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02/06/2008 12:00
suzanner
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I would like to know who is able to work with this condition and If you take pain meds while on the job or how you handle it. I havn't worked since oct 31st, but they are still holding my job for me. my husband doesn't understand what I'm going through and has been pushing me to go back to work. as of now, I can't see myself working ever again, but I havn't seen my rheumy yet.
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02/06/2008 12:06
Nina80
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I'm working FT in an office. After the day's over, my body is finished. I feel run down, and I am layed out to recover for the next morning. I asked my rheumatologist for two sets of meds - muscle relaxants and anti inflams for the day, and a stronger muscle relaxanta, (same anti inflam), and a narcotic for my nights - if it deems necessary. I can't say I feel good with this combo, but it keeps me from scratching my eyes out. So I guess that's ok.
"For if the readiness is there first, it is especially acceptable according to what a person has, not according to what a person does not have." - 2 Cor. 8:12
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02/06/2008 12:15
singingangel
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I used to work. I found I got really worn out. I was taking 8 meds then. My boss didnt know so I guess that was ok.
I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
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02/06/2008 12:35
ilovepetey1
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Me too. I give lots of credit to those of us who have to for financial reasons. Lots of credit.

leslie

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02/06/2008 12:42
Aquarian211
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I work full time. I have an amazing undersanding boss & supervisor. I have an office of my own (that i can nap when necessary) and keep a heating pad / massager on my chair. I have to work - but i've made it the best situation as possible with the help of those I work with. Also - it helps that i work for a county (or if you work for a large company) that have to allow you to take off up to 12 weeks per year for FMLA. Only large companies have to follow those laws.
Things turn out best for the people who make the best of the way things turn out.
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02/06/2008 13:00
TeainTN
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I'm so impressed with you guys, I don't see how you do it working full time. My hats off to you!! I would like to work part time but I don't know if I could do that and everything I already do at home. My husband and kids are spoiled. I don't know if anyone would hire me knowing I have FMS. Is this a problem for anyone?
There is a light at the end of the tunnel -- but it's a train about to run over you.
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02/06/2008 13:16
hanginon1
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I work full time also. I don't really have much of choice right now. I am divorced and still have my youngest (19) at home, who I'm helping through college. He also works, but I provide both our medical and dental. Sometimes I wish I didn't have to work anymore, and then I get mad because I've worked for long to get where I am. I work at a big company as well. I take my meds throughout the day as needed. Muscle relaxer and pain med. I usually break them in half. But I been here and working overtime, under deadlines, and I will take something. I am in an office type setting, so that's good. Most of my work is accomplished on the computer. My closest co-workers know my situation. I also recently had cervical disc surgery. They will see me popping a pill from time to time. I say "hey, gotta do what I gott do".....
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02/06/2008 14:58
truckin_angel
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I used to work until i finally diagnosed in 8/06 then went on medical leave and just didnt go back. I am currently going to school but its very different than work, i have my classes a few hours a day and also if i dont feel like going then i stay home and my instructors email me my work. I am going to school to learn how to build websites and the business end of websites so it all pretty much has to do with computers anyway.

I am trying to get a job working at home doing medical transcription which is what i did at a hospital for almost 8 year but so far i havent got a agreement with any companies yet.

I admire those of you who do work FT. I was so sick by the time i was diagnosed there was no way i could have worked another day.

Hugs, Alicia

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02/06/2008 16:19
sweetheartsuzee
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There's no way I could work! I mean...really...NO WAY!

I worked full time up until last June/July. Not only am I in too much pain to work but the fatigue is soo bad, there's just no way I could do it any longer.

Then, there's the anxiety of knowing someone is relying on you to be there at a certain time and not knowing what I was going to feel like each morning made this anxiety worse. So, mix that with a nights worth of anxiety and no sleep and what do ya get? ME! Someone who is in horrible pain with no energy and trying to move on no sleep.

It just doesn't work!!

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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02/06/2008 18:04
teri hayes
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i was a material handler in a wharehouse at a medical device facility. my job included power lifting, driving a fork truck and useing a picker, of which you drive standing up and the platform lifts 40 feet up. Today i can't remember why i have to breath and i can't carry a cup of coffee to the next room. I can't drive a car down the road without disasterous results. going back to work is definately out of the question.

teri

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