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02/09/2008 09:03
jenjen77
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Hello all,

I'm new to this forum and new to fibromyalgia. I have just been diagnosed by my rheumatologist, and I don't really understand this condition too well. I've felt very isolated since I started experiencing this pain for the past few years.I've felt like I was crazy and felt like everyone around me thought I was crazy too- including doctors.Now that I've been diagnosed and I've read more about the condition, I'm not sure it's exactly what is going on with me.

I've been having widespread pain throughout my body for a few years. Almost every a.m. I wake up with lots of stiffness in my hands and feet plus my hands just feel sore. Sometimes the stiffness and soreness will go away and then 4-6 hrs. later I feel achey, stiff, sore- sort of how you feel when you're about to come down with a bad cold or the flu. I do have at least 8 trigger points in the neck, shoulder area, and lower back.The weird thing is they hurt very bad internally, but they don't always hurt when they are touched. Does that make sense? The other thing I'm wondering about is soreness and burning in the armpit area. I get reocurring pain just around my armpit. It first starts to feel very sore and then will start to burn.There is no swelling in the lymph node there, just pain. Usually the pain will radiate down along that side of my body to about the ribs. Does that sound like typical fibromyalgia type pain to you?

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02/09/2008 09:44
teri hayes
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it was hard for me at first. i grabbed onto every i don't have that or this is different. then i realized that if i look honestly at the symptoms, and if i forget what they are they will jump up and remind me, then yah i got fibro. feeling like i am coming down with the flu is a big one. the trigger points is the next. sometimes you can touch me and it doesn't hurt at all, other times if you think of touching me i will burst into tears. I don't realy hurt when i am touched but it hurts inside later, like a delayed reaction. If you read all the forums, most of them anyway, you will probly find that we are all at different stages of this disseas(sp) but we are all the same. keep asking questions....

teri

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02/09/2008 09:58
jenjen77
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Thanks Teri for the reply. I have a hard time explaining how I feel when it comes to the pain. What you said about having the delayed reaction to touch makes sense to me. I guess I'm picking things apart- trying to dispute the fact that I have FM. It all fits- I've just been unsure because of the lack of pain experienced when touched on the tender or trigger points. I have other areas besides the traditional tender points which are quite sensitive to touch. I guess it's really different for everyone. I'm just feeling especially down today, but hearing from others who know helps.
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02/09/2008 10:03
LibraJo
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Welcome jenjen

I think those sore spots you are referring to are called: referred pain? I have many of those spots.

Hope you can have a nice weekend.

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02/09/2008 10:11
angelcath6567
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Hi jenjen

Welcome to the group! What you are going through is normal... well, I think it is, or maybe Im just NOT normal lol I was just telling someone last night that sometimes I worry that maybe I have been mis-diagnosed. I think alot of that is DENIAL!! I, too, have a delayed pain reaction to touch. What you said about armpit pain was interesting. I have some armpit pain that I never really paid alot of attention to before. And that's one of the wonderful things about this group! You read things and a light goes off in your head! The other pains you mentioned are similar pains I think all of us with Fibro experience.

Just know you are NOT alone! You have found a wonderful group that you can vent, cry and ask questions of! Its also a great place to catch a good laugh sometimes! I am quite new to it myself, but I am here with any help I can offer. Keep your chin up!

Cath

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02/09/2008 10:15
ggirl
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Welcome to our group. Its very hard to accept the Fibro diagnosis because it doesn't have a cure. And, I know at least for me and probably many others if not all, it gets worse over time. It can jump all over the place. Sometimes even your skin hurts. Othertimes its an ache deep, deep down. We're all here to vent, laugh, and to know we aren't alone in this fight. If you think you have something happening that may not be related, just ask here, and most of the time, you'll be surprised at how many others have experienced the same thing. Take Care.
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02/09/2008 10:18
jenjen77
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Thanks, cath and ggirl. I will probably be asking lots of questions! lol. Nice to know people here care.
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02/09/2008 10:21
teri hayes
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if you want a good laugh or cry check out you know it is bad when.

teri

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02/09/2008 11:31
kychick
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Welcome JenJen and just know one thing,not everybody has the same symptoms of fibro. I know some that are almost bed ridden and others who function pretty good with the right meds. I have more problems with the cervical DDD and the fibro combo. If i do nothing,I am usually okay,but we know doing nothing is not an option if you want a life. So I now listen to my body,and when I feel the pain coming on,if possible,I quit. There are some days,when the pain and the flu like feeling knocks me down and out for the count,and I just try to endure those days and hope tomorrow is better, I know how hard it is to except this dx. Well meaning family and friends will tell you it could be worse at least it's not cancer or MS or something else,but they don't understand because it is not happening to them. At least now you have found people who are like you and will understand and will be able to help with questions or just understanding.
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02/09/2008 12:12
soopergirl3737
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Hi Jenjen, welcome to our family! We all truly understand what it is you are going through and you should feel free to share anything. We are here to help and if you look hard enough you will always be able to find something to laugh at.

You are in my thoughts and prayers. If you ever need anything, feel free to post it or pm me. Good luck and i hope to see you in the forums!

Love, soopergirl

a day without laughter is a day wasted.
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