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02/19/2008 08:56
jaime33
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 [i][size=4][/size]My husband thinks I am over-medicating when I am in a fog. He doesn't realize the things you can do and say when you are in a fog. How can I educate a man who doesn't want to read any thing about fibro or respect my pain-he only wants me to get a job. When I can't work because of the unpredictablity of how I will feel in the morning there are at least 3 to 4 days a week I can't get out of bed till 3 or 4:00, nobody will hire someone who is sick all the time, besides the fibro I have Chronic Fatigue, so both zap my energy. Some days I don't have enough energy to make a phone call to my mother, I am happy that she is understanding!

Dose anyone else have this problem?
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02/19/2008 09:41
locojawline
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 new to this page myself...but you will have to give more info for anyone to help you further I would think. the 3 or 4 say... when did you fall asleep ,how. etc. yes it's invasive but you have to see the whole painting to judge it. there are people here stiff upper chris
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02/19/2008 10:31
singingangel
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 Fibrofog is apart of our lives. It can get worse from some meds but we have it even w/o meds. It is one of the symptoms of fibro and chronic fatigue. Adderal and provigil help with it. Good luck trying to show hubby it isnt the meds.
I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
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02/19/2008 10:39
kychick
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 Yes Jaime I do have the same problem. It has gotten so bad the my husband and I seperated. I have realised that i was as much to blame as he was. You need to keep trying to educate him. Does he read e-mails? Would it help if you show him some posts from here? Fibrofog is real and it is very hard to deal with when you are having it. I won't drive when I am that bad. The medicines don't help either and the combo is horrible. There are alot of posts here on fibro fog. There is also a letter to normals that may help him understand. My husband and I are going to counseling are first session is the 29th of this month. I hope this helps. If you need to talk or need info,pm me and let me know. I am here for you.
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02/19/2008 10:45
PamelaG
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 Jaime33, go to my diary and print off the 2 articles. Leave them in his bathroom, in his vehicle, anywhere he has some alone time. Write a little not on top that you would like him to PLEASE read them. They will explain to him a LOT of what you are living with.

Yes, we all have days like that. There are many days that when I get up for the day, within 20-30 minutes I'm asleep on the couch and I remain like that till 6 or 7 pm. Nope, no employer would work with me like that either, but also from all my conditions no employer would want me anyway.

Has your Dr told you yet that you can't work? If your Dr backs you up on it, go and apply for your SSD (Social Security Disability). The first time you will most likely be turned down, we all are, then get a lawyer to help you, a Social Security Disability Lawyer. They only get paid out of what you get in "back pay", and the Government has set limits on how much they can take. I believe it is 25%, that's what my lawyer will get by our State guidelines.

Keep your head up. I pray for your sake he understands, and soon. You have enough 'pressure' on you to feel, act and be normal when it's not possible, you don't need to have grief from the one person in your life that means so much and is so dear to you.

Big hugs girl and feel free to comment, ask questions, etc anywhere on the boards. Welcome!! Glad to have you!


Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability
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02/19/2008 10:53
jaime33
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 He doesn't read period, so that won't work but thanks. I have also applied for SSI but I don't have enough work points.Nothing works.

jaime
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02/19/2008 11:20
PamelaG
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 SSI is Supplemental Security Income (usually applied for through the Department of Social Services/Human Services), SSD is Social Security Disability (applied for through the Social Security office or online at the social security site).

I'm sure sorry to hear things are so rough, and that your DH isn't willing to learn about what is wrong with you. Have you tried getting him to go with you on a Dr visit, and asking the nurse when you schedule that if you can get your DH to come along, that you would like to have the Dr alerted that you want him to explain to your DH what all issues and pains, etc go with Fibro and Chronic Fatigue? That might help, if he will go with you. Just don't tell him the Dr wants to visit with him unless you think it will help get him there. You could say something like, the Dr would like us BOTH there on this visit.

Hope that helps.

{{{{{HUS}}}}}


Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability
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