Fibromyalgia Support Group

I am really having a hard time right now. I seem to be very tired and hurting very bad. My joints are hurting especially bad along with my back and knees and in the fingers. I am so tired, I am getting a head ache each day. I had been doing better but it seems for the last 2 weeks, it has been the pits. My mood has been so bad, my house has been like a time bomb waiting to blow up each day.

I really don't want to talk to friends right now, I really don't feel like it. When the phone rings, I don't answer it but then I feel bad because I don't want them to think I am ignoring them, I just don't feel like talking because it takes so much to get through the day, I can't waste extra energy talking to a friend when my family really needs me.

I can't seem to find a day when there is nothing I need to do, I have to get up and stay busy every day. Today, my husband kept the kids away and I slept until 3:30, it was still not enough sleep, I am still sitting here in a bad mood, hurting, yawning and sore from running to the store to pick up a few things and taking one of my kids to pick up some jeans. They get upset if my "tones" are harsh, they really don't understand that I am not mad or upset at them, I just am tired and hurting.

I don't like feeling like this and I hope it is one of those things that will pass soon. In the mean time, I will have to wait it out and pray that everyone will understand.

Bc, I'm sorry you're feeling so bad. I understand what you're going through. I was feeling the same way last week. I intentionally isolated myself from people for fear that I would blow up and snap at them for no reason. It get's so overwhelming being in pain and the only thing you want to do is lay down, rest and pray for the pain to stop but you just can't because there is always something that needs to be done. I wish I had some words of advice to offer you to make you feel better, but sadly I don't know the answer myself. But believe me I am praying that your mood get's better and your pain diminishes. I'm sure your family understands what you're going through, it's just hard for them to see you in pain and they feel helpless because they don't know what to do. Even if you don't feel like talking to anyone come here and vent. It helps to get your thoughts out, and I'm sure you already know no matter what you say here everyone will understand. Try to smile we're here with you.

Bc, I'm so sorry that you are feeling so bad and hurting more. I too have had more pain the last few weeks, and when I hurt, I don't want to talk on the phone either (often don't answer the phone either). Sometimes I'm hurting too bad to talk; at other times I just don't have the energy. At least all my children are grown and left home, so I really only have myself to take care of. My husband is also here to take care of me, when he's not working. I'm not sure how you keep up the energy to do what you are doing. Just hang in there and take it one day at a time, although I sometimes have to break that down to one hour at a time. I hope this will pass for you soon.

You really did have a crazy couple of weeks with sick kids and your hubby gone. Could it be that now that he's home your body knows you can back off but your mind doesn't want to? You had so many crises so close together hon. If it were me I would try to make it ME time. Stay in bed, watch funny movies, read a good book, let hubby do the things for a while. If something goes undone for a while it won't be that big a deal. See if he'll help you out hon. You need to give your body and mind a break. I hope you feel better soon...HUGS

bc, I think you'd be hard pressed to find someone here that CAN'T relate to that. Well, except for the kid thing. Thankfully, mine is grown and gone.

I really don't know how you fm'ers with kids do it! I cannot imagine having this and trying to raise my kids. I take my hat off to all of you every day!

I can relate to all of what was said. I too stay away from peole and don't answer the phone. Someimes it is all too much. It seems as though my life revolves around pain and medication and of course worry about how the pain is effecting my family and not being able to afford my medications. My husband encourages me to talk to my friends and family on the phone. Sometimes I just like to sleep and be left alone. This crappy invasion on my life has changed me from a bright outgoing person to one that hides from the outside.

The thing that keeps me going is my grandson. He is almost 17 months old. He loves me the way I am, because that is the only way he has ever known me. My kids are resentful that I am sick and no longer work. I used to be fun and now I can't. As a matter of fact my daughter isn't even talking to me right now because we had a fight over her telling me I didn't take care of her brother and sister the way I should. I haven't seen my grandson for 5 days.

I am with yall. I am at my witts end. Besides my previous laundry list of painful medical conditions things have gotten worse. I was in a head on motor vehical accident in Feb.19th. since I am on medicare medicaide I have not gotten proper medical treatment. only patched up till now.well it is to the point were i was hospitalised finally last week well needless to say i go for surgery tomarrow morning to stop internal bleeding that was caused on the 19th. yes thats right they have made me suffer all this time.just patch me up with morphine. Also come to find out that even tho they did ct's of my abdomen they didnt tell me of some tumors that are present in my fem organs guess i find out went they take it out n test it if it is cancer on top of ever thing els. so NO I AM NOT SURE WHAT TO DO ANYMORE!!!!!!!!!! is my FIBRO gonna get worse? what is in store for me now?

I am gonna add to this isntead of deleting it,to show you the hell the dr has put me thru. I found out today that the Dr. misdx'd me the gyn told me there is nothin wrong with female organs an no reason for surgery. no rupter cyst i have swelling because of bruised/truma to internal organs. NO CANCER :-D so that is the good in my day.

Post edited by: KAT4, at: 03/09/2009 13:29

bc1028,

as already said here we all can realate,everymorning I wake up and think today is going to be a good day,then I move and nope today is going to be like everyother day,then I get angry deciding today I wont let the pain get me so I start doing my much needed list of things undone then low and behold the pain gets to great and I give up,then I feel useless and the kids want this or that,yesterday my daughter who Im trying to encourage to get outside and get in shape wants me to come out and play volleyball(not a real game)but bad enough I way the options do I do this and pay for it,since my arm is out and my neck plus my back and leg then of course I have to feed them(I hate week ends) by the time Im on the couch ready just to shut my mind down and sleep the phone rings ahh no I dont want to talk,does nobody get it in my family....

KAT4: bless your heart what can we do for you?those stupid doctors can you say law suit? when are you going for surgary and who can tell us how you are?

when will you have the results about the tumors?

gee's girl if it wasn't for bad luck you would not have any at all...

you are in my prayers Im so sorry your going through this please have someone let us know how your doing....

bc~

I'm sorry you're having such a hard time babydoll. I am so glad that we have eachother and this forum because we all know how you feel. Just when you think you're caught up on the house or even a part of it, your body shuts down for 3 days and when you are feeling better, you get up and have to start all over again. I just faced that this morning and just don't want to be here anymore. My children are 9 and 12 and if it weren't for them I would have said good bye to society long ago. I hate our lives and the fibromotions that we deal with on a daily basis. WE HAVE NOTHING TO GIVE anymore. You are not alone sweetie. You have all of us and we understand. Do what you need to do to get through the day and tend to your family. This is just a slump and you will feel better soon.

Sending you tons of air hugs!

Im so sorry you're feeling so bad at the moment, i know how you feel (infact we all do ) It does pass but unfortunatly not for long, i'm like it for a few days every couple of weeks. Its a nightmare & it doesnt matter how many times you explain it to people they still get the hump with you when you dont speak to them for a while. Its so frustrating at times. The only thing you can do is cope as best you can & remember that we're all here for each other. The greatest thing about this place is you havent got to explain yourself like you do in the real world {{{hugs}}}