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Claire138"It's been a year since I joined the Parkinson's Disease Support Group on MDJunction and all I can say is thank you all for the support, compassion and friendship I've received and been able to give as well. It was a lonely night when I came upon this site, but the nights aren't that lonely anymore...
With gratitude to all...
Claire138 (aka Bonnie)
" (Claire138)

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FMS ForumsGeneral & SupportMy Fibromyalgia Treatment Success
05/25/2009 06:42 PM
cfsfibro1
cfsfibro1
 
Posts: 2
Member

Hi All~

I am so glad to have found a group to interact with in terms of our mutual enemy Fibromyalgia. After suffering for about 2 1/2 years and countless trips to the doctor I finally found a system to keep it at bay (fingers crossed that it is permanent)!

This is a link to my site, where you can hear my story and about what worked (and what didn't). Hopefully, it can help you too!

www.chronicpainandillness.com

Tongue

Post edited by: cfsfibro1, at: 05/25/2009 06:45 PM

Reply

05/25/2009 06:50 PM  Top
aTinaL
aTinaLPosts: 11832
VIP Member
I'm an Advocate

Hey, C., it's good to meet you. And welcome to the Wonderful World of Mighty Fibromites!

It's always good to hear what worked for others. I'm glad you took the time to share it. Especially since we do have many members with both cfs and fibro.

I have found a great deal of relief with some other supplements. Have you tried mangosteen, noni and 5htp? They're a huge help to me. Several other members take them as well.

Welcome hugs, Tina

Tina

"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen


"All aboard the suboxone train!"
- Tina


I'm not a doctor, but I play one on tv!
-Tina

05/25/2009 07:03 PM  Top
amazzon

Hija C! Welcome to our group!

Thanks for posting and sharing your experiences. I'll have to take a look at that website. I'm glad you found something that worked for you.


05/26/2009 05:39 AM  Top
hatbox121
hatbox121
 
Posts: 10493
Group Leader

Welcome!
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

05/24/2011 10:12 PM  Top
mmason
 
Posts: 140
Member

Welcome! I tried your link, it didn't work. I'd love to see your site! I'll try again some time...might have just been a glitsch. So happy to hear you found something that works for you! Thanks for sharing! Smile

Blessings & hugs~

Mel

I'm not a doctor, lawyer, or psychiatrist. Any responses or advice I give is based on my own personal experience and/or research. When in doubt, please see your doctor. :)

~Life is not a spectator sport!~

Jeremiah 29:11 "For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."

05/25/2011 10:16 AM  Top
PrincessButterfly

I tried the Link too and it did not work.

Can you please post it again? Thanks!

Reply

Health Topics: Fibromyalgia Treatment, Noni
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