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FMS ForumsGeneral & SupportAm I in Denial?
05/20/2009 04:24 PM
bonbon53
 
Posts: 95
Member

After reading some of these posts, I realize I DO have the same illness as you guys. Until now I think I was in denial. I was diagnosed recently from a wonderful rheumatologist and he was very knowledgable about it. But somehow I thought...no..can't be...just menopause or depression. But it is fibromyalgia. Maybe now I can go on from here...Accepting...planning...feeling ok about resting...about my house sometimes being messy...not feeling so dang guilty.

Does anyone else feel like this?

Reply

05/20/2009 04:38 PM  Top
Kgrin
Kgrin
 
Posts: 1261
Senior Member

Oh yes everyday.. That is totally normal.. I think that it takes us awhile to accept it, and then for some getting the dx is a relief because they know what is going on.. I am one of those that just goes along everyday and try not to let this get the better of me, mind you sometimes it whoops my butt and it's hard to stay positive but this is a great place to be and it really helps.. Welcome to our group we are so glad that you found us and hope that you can hang out for awhile!!
Rather then being your thoughts and emotions, be the awareness behind them..

Me a doctor? No way! everything I say is based on my experience only, please don't take my opinions as medical advice.

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Pictures of Ourselves
Hi everyone, i am new here,,
Weight

05/20/2009 04:40 PM  Top
aTinaL
aTinaLPosts: 11832
VIP Member
I'm an Advocate

Bonnie, denial is part of the grieving process. I'm glad you have a great doctor. That is vitally important.

My doctor recommends a book called "On Death and Dying." Because we need to go through the whole grieving process, really. It helps. You can read the first 66 pages on Google Books if you want to check it out.

A lot of people DO go through denial! You're absolutely right.

I was fortunate. I had spent 5 miserable years knowing that something was wrong, but not knowing what. So when I got my dx, I just RAN with it! LOL! I was so happy to know what was wrong with me. And it fit all of my symptoms unlike the other stuff they had dx'd me with. So I couldn't have denied it if I had wanted to.

After that, acceptance was pretty easy for me, too.

Check out my profile! I said exactly the same thing you did, lol!

Accepting hugs, Tina

Tina

"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen


"All aboard the suboxone train!"
- Tina


I'm not a doctor, but I play one on tv!
-Tina

Previous discussions I participated in:
Connie's Surgery
Hello to everyone.
tough days

05/20/2009 05:09 PM  Top
bonbon53
 
Posts: 95
Member

kgrin..thanks for the welcome and I am very glad I found you guys! I hope to get to know you better.

Previous discussions I participated in:
fibrofog?
Hey Everybody
tough days

05/20/2009 05:56 PM  Top
hatbox121
hatbox121
 
Posts: 10502
Group Leader

Hey bonbon. I was so relieved when I got my dx that I never was in denial. I'd went to so many drs for so many years that at least at that point I had an answer. I do know that alot of people go through that though and it's completly normal.
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

05/20/2009 08:23 PM  Top
bc1028
bc1028
 
Posts: 3377
Senior Member

Bonbon, it is amazing that after you start reading the posts how things ring a bell to you and the light comes on isn't it? I did the same thing. I hope that you continue to stick with you for both the support and the laughs.

05/21/2009 02:12 AM  Top
Mispati3
Mispati3
 
Posts: 1006
Member

Welcome Bonbon! Me, too. I did the same thing then was so relieve to finally know what was wrong with me. Now I can go one from here.


05/21/2009 02:28 AM  Top
amazzon

Hi Bon! Very nice to meet you darlin' and welcome to our wonderful group! Like Tina said, it is part of the grieving process but it gets better. Now, you have to learn to accept it and get your doc to give you something to ease some of your pain. Now you have us for support. I look forward to getting to know you better.


05/21/2009 03:56 AM  Top
dreaming3671
dreaming3671
 
Posts: 194
Member

Nice to meet you also ... I went through the same thing... I am getting more ok with the diagnosis I guess and being here in this wonderful family on the net has helped. I think part of what made it hard for me to except is this western thinking that we have...that "if we are not happy, healthy, and feeling good" then we are doing something wrong" and that if we could just do the right thing (whatever that is) then it would all go away. I think comming to terms with the fact that there is no quik fix or known cure that has given me the most reason to resist...honestly I would have to say that I am still in the process of comming to terms with the whole thing... but I am glad to know what it is and I do pray that a cure will be found ....
and this too shall pass??!!

05/21/2009 04:51 AM  Top
bonbon53
 
Posts: 95
Member

Dreaming...I feel the same about the 'western thinking'. I feel ashamed sometimes that I can't do what is 'expected' of me and then I push myself and overdo it and then pay for weeks by having a flare-up. I need to work on my self-esteem, and not worry about that.

I do try hard to keep up, but kick myself because I can't.


Previous discussions I participated in:
fibrofog?
Hey Everybody
tough days
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