders, knees, elbows, then hands, feet, and finally everywhere!!! My rheumy also did a series of blood-tests to rule out everything from Lupus to RA, before examining me and giving me my fibro. diagnosis. It took about 6 mos. from when I first went to my MD about it. I wish there was a blood test for it!! Then, most of the world wouldn't think we're just making it up. (o.k., maybe it's not that bad, but it sometimes feels like it). Good luck!!!

03/02/2008 11:08 PM
jewels85
jewels85Posts: 14
Member

It took several years of doctors poking and proding me with needles, tests, scans and exams before I was diagnosed. My family doctor finally said he could do nothing for me and sent me to a rhumetologist for further arthritis testing. The rhumetologist spent about 30 min with me poking me and said I had FMS. When he explained it to me, it made so much sense. He perscribed a medication and told me to come back a month later. At my next appt he said to just go to my family doctor and have him oversee my rx's. Long story short and several years later, I've never been able to find any meds that control my pain, so I've given up on going back to docotors. I have found that stress and lack of sleep directly affects my symptoms and makes them worse. I also have daily headaches/neckaches. I do believe that they are related to FMS as well.
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