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09/18/2007 13:38
deverin
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hey fibrochicky,

awww i have an oreo as well but mine is a male and does the same thing, it is so nice to be needed even if it is the cat. i hope you get to feeling better. congrats on your new site. hope all goes well. i was thinking of rhonda as well i have not seen her either. hope she is ok. take care and good luck with your new site.

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09/18/2007 15:30
deverin
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[b]YEAH SUZEE

CONGRATS ON YOUR NEW TITLE. YOU DESIRE IT. YOU ARE ALWAYS THERE CHEERING EVERYONE ONE. YOU GO GIRL.

BFF

DOTTIE

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09/18/2007 21:56
fibrochicky
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thanks everyone,,that coding stuff I think I will leave to the computer dudes...lol..I like to play with the font and colors..u should hear them sometimes their like another change,,,lol...but this is the best and will be the official main theme for the site. yea I found out that my adrenal gland has reparied itself so I dont have to worry to much about that anymore, now if thats ok and they said my thyroid even low wouldn't cause this kind of fatigue,,,what is it!!!. lol..I just woke up around 9:30 almost missed the finale of big brother...lol can't wait to get to pollys. and the best was I was able to get the payment deferred for 90 days so i think I may change hotels..I used to stay with her,,but her grandson has taken my room over for a bit. like staying at hotels its like my big adventure..god i am a goof..when Tim and I would fight when he was drinking I would leave and go to a hotel,,,thought I was cool. I can't believe that I even fly as much as I do..I was petrified before,only

flew when I got married in Jamicia,,,then went to a wedding of the 2 people I hooked up from site in NM and ever since I have been flying,,thats only a year ago and I have been to vicki's alot. lol. thats ok she is like my mom. the last time i was there one of my other admins who polly has been friends with awhile came into texas to see her brother, so this was like a once in a lifetime chance to go meet her..we drove 7hrs roundtrip to meet her for 45mins..but it was worth it..we have so many pics.. poor polly was in a flare from hell though for the next few months,,ok I know I just go from one thing to another..This site is about one of the few I am really comfy in.. Maybe cause your all nice ok gotta go tend to the website and approve some newbies, my job is never done...lol oh have u checked out the new chat here,,was in last nite late,,pretty cool[i][color=#000080][/color]

Soft Fibro Hugs
fibrochicky aka Amy Jill
www.fibrochicks.com
founder / owner

Come Because You're Curious, Stay Because We Care
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09/19/2007 12:08
bshapiro
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10mg of flexeril at bedtime works for me as well although I was just today thinking about whether or not it was worth it to do the refill when it comes due in a week or so.

I only take flexeril at night for the sleep effect -

it's an off label usage that seems to have some positive result. but I only get the good sleep if I'm taking a full dose of methadone as well. now I'm down to 10mg/day instead of 60-80 & the pain comes through too bad to let me sleep well. I think ambian would do the same but generic flexeril is less pricey.

I couldn't imagine taking flexeril during the day for fibro though (Also an off label usage) .....to my bod it's a bad drug with worse side effects than the methadone or oxycodone + it dosen't do anything for my pain but that's my body's reaction

Post edited by: bshapiro, at: 09/19/2007 18:42

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09/19/2007 13:08
MrsAmanda
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bshapiro wrote:

works for me as well although I was just today thinking about wheather or not it was worth it to do the refill when it comes due in a week or so.

I only take flexeril at night for the sleep effect -

it's an off label usage that seems to have some positive result. but I only get the good sleep if I'm taking a full dose of methadone as well. now I'm down to 10mg/day instead of 60-80 & the pain comes through too bad to let me sleep well. I think ambian would do the same but generic flexeril is less pricey.

