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02/02/2008 12:06
tessarenae
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Especially children. I have one that is 10, Kaela and the other is 5, Tessa. Tessa isn't going to understand because of her age. Kaela is the tough one. She gets a general understanding then thinks she knows it all. Then you can't get a word in edge-wise cause you don't know anything. Imagine what puberty is going to be like with this one. My hubby seems to be adjusting okay. Accept for initmacy. He'll hug me, but won't touch me much other wise. We haven't talked about how to better this situation. I think he just waits for my better days and takes full advantage of them.
Harley
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02/02/2008 12:42
Terri430
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It can be there hardest thing in the world to get your children to understand. I really don't think my girls understand what I am going through and they are older. I think they feel if they don't acknowledge it or talk about it, then everything is ok. I know is scares them. Don't get me wrong-they are not disrespectful to me at all. They will try to divert my attention to something else when I am miserable. I know they think they are helping. Your husband probably is afraid of hurting you. Sometimes men do not know what to do when their wives are in pain. Maybe if the two of you discussed what you are feeling, things will improve.

He sounds like he would be understanding.

Terri

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02/02/2008 13:30
Stephany

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My husband usually understands. But last night after I had been on the computer for awhile I went out to watch TV with him. I started moaning and he told me to go back to the computer because I hadn't been moaning then. He was being rather sarcastic. Oh, well. Being on the computer distracts me I guess, and I don't notice the pain quite so much. I thought he understood more, but I wonder if he thinks I'm just being lazy and acting being disable half the time. I must admit he doesn't act this way when I'm sobbing, but I try not to cry. It just makes my eyes swell and my head hurt. Besides I try to keep my spirits up cause who wants to live with a whiny spouse day in and day out.
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02/02/2008 17:27
ilovepetey1
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Thats what I'm having a hard time with. I listen to myself whine day in and day out. If I don't whine, my husband says, gee, I didn.t think you were in pain cause I didn't hear you whining. It must be very hard to live with someone crying in pain all the time, yet equally hard when your the one in pain. What is the answer? How many spouses will be willing to live with this? I guess it is the true test of FOR BETTER OR WORSE.

leslie

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02/03/2008 10:03
truckin_angel
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I am having the same problem except for its my hubby and my Pastor. You would think a Pastor would be able to understand but mine doesnt. I just cant walk away from the church because my hubby and the Pastor are very good friends and also i promised my grandfather to not let the doors close again on the church. Last night we had a gospel sing at church and i was suppose to making some phone calls for him this past week but with school and the kids and then hubby was home a few nights so it was a hectic week, so anyway i was telling him all this and he reached in his pocket and pulled out a quarter and handed it to me. I said oh i have a cell phone and he said thats not what i mean, so i took it as here is a quarter call someone who cares. I was very offended by it so i said hey walk a day in my shoes and walked away. I just wasnt sure how to handle it and im still not sure.

Hugs, Alicia

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02/03/2008 10:13
Terri430
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Alicia,

I would be so offended too if my pastor or anybody did that. There is no excuse for a pastor to be that way. If anything he should be the one who is compassionate! It's hard enough to struggle through our pain everyday. We don't need to have inconsiderate people to add to it! I am legally seperated from my husband, he didn't understand back then and he still does not understand. I didn't need the added stress in my life. Well, at this support group we all understand. That's what we are here for. We'll be here for you to talk to.

Terri

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02/03/2008 10:37
singingangel
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That was so not Christian like. I am sorry your pastor did that to you. He is to treat you like Christ would. Terri is right we are here for you. We understand your pain, fatigue, and even your fibro fog. We are glad to have you in our fibro site. hugs
I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
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02/03/2008 11:56
soopergirl3737
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Oh Angel, hearing that a pastor would do that just makes me want to come over and give him a piece of my mind! I'm sorry people can be so mean, expecially people who are supposedly men of God. Jesus surely wouldn't do that! i dido what the others said that we will be here for you. I've had chuch leader treat me that way before too, and it just makes you feel aweful!

I wonder if you can go to a different congregation. I dont think you should have to endure being treated like that, but i think it is important to stay as active as you can in your religion and stay close to God. If you need anything, i'm here!

Lots of love, sooper

a day without laughter is a day wasted.
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02/03/2008 18:40
truckin_angel
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Thank you guys so much. My hubby and our Pastor are very good friends,they worked together for awhile before he opened our church back up. Our church is the church i went to when i grew up and me and my hubby are the ones that are kind of "in charge" of the church. (its a long story how that happened). It would be hard for me to go somewhere else because of the history.

I just wanted to say thank you for the support, i really need friends who understands. I cant always make it in the forum because the way my classes are but i will be here as much as i can.

Hugs, Alicia

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02/03/2008 21:50
soopergirl3737
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Alicia, Sorry about your situation! It is so frustrating when people wont even make the effort to try to understand what you are going through. I'm glad you have us to talk to! I will keep you in my prayers and say an extra special prayer for you tonight! Remember that God loves you and he is so proud of you. Much love and gentle hugs!

soopergirl

a day without laughter is a day wasted.
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