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ilovepetey1
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I've been sitting here thinking, uh oh. When I watch all these old movies about how people got a disease or a family member got a disease and the sick person or family member helped to find a cure or started to make the public and the medical profession aware of the disease, it makes me think that we are so at the very beginning of this fibro. I think, wow, can you believe what these poor people had to go thru, {ie before pennicillin,etc.} I think all of us should do all we can to help. Problem is we are so limited in what we can do due to the way we feel. I would like to hear in the future, wow, look what these people had to do to survive before they had {whatever}. But they managed to do everything they could to help future fibromites from going thru what they did. I guess what I'm saying is, I would like to make a difference and do anything I can to help future fibromites. All I can think of right now is to ask Doctor offices if they would keep a stack of flyers in their waiting room. Maybe start more local support groups of people to get together to do stuff like that, at least it would be doing something other than being so depressed all the time like I find myself. Oh I hope I'm making sense. I don't want to start something too big because of stress and noy being able to handle it. I have put myself in this position too many times, starting something too big, and not being able to follow thru. Anyone have any thoughts? leslie |
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coolmamma
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I think this is a great topic. I have been thinking about this as well but am in the same boat as you. I have tried to do things too big before and then can't follow thru becuase of the pain & or depression/both. I have been trying to do research for my city to see what other groups are out there. The pain class I am taking right now is thinking of starting a group. I am thinking about joining not to lead the group, but maybe to help co-lead? I am thinking if we all take a part, the burden wouldn't be so great. |
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ilovepetey1
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Boy, I almost deleted this topic cause I thought noone was gonna respond. I've also done research to see what other groups are around but you have to be careful you have a really good group of people or it turns into a huge depressing talk. I guess I'm talking about support groups. Dont get me wrong, venting is GREAT, but I think if we tried to get something going like, what can we do to help the future people from suffering, it might provide a distraction for us, know what I mean? Thanks for responding, I thought it was a good topic, too! leslie |
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Mydragonfly
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I keep thinking about a way to get more awarness about FM. Most people do not understand us and what we go through. There is no one out there really talking about FM. In this group we have color ribons, why dont other people know about the ribon? Sorry if I am getting off track of what you are talking about. Maybe getting the word out in a small way will lead to something bigger. That is something we can give to the future FM community. |
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TeainTN
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I think starting a local support group is a great idea. I wish I could but you right, we are so tired to begin with how would we do it? I think Leslie is starting one in Chattanooga TN. maybe she has some ideas. I didn't you - petey, I think theres someone else named Leslie, I getting myself confussed Post edited by: TeainTN, at: 02/06/2008 14:55 There is a light at the end of the tunnel -- but it's a train about to run over you.  |
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truckin_angel
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I have been thinking about this to and my idea is to send email to tv shows like Dr. Phil or Oprah or Maury asking them to have a show talking about fibro but i am afraid they would ask me to be on the show and i am to shy for that...lol I know the town i live in doesnt have any support groups for fibro but im not sure if i could even start one. Another idea is to call our local news channel and have them do a segment on fibromyalgia, the affects on the family, how it affects people that have it ,etc. Alicia |
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Mydragonfly
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how funny, I was watching Oprah today thinking the same thing. I also did not want the chance that she would then want me on the show. I think that for my small part, I am going to put a like on my email to a good FM site. Something that is educational for others. Dragonfly in Fl. |
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ruby0131
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I just wanted to say I think these are all wonderful ideas and although I find myself in the same boat as you girls,tired, sad, in pain , I too wish there was something I could do to create a better, bigger understanding about what we go through, just on an average day to try and function, let alone on a bad day or when we're sick in other ways or have outside trauma! It's rough! Kudos to all of us for wanting to do more even when we can't. Hugs to all, Ruby |
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sweetheartsuzee
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I'm not too shy to go on Oprah!  Might make a fool out of myself, but I'm not shy! I mean, it's a WONDERFUL idea. I am soo glad you started this thread. If anyone has any more ideas...put em' up here! I think it's time to do something...to speak up for ourselves and let us be known. Yes...why isn't there a ribbon that says "Fibromyalgia Awareness" on it??!! There SHOULD be! And, there should be National Fibromyalgia Week as well...or day...or month...I don't care...just SOMETHING!!! I think that we should all REALLY think HARD on this topic!! Really, I do! Even if we have ideas that we know we can't personally achieve...maybe someone else on here can. Or, maybe somebody knows someone who can... LET'S MAKE A DIFFERENCE!!!  ~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!! |
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Mydragonfly
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There is a national Fibrolmyalgia day. It was may,th. I have known about that for years, but I never hear anyone talk about it. We need to do any little thing to get the word out. I am sure that we can make bowes for out friends and family, let them wear them. Just a bunch of thoughts that came to me at once. I had to write it all down before I forgot what I was thinking. Dragonfly in Fl. Post edited by: Mydragonfly, at: 02/06/2008 19:03 |
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