I couldn't imagine taking flexeril during the day for fibro though (Also an off label usage) .....to my bod it's a bad drug with worse side effects than the methadone or oxycodone + it dosen't do anything for my pain but that's my body's reaction

I was given flexoril yesterday for my pain associated with the cerebral plasy. dr told me to take 1 pill 3x a day. I took 1 3x yesterday and was on my rear end and sleeping the day away. not that that is a bad thing...but today i decided to try and take half a pill along with 100 mg of ultram. took the flexoril and then waited 2 hrs and took ultram. so far so good. i did get a little tired, but i was able to lay on the couch and watch tv for an hour and was good as new.

I guess it just depends on your body and pain level. Bshapiro, i am proud of you for hangin in there with lowering your methadone! keep your head up!

[[[[[SOFT HUGS]]]]]

Amanda

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09/19/2007 17:06
bshapiro
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quite honestly my stopping the medication is stupid not brave. Being without opiates make me a total cripple unable to do pretty much anything and in constant, unremitting pain.

I'm only lowering it because of my fear of being cut off when my insurance changes - I don't know what the new Dr. will do & you all have me scared. if I'm going to be cut off I'd rather do it on my own terms and not the last minute. so far just finding a new doctor to make an appointment with has been a nightmare the other nightmare was getting my HMO to release my medical records so that I can get enrolled at another pain center. Even with all those things rolling finally I won't know until at least October 8 whether or not my new doctor will write the medication.

Believe me, when I say that all medical personal associated with my treatment & my immediate family are not in support of this move off opiates. This is not a brave move to end my dependence on drugs. as evidenced by my ability to go on and off the drug I have no addiction, only physical dependence.

I am actually very upset in general about a lot of things including the way that society looks at scheduled II drugs, the state of American health care system and the way doctors treat fibro patients, oh, and did I mention my marriage is breaking up after 27 years because of the disease. as I have at least a thousand pills (my usual two-month dose plus the two-month reserve I stashed away over time to make sure I'm not left high and dry in case of earthquake or other natural disaster) it really is very stupid and really just a self-destructive gesture. As I said before my 23-year-old daughter likens it to a teenage girl cutting herself for attention.

understand that I had no fibro diagnosis(or pain) until I went off methadone 15 months ago- just to see what it was like living without it. originally I started taking it for degenerative disc disease the the excruciating fibro and Myofascial pain only appeared after I stopped taking it(I did have fatigue though).

now that the dose is this low the unremitting pain has started (I had my first sleepless night last night) and I know that ultimately one of two things will happen: either I go back on the drug or take the Kevorkian treatment.

I've been around the block with the pain from this disease and no amount of trigger point release therapy, ice, Flexeril , Neurontin, or anything else can knock it down the only thing that does moderate the pain is opiates.

Post edited by: bshapiro, at: 09/19/2007 19:08

Post edited by: bshapiro, at: 09/19/2007 19:11

Post edited by: bshapiro, at: 09/19/2007 19:12

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09/19/2007 18:19
sweetheartsuzee
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Hi guys,

I just wanted to say a couple of things on your current discussion. First off, bshapiro, I'm sorry to hear about both your marriage and your daughter. It's very sad when a disease effects a person and/or family as it does many people. I wish you the best!

MrsAmanda, I wanted you to know that I'm glad your meds are working good for you.

I also wanted to say that (this is kinda strange because I was just talking about this yesterday) our meds CONTROL OUR LIVES!!

Do I have enough pills in my purse to get through the day?

Where do I PUT my purse, where nobody will get into it?

What if someone steals them?

What happens if I lose them?

What time did I take my last dose?

What if my Dr. doesn't refill them.

What if my Dr. leaves and I have to find a new one?

Will I have to go through withdrawls because they won't give them to me?

What if the pharmacy doesn't get them refilled on time and I run out? (which leads me to)...

I also have taken myself off ALL of my pills...just to see what I felt like and if I could really make it through it if I really had to! Not all of them at once of course...But, my conclusion:

NO WAY!!

Anyhow, I am supposed to take my Flexeril as needed. So, what does that mean? If I DON'T take it...I have MASSIVE more amounts of Fibro pain than if I do take it. Another conclusion: TAKE IT ALL DAY!!

