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02/04/2008 19:35
hanginon1
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Okay, I just got back from my doctor. I went in early to see him because a week ago I quit cymbalta cold turkey. I had a horific adverse reaction to it, even though I'd been taking it almost a year. In hindsight it began a few months ago. Anyway, I mean horific....consistent, constant very loud buzzing in my BRAIN. I am not kidding. I don't mean ringing in my ears. This felt like a was literally plugged into an elecric socket. For over two weeks straight. I could hardly hear people talking to me, the TV, I couldn't concentrate at work. And then my body. It felt like it was plugged in somewhere too. This was all on top of my normal fibro and CMP pain. I got so depressed. I felt desperate, hopeless, without any joy. So, this was the absolute worst anything has ever been for me. Okay, so I go see my doctor. Oh my gosh, I was so frustrated! He hardly listened to what I was trying to convey. And then when I insisted, he says, "okay, let me write this down just how you are saying... You had buzzing, whooshing, zaps in the head. Almost mockingly! and then when I told him how I felt desperate, hopeless, thoughts of "what if I was dead"....which I have never had before. But that's just how horrible I felt.... But anyway, then he asked me if I've ever seen a psychiatrist. If I would be open to seeing a psychiatrist. I told him it was the cymbalta, because the symptoms have all subsided. And the depression lifted almost immediately. Side note: he help "create" cymbalta, at least that's what he told me when he prescibed it. Anyway, he wouldn't concede that it was the cymbalta. I think that he wrote that I am refusing the cymbalta..... I hope I have't started rambling. He also made a remark about me refusing to take lyrica because I don't want to gain weight. I said I don't want to take it because I'm afraid of the swelling, especially in the neck where I have a two level metal plate... things are tight enough there. And I said I also don't want to take a medication for seizures. Then he practically "raised his voice, I can't say yell" but he said, The FDA approved it!! But you know your body... It's a good thing I was laying on my stomach at the time, because I was fuming.

Another side note: cymbalta gave me some relief the first few months, I think, it's hard to tell, since I also had surgery during that time frame. So I'm not saying cymbalta is bad, I know it helps alot of people and so does lyrica. But he is right, because I do know my body. We all do.

I did get some shots in my back for the CMP. Those usually give me a month or so of much less pain in that area. And I'm going to go to a pain management class, that they gave me the info for, so that's something good that came out of the visit. Oh, I also had to bring up myself that maybe I should have me liver check (blood work). It's been 1 1/2 years.. Oh, yeah, you're right... duh.

So now I'm going to try a low dose of Elavil to help sleep. I asked for an exta Soma a day ( I get 3 now) because I get more relief for the CMP. But he wouldn't. Instead he offers another vicodin? (I get 2 now). I said no. On my last visit I got a lecture about opieds (sp) ?? That made me mad. What's wrong with relief?

Oh, and then he made a remark about how he'd been with me for 35 minutes.... Oh, I'm sorry...I'm taking up too much of your time. Only because I was insisting. I'm tired of only gettings answers to a fraction of my questions. And I think he doesn't really care for all the reading I'm doing about CMP and FM.

So now I know I need to start the search for a new doctor. I am going to find someone who will listen to me, and if I can't come up with a good word to describe the whooshing going through my head.... they will not discount that the whooshing exists.

Hey thanks for listening everyone. I live alone, except for the occasionally seeing of my college age son in passing. He lives with me, but has a young man's life. And I talk with my other children, especially my daughter, almost daily, but I'm tired of our conversations always being about my health. But she did just call to see how my visit went. I ranted...

I'm just so frustrated right now and angry. I'm so happy I found all of you, as you have validated me, as I am now. I'm not alone. I am not nuts. You make me stronger.

Wow, I feel better Venting is great. Now I can let this day go. I know you all have similar days and experiences. So I know you understand.

Hope everyone has a restful night.

Vicki

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02/04/2008 20:34
fibroforever
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I'm so glad we can be here for you. You vent anytime!

I only wish I had some advice. Even better yet, I wish I could make you feel better myself! And make all that pain go away.

It does sound like you should be looking for a different doctor. Ask around, surely someone you know would know of someone that has Fibro. Maybe you can find a good doc from someone you know. Otherwise, maybe contact the National Fibro Association for doctors in your area. These are just thoughts.

I'll be thinking about you. Be sure to keep us updated on how you're doing. Take Care!

Amy

(Note to Suzee and Roy- I think what I said about NFA is okay. If not, let me know and I'll delete that part.)

