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03/17/2008 18:23
cindyloo
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Maybe you'd like to join a BIGGER group!! Every thing you've talked about is right here.

http://www.fmaware.org/site/PageServer? pagename=community_awarenessDay

Sorry they don't have ribbons! And their "gift shop" is a bit pricey.

Post edited by: cindyloo, at: 03/17/2008 20:27

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03/17/2008 19:43
amyj298
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Cindyloo...where are yoooooou

Sorry, couldn't resist.

Anyways, I am a member of National FA and I knew about their items and to be honest was a little disappointed.

Not that I wish this on any of us (actually I think a few of us has actually a diagnoses of Lupus) but if we had Lupus, they have all the cool stuff!

Check out:

http://cure4lupus.org/lupusproducts/purple_ribbon.htm

Thanks for your post!

Amy

LIFE IS A ROUND-A-BOUT WITH NO STREET SIGNS

***I HAVE FM CAR MAGNETS AT COST PM IF YOU WANT ONE!***
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03/18/2008 06:50
hipmama42
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Please put me down for two magnets. I was checking out the NFA "store" and did notice that they have NFA bracelets for sale, $15.00 for a pack of five bracelets, which is the minumum order...comes out to be $3.00 per bracelet, which is not so outrageously expensive. But they are PINK, which automatically makes me think BREAST CANCER AWARENESS!

https://secure2.convio.net/nfa/site/Ecommerce/1299772372? VIEW_PRODUCT=true&product_id=1041&store_id=1181

Glad we are going with the purple, something which will stand out.

Post edited by: hipmama42, at: 03/18/2008 08:50

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03/18/2008 09:43
Maggie

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Hi, I just read the post about the bracelets on the NFA site. I ordered these bracelets and although they are not a true purple color they are a a deep pink - according to the description on the site they call them cranberry. The bracelets have recessed lettering on them that says "National Fibromyalgia Association" with a butterfly after it. Also on the bracelet is the website "WWW.FMAWARE.ORG" with a butterfly after that also. I recently ordered them for my family to wear and at that time I thought they were $10 for a pack of 5. If so, the price really went up! I could be wrong though as I forget from one day to the next what went on,

I hope everyone is doing well today.

Maggie

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03/18/2008 12:04
hipmama42
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Cranberry is a nice color....those bracelets do look more pinkish on the website. I'm not surprised the cost has gone up....the cost of EVERYTHING has gone up lately as well as mailing costs. I'm glad you got these bracelets for your family to support FMA awareness.
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03/18/2008 14:21
Maggie

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Hi Amy, What a fantastic lady you are for taking on such an enormous task of ordering the ribbon magnets for all of us who are interested in purchasing one. I read your post where you listed everyone who wishes to order one and with my name - Maggie - you have I ordered one. I thought I had PMd 2 but knowing me I probably thought 2 and put 1, lol.

I am a little confused though as to what some have mentioned as putting the inscription Fibro as invisible.

By that does it mean it would be the same color as the ribbon? My brain doesn't register things too well,

Maggie

You have a super daughter. Her message brought tears to my eyes. I give you a lot of credit for raising 4 children on your own. God Bless You.

Post edited by: Maggie, at: 03/18/2008 16:22

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03/18/2008 14:27
Maggie

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suzee since you are the Group Leader I thought I would address this to you. Is it possible to place on the main page of MDJunction the selling of the ribbon magnets? That way so many more Fibromites will see it and maybe amy would get lots of orders. From what I understand she needs to order in lots of 100 and there are not that many who are reading the forum about the magnets.

Just a thought.

Maggie

Post edited by: Maggie, at: 03/18/2008 16:28

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03/18/2008 14:43
amyj298
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Maggie,

Two Fibro people trying to place an order ....

Sounds like the begining of a bad joke. lol

Don't worry, I will definitly change your order. It could have very well been me that "drop the ball".

I will PM you when I get everything together.

HUGS!

Amy

LIFE IS A ROUND-A-BOUT WITH NO STREET SIGNS

***I HAVE FM CAR MAGNETS AT COST PM IF YOU WANT ONE!***
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03/19/2008 18:46
soopergirl3737
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okay guys, I am soooooo sorry that I haven't been around in a while. I have been so incredibly sick that getting on here wasn't even an option. I have the ribbon designs in my head but my hands have been so swollen that I haven't been able to do anything. I am working on it tonight so designs will be on here by the weekend.

I love the car magnet idea too.

love you all and I plan to write to oprah or Dr. Phill in the next couple of days too.

soopergirl

a day without laughter is a day wasted.
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03/24/2008 18:33
soopergirl3737
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Okay guys, I know you have already done the car magnets but here are my ideas for the ribbons that we can wear and give to our friends and family.

Just let me know which one you like and I will find the person who said she would make them on here. I hope to get this done fast so I can send in some ribbons when I write to Oprah. Maybe she will be willing to wear one around and get them to people who can truly make a statement for our cause.

Love you all and hope these are okay!

soopergirl

a day without laughter is a day wasted.
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