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FMS ForumsGeneral & Support10 Things to STOP doing to yourself with Fibro
07/03/2012 08:13 AM
Clarita
Clarita  
Posts: 10951
VIP Member

10 Things to STOP Doing to Yourself With Fibromyalgia & Chronic Fatigue Syndrome ~ written by Adrienne Delwoo

When you have a chronic illness like fibromyalgia and chronic fatigue syndrome, you've got enough working against you - you don't need to make things worse for yourself!

It's hard not to, because by society's definition, something (other than illness) is "wrong" with anyone who isn't go, go, go, full speed ahead, all the time. We're expected to work long hours at stressful jobs, be amazing parents, have a perfectly clean house and keep up with the Joneses. If you can't, you must be horribly flawed!

Getting out of that mindset is difficult, but it's something that can really benefit us and help us improve. It takes work, though.

The first step is recognizing the things you do in pursuit of this idealized picture of who you're "supposed" to be. Here are 10 damaging things to watch out for:

1.Overdoing it. Pacing is essential for us - we'll only get worse if we do more than our bodies can handle.

2.Criticizing yourself. You know better than anyone else that you really are sick, so give yourself a break already! When you catch yourself, try replacing the critical message with something like, "I'm doing the best I can and that's all I can do." (It sounds corny, but it works.)

3.Blaming yourself. It's not like you asked for a chronic, debilitating illness to come along and knock you right out of your life. No matter what some people may say, your illness is not your fault!

4.Believing other peoples' negative opinions. It's always going to hurt when someone says you're "lazy" or "crazy" or "worthless," but you can't afford to believe them.

Someone who keeps going, the best they can, through adversity is stronger and more capable than most. That's what you need to remember.

5.Having unrealistic positive expectations. We tend to put all of our hope and faith in whatever treatment we're trying, and all that does is set us up for a major disappointment when we're not suddenly cured. Approach treatments with the attitude that any improvement is a success, and remember that we generally need to use multiple treatments to truly make progress.

6.Having unrealistic negative expectations. On the flip side of the coin, trying treatment after treatment without success can make you feel like nothing's going to help at all, ever. That can prevent you from trying new treatments that might work, and it can also cause a reverse-placebo effect - it won't work because you expect it not to.

7.Putting yourself last. A lot of us are willing to put all our energy into the people around us, our jobs, our responsibilities ... only to have nothing left for ourselves. It doesn't work. If you don't take care of yourself first, you'll have less and less to give until there's nothing left - because you'll keep getting sicker. Taking care of yourself is survival, not selfishness.

8.Giving up too soon. When you try a new treatment or lifestyle change, it can take time for the effect to be felt. If you give up too soon, you can really miss out on long-term benefits. Give your body time to adjust to the change.

9.Letting stress overwhelm your life. Our lives are full of stressors, and being sick only adds to them. The problem is, stress just makes our symptoms worse. Find ways to reduce or manage your stress so it doesn't keep driving you into the ground.

10.Asking why. We all want to know why we're sick. Is it genetics? Your diet? Vaccines? Pesticides? Infection? Some sort of punishment? Why did it strike you and not the millions of other people like you? This line of questioning can lead to a downward spiral of self-blame, guilt feelings and increased stress. Instead of "why," we need to ask, "what's going on in my body?" That's the question that can uncover the causes of symptom clusters and lead to treatments.

* This article is particularly good for someone newly diagnosed with Fibromyalgia.

Which of these do you struggle with? What ones have you been able to stop, and how'd you do it?

---------------------------------------------------

Shared the above article over on Fibro Challenges Sg originally!

Hope it will be helpful to many of you here, too!

Sending super gentle soothing fibromite hugs to you all, love Clarita Smile

Silly

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07/03/2012 12:00 PM  Top
Adewyn
Adewyn  
Posts: 5027
Group Leader

yep... another good article....with i had this 4 years ago lol.. learned all those... and still have to go back to a couple LOL like over doing and too postive of an outlook lol or giving up too soon.. i did that a couple of times... now i just push thru.. it hurt anyways so what the hell Smile thanks again clarita!

07/03/2012 02:51 PM  Top
oroman
oroman  
Posts: 1539
Senior Member

Good to have this around as a reminder for myself and maybe others who have read this a while ago. Thanks Clarita!!!

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07/03/2012 04:08 PM  Top
Karma78
 
Posts: 106
Member

Thank you for sharing. ALl things I really need to remind myself. I think I will print it and post it somewhere. Maybe my hubby will read it and it might enlighten him, or maybe he wll have more empathy and understanding!
Momma to 4 amazing boys, wife, daughter, sister, friend and Christian :) I try to see the positive in most things, even though at times thats not easy!

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So, what do YOU watch?
New to fibro , new to group! :)

07/03/2012 04:40 PM  Top
MoiraWolf
MoiraWolf  
Posts: 3410
Senior Member

Karma... The Bathroom. Always put stuff you really want the family (especially spouses) to read in the bathroom. And take any other reading material out. That why, unless they just want to sit there and stare at the wall... they'll read it! Smile
I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.

Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week

Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder

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07/03/2012 05:32 PM  Top
Dodson
 
Posts: 386
Member

Why didn't I think of that before? Excellent idea.
My postings are based purely on personal and professional experience. I'm no expert or M.D., and always recommend a physicians opinion and treatment plan. I don't practice medicine, law or ethics. I'm just a nurse hoping to give as much as I take. Peace.

07/03/2012 05:38 PM  Top
Karma78
 
Posts: 106
Member

Moira That is GENIUS! Thank you!! It literally will be the only way hubby may take the time to read it! Thank you! Wink
Momma to 4 amazing boys, wife, daughter, sister, friend and Christian :) I try to see the positive in most things, even though at times thats not easy!

Previous discussions I participated in:
So, what do YOU watch?
New to fibro , new to group! :)

07/04/2012 12:56 AM  Top
Clarita
Clarita  
Posts: 10951
VIP Member

Thanks guys Smile! Moira, love you plus love all your great ideas that you share with us all plus am deeply honoured to be your friend!! Moira is a genius, for sure! Karma78- very warm welcome to you here plus love your name!! Super gentle hugs to you all- all your fabulous fibromite selves, love Clarita Smile batgirl

07/04/2012 07:03 AM  Top
jersey1
 
Posts: 7
New Member

Clarita. I love The 10 Things Someone with Fibro Should Never Do. This gave me a lift. I'm going to write them down and read them everyday.

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07/04/2012 09:07 AM  Top
armdsol
Posts: 2
New Member

thank you for posting this.It's funny how we all have that in common, putting other people first. I am a doctor myself and have helped and treated many patinets dealing with FM,some even succesfully!, funny that it took me 3 years to recognize and a friend to diagnose me. I was in total denial. Even when i treated my patients I never realized how much it could hurt and dissable you. Im sorry for this. So now im here where others come to share, im grateful to be here as a patient and friend.

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anyone else have red,
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