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown

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02/04/2008 21:00
hanginon1
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Thanks Fibroforever for reading my post. I know it was long and drawn out. That's a good idea re: NFA for a doctor. Believe or not I don't know anyone else with Fibro, at least not personnally. I know someone, who knows someone, whose wife has it. I could always try that too. I'm also thinking I might get some good info from this program or class, I'm going to attend. It's called Fibromyalgia Self-Management Program. A holistic approach. I've never done anything like this before. It's an eight week program that addresses both the physical and emotional effects of fibro. I can especially use the help with the emotional effects. I was thinking of couseling but this might do it. I just can seem to accept that this is my fate.....

Sleep well. Here's hoping my new med will do it for me tonight.

Take good care....

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02/04/2008 21:27
DEE30
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omg that dr is putting you through the ringer....what a jerk. i take elavil for sleep as well. back in 2005 i started at 25mg, at first i wasnt gonna take it , i told the rhematologist that i wont take anything that was for depression or that would alter my state of mind. anyhow i'm up to 75mg, hower i also take with it @ night 800mg ibprofen,elmiron and enablex that makes me sleepier quicker. now over the past 3 years i have noticed that it will all put me to sleep,however i don't dream @ all, now if i try to take a nap, then i do dream but its always bad.....i don't get it. the dr said because if i try to take a nap i'm not in a deep sleep like @ night.....hhhmmmmmmmmm got me, just wanted to share w/ you my experience on elavil. hope it works for you!!!

devon

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02/04/2008 21:32
hanginon1
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Thanks Devon, I just took it.

Wish me luck for some good sleep tonight!

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02/05/2008 00:07
soopergirl3737
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hi Hon, I'm so sorry that your doc is treating you so badly! He sounds like an absolute jerk and I just want to march over there and punch him where it really counts! I hate it when people hurt the people that i love and care about. I am praying for you to find a new and better doc and to feel better soon. I hope you sleep well and that these new meds will work well for you! And you feel free to vent any time you want, it feels so good some times!

Lots of love, soopergirl

p.s. I have really bad nightmares durring my naps and my night time sleep, do any of you get that too or am I just crazy?

a day without laughter is a day wasted.
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02/05/2008 05:00
ggirl
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I get bad dreams at night too. I don't ever go into a deep sleep. I had a sleep study. I don't go past stage 2. You need to go into stage 4 for your body to repair itself and for you to feel fully rested. Also, I was wondering, anybody take Lyrica and not gaining weight? I can't afford to put on anymore. I've put on 35LBS this last year and each time I go to the doctor, I weigh more. I was always skinny all my life. Not anymore. My doctor is fighting with my insurance to get the Lyrica for me, but now I'm scared at how big I will get. Anyone help me not worry so much???
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02/05/2008 06:36
sweetheartsuzee
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I hope you got a good nights sleep Vicki~

I get soo mad when I hear of doctors doing what he did to you!

Sometimes I just WISH they could be our friend!!!

Good luck in finding a new doc...

I'm here for ya...

Post edited by: sweetheartsuzee, at: 02/05/2008 08:37

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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02/05/2008 15:32
hanginon1
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Hey all... thanks so much for all your support. It's just great. The elavil seemed to work pretty good, because I got the first good nights sleep in over a month. I didn't even dream. Something I have been doing every night and not pleasant dreams. So no you are not crazy soopergirl.. Whether its the fibro or our meds, the dreams (nightmares) are not good. I like a pleasant dream now and then, you know, like maybe Brad Pitt's in it, but the ones we get are not the good kind.

Oh, something I forgot to mention about my doctor. And I think it has to do with his participation in the development of cymbalta but he would not acknowledge that there is anything like Brain zaps let alone caused by cymbalta, or that there is any withdrawal symptons with going off of it! He said it is out of your system in 24 hours. I told him that's not what I read and I've read hundreds of posts about cybmalta and brain zaps.. He just shrugged his shoulders. I'm still fuming obviously.

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02/05/2008 17:07
singingangel
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Some drs have their own agenda on what you need to take. if they dont work on you they act like babies. I did want to share though a lot of us do respond well to antiseizure meds even though we dont have epilepsy. I know that neurontin has helped me and when I was on klonpin that did also. zanaflex is good for spasms. That one is a antispasmodic.

I do think you need to find a dr you feel comfortable with that will listen to you. Otherwise you will just get frustrated and not helped. Iknow it was the cymbalta that caused those problems. Im sorry he didnt believe you.

I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
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