PamelaG
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Yep, you read it right. And I truly believe it. No, I'm not drugged up, matter of fact my "nice" <--sarcasm Doc stopped all my pain meds 2 weeks ago and I'm working to try and get a new Doc. I was in an Auto Accident that caused my Fibro and like 30 other conditions I now have. I have been thinking the last week or so about all the positives I have in my life "because" of the Fibro. Here are a few to consider, and please, feel free to add some that you have, I'd LOVE to read them! 1. I have had so many tests, etc. and so many Docs tell me my tests came back normal, Obviously it's all in my head. (You're thinking THAT'S a POSITIVE??) Yes, it is, it shows me the lack of education of the Medical Community. (To which you are saying WHY on earth do I think THAT is positive?) 2. I think that is positive because they need educated. Once we are positively diagnosed, and yes, it is a LONG tiring road, but I was the one who kept asking the Docs if FIBRO IS what I have, they kept saying No until finally they admitted yes, I do. 3. I have had friends in the past (online) who I loved to talk to. Some did indeed turn into complaint machines. (Their word not mine) And eventually fell off the net. Most were out of the Country and I had no way other than the net to talk to them. They always said how talking to me made them feel better. (No, not looking for any feather in my hat.) But I feel things in life are for a reason. So many people have been "comforting me" with the saying "God only gives you what he KNOWS you can handle". Yes, I am human, there ARE days I question it. (I will put a * here and explain a bit in a minute, so look for the * later to pick up at.) So my line of thinking is, these Docs need educated, the medical community at large doesn't have any plans on additional educating, what I got at the Psych's office today says only 2% of the population has Fibro. (Yep, we all know that is NOT a current number!!) But see, they are clueless. By great forums like this, we can help others and learn together the things that work, sure not every little thing works for each and every body, but there are enough of us that maybe we try 2 things and the 3rd works, wouldn't THAT be helpful?? Another plus is, we are able to talk and educate each other and we in turn can ask our Docs, Hey, my friend did this or that...what about me? And they look for more answers. LOOK we are then helping to EDUCATE the Docs!! A Positive right? I think so. So I say, keep sharing, keep talking, and best of all, keep welcoming in new people and being open and caring as you are. Just be you. Even your bad days are education to someone! There are so many things I've asked my Docs about that they kept saying aren't to do with the Fibro. I found out my first hour on this site that YES THEY ARE! You guys are all wonderful, helpful, teaching machines to everyone else. So don't ever think by posting something you are whining or complaining, you aren't and someone on here is or has gone through the same thing and you will learn things to help. Now back to my * As I said, One year ago Feb 15 I had a horrible auto accident which caused all this. We've lost our vehicles we had, got new ones, lost them, and now have what we have at the moment. I have a suit out for medical and damages. The in turn are suing my DH and saying yes they will admit what they did and that they are at fault but they will sue him for "not having missed them". (No joke, that is what the suit says! It went to court to be thrown out, but so far the judge ruled it has to stay until suit 1 is final. Talk about stresses!) My Brother has returned from Active Duty overseas and is totally disabled and the military is screwing him. (More info here: www.angelsofhealing.com/helpasoldier.html His whole story is there. I lost my Eldest brother in Desert Storm. And this Brother is the only one who came home, so he's VERY precious to me.) I've been trying so hard making sites with my art work as I have good or ok days to be online and sell in my shops. My first marriage was to an abusive alcoholic for 18 1/2 years (I'm a SURVIVOR!) And we just found out my son who is 22, will be 23 on April 30 has a rare eye disease and is going blind, and like Fibro, there is no cure. This is a genetic thing he got from his Dad's side of the family. (He's in College will graduate with his Assoc. in Arts in May and had plans of starting the Culinary School this Summer or Fall. He has always wanted to be a chef and own his own restaurant. He's an AWESOME cook!!!!!!) So....I've had lots of trials, especially this past year. But I'm still looking to the positive, and hope you will join me. Please share your positves with me. They can be any little simple thing. Maybe you went to my Diary and emailed or printed off those 2 stories and are sharing with people to educate them as to what you go through daily. THAT is a positive. Not only will they know how to work with you, but with others they come into daily contact with who have Fibro...or other Invisable Diseases! If so, I applaud you, look how many people you are educating! Shoot, print them off and give to your Doc! I'm sure it will help him/her also!  Have a lovely weekend! Wishing you extra Spoons, |
"I am so happy to be a part of the MDJunction family! Where I used to be alone, I now have friends whom inspire me, comfort me, support me, and do not judge me. My new life began October 17, 2008. I weighed in with severe depression, social anxiety disorder and avoidant personality disorder. I was born with complications but I am fighting for my life and I will survive!!" (apieceofwork)
