I was just wondering... does anyone else work full -time, and what kind of work do you do?

I am finding it quite difficult to keep up with working. I have no life outside of work - too worn out.. and I have a hard time at work too.. bad fibro fog..brain fog.. I keep up, but I always feel like I"m really pushing myself to the limit just to get through the day.. My memory is bad. I feel bad all the time..

I guess I just want to know.. am I the only one who is trying to work? Should I work?

I have tons of questions... and I'm going through a roller coaster of emotions.. At first I was happy to get a diagnosis, then very angry that nobody seems to understand that I really am sick..and people tell me nothing is going to change..all will stay the same.. that I will continue to live life as I have been... that made me mad! I do not want to continue to live as I have been... it's been SO HARD! I really need to talk to others that have fibromyalgia to see what changes others have made in their lives to make life just a little easier.

sorry this is long... just dont' even jnow where to begin or end here... so much info spinning in my head..and nobody to talk to..

Stacie

came on me very slowly over years time. Until I finally got so bad and in so much pain I could no longer do that job.... I am in the final stages of getting disability. I know the the brain fog feeling sooooo well. confusion at times the ache and pains, of it all.

I can only imagine how tired you are when you do get home from work, I admire you for hanging in there, . If you ever need to talk or just need someone to listen I will be more than happy to be here for you,, As I know what you are going through Fibro has changed my life and the way that I can and cannot do things anymore. I have 3 grandchildren who are the love of my life who I am missing out on so much with due to this pain, so again drop me a line anytime,,,God Bless,,,,,,Carol

Thanks again for writing to me. You are my first fibro-friend, and it feels so great to have someone to talk to.

Stacie

So good to hear from you,,,,,,, I thought i would drop you a quick line to see how you are feeling and doing.....Trust me when I say ,,, I understand your fears and concerns about a family and working,,,, I truely believe I have had FMS for many years , before the Dr. finally diagnoised me,,, I think back on when I was in my 30s and all the pain and stiffness I was having then and doing the type of work I was,, Nursing, really did alot of damage early,,,,, I am so sad that my daughter now has fibromyalgia also, she is only 30 and is having the same early symptoms as I did when I was younger,,,,,, I will keep you in my prayers,,, and as I said ,, I just wanted to check on you and see how you are doing,,,,,,, I am here,,,, Carol

I told the doc I had stayed home from work all week and she asked why? I told her I was feeling twice as bad as I did before the test..and she said I was going to be furious at her for saying what she said next..and she was right.. I am furious... She said something like "nobody is going to pay you for what you have. You don't have any specific illness that will prevent you from working. But, taking time off like this is going to make it hard to employ you"........ WHAT?!?!?!?!?!?!?!?! I am so confused at what she said..

I told her.. I feel twice as bad right now than I do ususally.... my head and neck are killing me. My chest is hurting a lot today. I feel light-headed and "out of it". I can't concentrate... That is how I normally feel..now this week I feel that twice as bad if not more.

She is prescribing Cymbalta..as she now says I have Chronic Fatigue Syndrome and Fybromyalgia. ..and it's time for another B-12 shot within the next week or two..

So... that's the status on me. I'm not trying to get out of working. I like my job.. I just want to feel good enough to do it!

Somebody will pay you if you're too sick to work - it's called Social Securiy Disibility & if you're too sick to work you're entitled to it.

It's not easy, I've waited a year so far, but you will get it if you persever - I know it's hard.....especially when you feel like crap but you have the right to be disabled.

Meanwhile, Order a copy of THE FIBROMYALGIA ADVOCATE by Devin J. Staranyl MD for Amazon ASAP.

I bought all the Fibro books out there & this is the one to have...learn about Chronic Myofascial Pain & Trigger Points (probably why your head & neck hurts)

and how to treat them. From my standpoint most meds except opiates are a waste of $$$ and are pretty worthless.

what does help is bodywork (sssuming you also have Chronic Myofascial Pain too), avoiding what makes it hurt (working,siting, driving etc) & opiates for the pain.

Plese do buy the book today it has the best most honest information on Fibromyalgia & Mayofascial Trigger Points and how to live as well as you can with what you have.

best of luck

i don't think fibro can kill you but it sure makes you feel alone. i am 34 just by a few days and when i get up from sitting or sleeping i look like a caveman. it is shameful. i thought this would be different.

i read a book called reversing fibromyalgia by dr. joe. m. elrod. along with the herbs and minerals i started from this was a miracle. and all the sudden i was so sick falling into everything and not being able to remember for 1 minute at a time. it wasn'nt the herbs or minerals. the doctors thought it was from a drug called lamictol i was taking for bipolar. so i stopped and have gone to 2 others neither have stopped it. it's called ATXAXIA and beleive me it attacks ya. any way i am now back on my ELROD meds and still having test done. I've had them all except the spinal tap which is next i think. also for the last 17 years my wbc has been high and no one can figure it out. i believe it is the fibro and these absess' i have gotten for years (does anyone else have those) just my body looking out for me.

my poor husband doesn't know what to do for me and everyday i want to say i feel so good. but i can't cause i don't. i worry about what he thinks of me cause i have so many doctors. he says that's why we have insurance. i think it scares him to not be able to help me, but he is great. i was a very extreme achoholic until 1 year this sept. i was in so much pain but then i started blacking out because of time, amount, and because i was getting more sick. i don't know how he put up with me i just thank GOD.i drank at the very least a 12 pack a day since i was 13 until a year ago. it's a miracle or just one of gods plans for me to still be here.

well i'm going on and on. is there any way to chat on this site or only by email. i'm new to this stuff but it is nice to have an outlet. i see a shrink every two weeks but alot of stuff can build in that time and we all know that = flare up. i have had to sever a relationship in my life that was unhealthy with the help of my shrink. i worried for weeks and months how to do it and once it was done i realized she (my mother) was fine with it, i think that hurt worse but yet it was a relief. these things really matter to someone with fibro because if it is eating at you it is causing pain.

anyway the ELROD book is my fibro bible. only one of my doctors didn't like me taking them (hemotologist) who i love but then i saw him on tv locally talking about medical mary jane. talk about the ultimite herb!!!! thought that was funny.

thank you for listening it means so much

rhonda

My name is Gina and i suffer with this insane illness also. I take tramadol for the pain and i take adderall for the fatigue. The tramadol helps the pain. and the adderall helps

me stay awake. The fatigue is almost to much to handle. I feel like someone put vacume in

me and totally sucked the life out of me. I also have to commend any of you that work with

this illness. I also work. I have 2 jobs. I almost feel like I could lose my mind. I go to

work and just feel like i cant go on but do. I have to support my daughter. I come home and I cant do anything else. I cant hardly clean and when I do its a little here and there

Somedays i just cry and say this isnt a way to live. People think im crazy. If my flesh was falling off they would believe my pain. I just hope all of you out there find the

right meds to help. take care

gina