So, I guess to wrap things up...when you say moderation of pain comes with opiates and you can't imagine taking Flexeril during the day for Fibro pain...you're correct when you say it does just depend on your body! And, of course leave it to MY luck...I need them all!!

I hope everyone has a great night of sound sleep and sweet dreams!

{{{{Fibro Hugs}}}}

~Suzee~

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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09/19/2007 20:16
fibrochicky
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you said it sue,,I would just like to add on the medicine end,,I was in pharmacy field for over 18 yrs and continue to keep myself updated,,no I am not a pharmacist but I was a tech at 3 major hospitals here and hubby is a OR Pharm tech,,dad a pharmacist..but of course u know who knows the most when it comes to meds lol,,the girls actually call me for stuff anyway on the flexeril ,,it is a pretty strong muscle relaxer, and the usual dose is 10mg 3x a day,,but you are gonna be on your tush, prob till u get used to it...it is also going to dry ur mouth out , my hubby will take it for sleep. me nothing works so I just take it for my upper back area and shoulder,,isn't it funny how the same types of meds can work differently on us..flexeril only helps that area..where zanaflex I have to be on for leg problems..here is a good one. I have really bad rls on meds for it,,if I take the flexeril to much it kills the rls. go figure. like sue said we are all different,,always always make sure you check with your doctor or pharmacist before taking something ur not sure of. in fibro so many meds they give us for our muscles,,remember it may not physical affect them but they do hurt for other reasons,,,not being active for one,,look they give you seziure type meds,,ie neurontin,,lycria,,neuropathy meds this is because they have found that fibro is a DISEASE ( GOT IT IN WRITING IF U WANNA SEE) THEY SAY NOW THAT IT IS A NEUROLOGICAL DISEASE BECAUSE IT IS THE WAY WE FEEL PAIN ,,AND THAT IS ALL UPSTAIRS MAINLY... and when u think about it would make sense..how we percieve pain, our neuro transmitters are always "ON" they don;t shut off so we feel pain 10 times more than the average person and with pain comes all the other wonderful things...ok,,,done now,,hope this was some help.
Soft Fibro Hugs
fibrochicky aka Amy Jill
www.fibrochicks.com
founder / owner

Come Because You're Curious, Stay Because We Care
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09/19/2007 20:24
fibrochicky
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me again this time its for you Mr. Shapiro,,,I hate to see people come off their meds for something that may not happen,,,even if it did,,they would take u off the right way and have replacement opiates in place..i have to agree that it was not good in coming off the methatdone , I am hoping u did this with a doctor..the reason you prob didn't feel any of the pain u have now is because u were on it,,all this time when the fibro kicked in probably due to your back you were on medication..I have been on percocet 10mg.vicodin 10mg and morhphine at times all except the morphine for the last 13 yrs ...so why suffer when there is something that works for you,,my meds barely work now..and I have been on all the other pain meds and can't take them no oxycontin causes my feet and legs to swell unbelievable and so does ms contin,,unfort I can't take the drugs I should be on. I would really reconsider your decision,,if you can be on them then get on them and don't worry about what may or may not happen. this of course is my opinion...take care
Soft Fibro Hugs
fibrochicky aka Amy Jill
www.fibrochicks.com
founder / owner

Come Because You're Curious, Stay Because We Care
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09/19/2007 22:19
MrsAmanda
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Thanks for the input Fibrochicky!

I was on my tush ALL DAY yesterday after taking the Flexoril!

Today, I took half of one twice and I plan to take a whole one when I go to bed. Seems to be working for me quite well. Better than anything else i have recently tried.

I take half the flexoril when i wake up, then 2 hrs later i take 100 mgs of ultram. then 1/2 flexoril...and so on.

Yesterday I was running to the bathroom and I couldnt figure out why after i took the first flexoril. I ready the side effects on web md and found out that it can cause constipation. That also is what led me to try taking half at a time.

[[[[[SOFT HUGS]]]]]

Amanda

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