Fibromyalgia Support Group

I havn't been on much. The last week in January my rhuemy put me on med leave until I was on provigal a couple of weeks and saw my neuro. When I saw my neuro she would only release me for 2 days a week. My employer didn't want me back untill I could be full time. I was wanting to leave the manufacturing buisness anyway. just to hard on me I thought. So I started looking for a job. I found a job but ended up with a two week lapse in insurance. No ones fault but my own I wind up out of my lyrica and trammadal and my doctors are gone for the weekend. Yesterday had to be one of my worst days yet. I weent to bed early the night before about 9. I couldn't wake up the next morning. I didn't get my daughter up for the bus. Even though my wife tried several times I just couldn't get up. I ended up being awake for just a few hours just enough to feed my kids. When my wife got home at midnight I was out of it. She had a bad day and wanted to talk. I tried I just couldn't stay awake. This began a fight, I understand she needed to talk and I want to be there for her. I feel real quilty that she has to deal with this. We both said some things I hope we both regret. I did find out that a suspition of mine was true she has not even googled fibro. I just dont understand this if something was wrong with her I would be finding out everything I could to understand and try to help. I just dont understand I am not doing any of this on pupose If I could change it I would. I am 18 months out from my first noticable symptom I am so scaired of what is yet to come.

Bri

I'm so sorry you have to go through all of this. Try not to be too scared of the future and just get through one day at a time. I know it's hard but you never know what tomorrow might bring.

Bri, I'm so sorry! What an awful time for you. I wish I had some sound advice for you, but you know we're all here for you.

I don't really know what to say at all. I agree with you, she should look it up and learn more about it.

And of course, you wanted to be there for her. Sometimes, in any marriage, always being there just isn't feasible.

She is probably just as scared as you. I think it might be a little different for women to have husbands who are ill, rather than the other way around.

I'll tell you a dirty secret of mine. When my husband was hospitalized for a week with a cat bite, I went to see him maybe 3 times. I just couldn't stand the sight of my husband so ill, looking so weak and vulnerable. It scared me to death.

Am I making sense? I think maybe your wife is really scared of how sick you are. If she researches it at all she may get even more scared.

You should talk to Skwerl. He's a great guy. Just like you.

A great guy who has fibro.

Also, I think it would be a really, really good idea if you and your wife get a counselor. If she won't go I think it would still be good if you go alone.

You're going to the top of my list of prayers tonight. Frenchie has offered to take prayer requests, too. You may want to put your situation on her list, too.

It's so good to see you back, Bri. I just wish the circumstances were happier

I am sorry to hear about your rough time during the past few days. I was diagnosed with fibro two years ago and although I am only 49, there are days that I feel like 99. My husband and sons have been very understanding but there are some days when I am not feeling good that they get impatient and discouraged of me. I also get so fatiqued that I can't stay awake past early evening hours anymore and I would sleep my entire weekend away if I could (some weekends I have) but I know this isn't fair to my family either. I do know one thing though ... it's very hard for our loved ones to even comprehend what fibro does to us on a daily basis. I have learned to take one day at a time. Since I work 11 hours Monday thru Friday doing licensed daycare, I do not commit to many preplanned evening and/or weekend plans. Try not to take your wife's harse words to heart. I truly believe she doesn't mean what she says ... I am sure she gets frustrated like my husband does because she cannot fully understand your sufferings.

Bri I know we haven't talked much but I feel for you. Having to go thru this alone. Maybe if you tell her that fibro isn't catchy

she'll give in a little. What's probably going thru her mind is

"now I'll be the major bread winner" My hubby so wanted to retire

at age 62, he's now 61, but when he realized that I won't be able to get another job in this area, he started to resent me. This is a farm/factory town. I can not slop hogs or milk cows and factory work is out of the question with all that are being laid off and shut down. Until you get used to your meds, IMO, maybe you should stay away from midnight talks especially if she's had a bad day at work. Wait until you both can talk about it together preferably when you are awake long enough to comprehend whats going on.

We all go thru this. It's not easy.

I wish you luck

Fibro hugs

Jan

I know I have a wonderful and large group of friends here, thats why I'm here!! I feel like bad like all I do is complain. I can't complain to my wife she just blows it off or makes fun. I do know that she does this because she has a hard time dealing with my illness. This is her way of coping so you all get to hear my whininess. Speaking of whininess did I mention that my work week starts tonight,

Bri

Bri, have you printed out any information for her? If not you might try that and just leave it somewhere for her to find. Be sure to leave a little love note with it. Also, I remember you said that your doctor thought you might have narcolepsy. If that's the case she needs info on that as well. I don't think that my husband has ever looked anything up on his own either, but he will read it if I bring it to him.

Good advice Amommy, I printed the Spoon Theory for my hubby and daughter and they both actually read it. I was impressed lol

I also read things from here for them to see I'm not the only one that feels like this.