Fibromyalgia Support Group

First i need to say i had very little to no Joint pain. Mostly soft tissue involvement.

I thought i had fibromyalgia (and i still may) for years. I have seen more than 30 Dr.s over the course of the past 15 years. At least 7 of them I saw specifically to address my pain and horribly painful mobility (I never give in to the pain, nor will I begin to use a pain pump as was suggested to by all of the pain management Dr.s.)

My Optometrist Dr. Inclima was the first Dr. to say he thought i had Lyme disease. I had 2 tests one was negative and the 2nd positive, I began treatment and got 10x worse. Which sometimes happens.

I recommend seeing an Infectious disease Dr. (he was able to confirm our suspicions and get a positive diagnosis. I saw Dr. Saul.

Best wishes to All , don't give in, adjust your life to make your pain level tolerable, and remember you need to be your own advocate!!!

Choral

We do have some members who have both Lyme and Fibro. For many of us, though, it's not an issue because there are no ticks where we live.

http://www.cdc.gov/ncidod/dvbid/lyme/ ld_rptdLymeCasesbyState.htm

You will notice an increase in reported/ diagnosed cases reported each year.

Best to all

I hope you get better with the proper care you are getting now.