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02/05/2008 12:53
Surfacing
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Well it is so damp & dreary outside that it is depressing. I find that if the weather is like this I am more apt to be feeling down and today is one of those days! My energy level today is a big fat 0! No energy at all. I am sick and tired of feeling sick and tired literally. I am fighting lying down for a nap. I also suffer from Thyroid problems along with the Fibro and Chronic Fatigue...triple Whammy! Plus a whole bunch of other ailments...too many to list. I wish I could just get up at least twice a week and feel like cleaning and doing jobs that need to be done. Does anyone else nap as much as me and feel as tired as me? Please let me know. I really wish my family could understand me and these conditions better. Going to make a coffee...really need something to keep me awake.

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02/05/2008 15:01
Mydragonfly
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I understand how you feel. My family does not understand how I feel all the time. I am tired, hurt, cant concentrate. I wish I could get up one day and not feel all the pain. Iam also sick and tired of being sick and tired.
The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***
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02/05/2008 15:50
TooMuch
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I hear you. Today it got to 60 degrees and rained all day. Its February and I am in Ohio. Dark and dreary. I haven't left my house, I didn't even brush my teeth or change out of my pajamas until 10 minutes before my husband came home from work. I went to bed at 3:30AM last night and got up at 1:15PM. I think I am sick. My chest hurts and I have a cough. I've only been awake for about 6 hours and I want to go back to bed. No one that I know personally understands how I feel. My mom told me that I just have to stay on a schedule. I am too tired to even make a schedule! I can't wait for summer. I miss the sun.

Post edited by: TooMuch, at: 02/05/2008 17:50

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02/05/2008 16:07
Terri430
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I feel the same way. It was miserable outside today and I felt like I couldn't move. I didn't even get out of my pajamas. I have to lie down a lot also. I used to feel guilty but now I don't care what time of day it is, I just do it. If it makes me feel somewhat better then I will take a nap. I feel extra lousy when it's raining like it was today. DO WHATEVER MAKES YOU FEEL A LITTLE BETTER and do not worry or feel guilty about it.

Terri

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02/05/2008 17:11
teri hayes
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I completely understand. I spend so much time napping that i feel like the dwarf sleepy. for me the weather doesn't seem to matter. I am always greatful for a day when even one of the symptoms relieves just a little. keep your chins up.

teri

huggs to everyone(softly)

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02/05/2008 17:11
FightNFibro
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Hi everyone, I am new her. My name is Sandi. I need to post an intro on the intro board.

Anyway, I just had to say I sure can relate to what you all are saying. I feel my family understands but at the same time they don't really "get it" and I know you all know what I mean. I am sure they get tired of hearing me say how much pain I am in and sometimes I feel like my husband must think I am so lazy when I spend the whole weekend laying on the sofa with my laptop and watching movies because I just feel tired out and/or am hurting so bad. Sometimes the resting just feels SO good. He doesn't say anything about it but I do feel guilty still sometimes but I am working on that. Even when I do feel well enough to do things, I usually will overdo and then I pay the price for that with more pain. It is hard to find what works for us each that's for sure.

It has taken me a long time (over 2 years) to finally "allow" myself to be okay with not being able to do the things I used to be able to do and without a whole lot of guilty feelings. I know I need to take care of me because really no one else knows how to anyway since they don't really "get it". Shoot, we can't even take the pain away totally.

I really find the weather affects me a lot of times. I have gotten really good at predicting storms. Maybe I should become a weather woman. Oh, I forgot - the weather affects me too much to do that - I am hurting too much or am too tired. Sorry, if I am kind of corny but I have found it really helps with this illness. It is better to laugh than cry when we can, although I do my share of crying too, just like I am sure you all do as well.

Anyway, I am glad to have found this site.

Sandi

Post edited by: FightNFibro, at: 02/05/2008 19:16

Post edited by: FightNFibro, at: 02/05/2008 19:31

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02/05/2008 17:22
foggy
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Hi Sandi; Welcome to the group. We can all relate believe me. Hey don't you wish that you can create the weather instead of predicting the weather.

Make it all sunny and clear mild temps.

foggy

I can't live forever. Let me live for Today.................

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02/05/2008 18:10
FightNFibro
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Oh foggy, that job certainly would be better than predicting the weather! LOL What a great concept.

Thanks for the welcome.

Sandi

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02/05/2008 23:58
carrie911
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I know how you all feel! Its come to a point that I dont even tell anyone when Im feeling bad (which is pretty much everyday). I just sit and cry because I feel like Im missing out on life, isnt that horrible? I put a smile on my face and lie to everyone. No one understands why I want to sleep away my days off from work. Im constantly tired, always want to sleep, Im afraid people will think Im being lazy. I havent told work of my condition, I put on another smile and say Im great, even though I feel like Im dying....
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02/06/2008 00:56
hipmama42
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Welcome FightNFibro, Surfacing, and Toomuch! I think you'll find that we all understand exactly what you are describing...that deep fatigue that makes you feel like you're in a coma all the time that sleep doesn't relieve. For me, the fatigue has been worse than the pain. I guess that is a positive? I spend 2/3 of my time in bed resting or asleep, especially now that it is so dark, gloomy and depressing outside. I have no energy and have to force myself to do the bare minimum to get by, with housework and taking care of my kids. The only consolation is that I have some wonderfully exciting and entertaining dreams when I sleep in the day to relieve the boredom of being cooped up inside and not able to do what I used to do. I rarely have nightmares, so I guess that is a blessing. And I enjoy the peaceful daytime naps surrounded by my loyal cats. I try to think of myself as a cat, living in the moment, with no cares and no guilt. They sleep 2/3 of the time and no one cares or complains!

I find it hard when I have to do anything during the day that requires focus and concentration or physical energy, and I have to be especially careful when I drive in that foggy condition. I wish I could find something to help with that. My doctor won't give me anything.Pushing myself to do more only makes the fatigue worse the next day. I'm glad that others are going through the same thing, it makes me feel a little better. My kids ask me if I have bedsores from sleeping all day. They try to make jokes about it too, but sometimes it makes me so sad for them that I can't do what normal moms do with them...

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