Fibromyalgia Support Group

well, it appears the cause of my leg pain may be some pinched nerves and/or over water consumption. i see a chiro now for the back. he is really nice, he took x rays, and said it was fine but i might still have some pinched nerves still, it doesnt show up on xrays.

i explained my sytmpoms of tingling, pain down legs, and cramping , and back pain, and he said this is what he thinks it may be. so , he said he would treat me for a month or so, if the treatment doesnt work he wants an MRI. he does help me, but the thing is the back goes right out again. i heard with fibro our muscles are so tight, it throws our back out of wack. he is trying to help me so much, he is, im doing physical therapy also, will be,but im also starting a great treatment for fibro, that i have been waiting for so long. i am very excited for that,but it might hinder the back treatments.i wont have time for the back treatments! my plate is so full! gosh and i need this back to be worked on. i want the other treatment to work, but my back needs to be ok for that.

i dont know why my back keeps going out, it went out again after he fixed my last night. i dont know what i am doing wrong. i do twist my body in my sleep, sometimes, and our bed is very very bad. i fear we might need a new one but we cant afford one. i dont know what i am doing wrong, and yesterday i was stressed ,n i didnt get a good work up on my back. normally he does well, but yesterday i was too stressed.

i dont know what i am doing wrong, and i dont know what to do. the pain is soooooooooooooooooooooooooooooo bad. it kills me. it really is nuts. i cant take meds unfortualtely. maybe once and a while a painkiller but not all the time.

i dont know what to do. im so so so sad, im having trouble walking, i dont know what i can do for this and i dont have time to get anything done for this becaue im going for new treatments for fibro, that will take up a lot of time. i just dont know what i am doing wrong, i do sit alot, my shoes maybe not good, i just dont know.

i know my fiancee is being very very very mean to me, we fight alot, i really do want to move, but i cant at all financially and no one to help me, so when i get stressed, my back goes out.

i just feel so low, so sad, i dont know what can be done for this. is there help for pinched nerves? will it be ok one day? i just wish i could keep myself in alignment.... for once....the pain is just sooo bad.

i just dont know what to do....

love

maureen

Ok, your boyfriend! Why can't you move out? Do you have family or friends you can stay with? Stress makes fibro pain SO very much worse. If it's that bad, you need to get out ASAP. Is there physical abuse? You can try a battered women's shelter, or at least talk to them, they may have options. But if the abuse is only verbal/emotional, they may still take you before it escalates to physical. Family, friends, churches, there's got to be someplace you can go! (Where are you located? Some of us might have some ideas for your location.)

As for the back, yes it could be the mattress. Bad mattresses are one of the banes of our existance. Many of us are very limited on what we can sleep on. Myself, so far it's been air mattresses only (hubs and I use two twin mattresses on top of a regular King frame and box springs to give him the firmness he wants and me the softness I want). Yes, tight muscles can and do pull our back out of whack. But I'd be more suspicious of the mattress since you said it's so bad.

What treatment for Fibro are you about to receive? I haven't heard of one that takes as much time as you seem to think this one's going to take. I'm confused?

this is nuts,

and yes the matress sucks........... ughhh. i dont know how to tell my boyfreind about it. it hurts when i WAKE UP. so yeah i think it may be the matress. is it hard for us with fibro to find a good matress???? hmmmmmmmmmmmmm. interesting..........

u know, my boyfreind was like this last year, so bad, it is amazing how he turned nice then totally sour. he was fighting with me all weekend. for nothing really!!!!!!!!!!

it sucks.......... hell make me think he has changed then goes back. idk. what to think, im trying ot convince one of my freinds to move out here... i dont know.......... i cant even think, u know?

yeah my back is killing me today n i just got it worked on, u know if i am going to be upset all the time it is always going to go out, and i was too upset to get my back worked on, i wasnt relaxed it didnt work n noramlly he does a good job........... i wish i knew what to fix so i could get my back ok............

oh im starting oxygen treatments, they sound really good!!! but the thing is i need my back n legs in tackt to do it, arghhhhhhhhhhhh! dang it. ill have to do chiro twice a week also then.

thanks honey,

love

maureen

It's very hard when you feel at the mercy of circumstances, I know. Do you mind if I asked if you were evr able to work and build up your contributions to someday try to collect disability from the Social Security dept.?

One thing I found out many many years later is that mine guy had something called agitated depression. I'm not saying this is the problem, just sharing how it went. He would be so nice and apologetic about the times when he was mean, but it seemed like he couldn't help himself when he had his bad spells, and in a way, he couldn't. A new medicine helped a lot, but it was always a trial.

If you think it's the mattress, it may be. Then things get exponentially more troublesome for your mood state, because you can't get enough good sleep. I'll be hoping you two can have some nice long periods of peace, and I understand the emotions you're going through. it is very difficult to get through. Hang in there. Bit by bit one thing and then another will get resloved. The universe just needs to cooperate, doesn't it.

I would suggest talking to a domestic violence advocate, or shelter. Just because he is not physiclly hurting you, does not mean that how he is treating you is ok. The emotional torment he is putting you through is making your fibro worse. No wonder the chiro treatments do not last. If you come home after a treatment to an angry boyfriend, that just causes you more tention and all of the treatment you had goes right out the window. Beleive me, I have been through years of emotional abuse from my husband. Even just walking in the door would cause my stress level to go so high, it would send my pain levels through the roof , and I would be in tears all night! I finally have gotten the courage to tell him I want a divorce , nd he needs to move out. Since then, he has not raised his voice to me once , or argued with me about anything. That does not make any of what he did o.k., and I am still serving him with divorce papers, but that has helped keep my pain at a lower level ( at least I am not crying every night )

MoiraWolf's suggestion of an air mattress is a great one. They are affordable ( at least compares to a regular mattress ) and you can adjust the firmness to what feels good to you. If you want, you can also get a 2" memory foam to put on top of it. Then it is kinda like a sleep# bed without the huge cost.

You deserve much better, I hope you can talk to someone about the way your boyfriend is treating you; it's not ok. If you ever need to vent, feel free to pm me.

Hugs,

Kyra

That was all long long ago...before I had fibro so that just makes it that much harder for you. There are places out there to help....start looking! Churches are a great place to start as they can guide you to different agencies that deal with your situation. And if you can't work, then start your social security disability claim ASAP cuz it takes a long time to get approved.

You may be in a bad place now but we support you 100%. You will get some special prayers from me tonight.

Very gentle hugs to you

yeah im trying ot think of a plan. kkinda coming up short though. sigh............ it is just so crazyyyyyyyy. a month ago he was being so nice n now this. he flip flops a lot... all the time.

thanks so much on the advice and the air matress sounds really good.. ill look into thatg it always happens after i wake up im inm so much pain so yeah i think it is the matress n yeah for sure, also my stressful boyfreind, i think puttingv my bsck out n how could i got adjustrd yesterday when he was yelling at mr the whole time? SO IT DIDNTG WORK. THANKS GUYS

LOVE

MAUREEN

Word of advice on the type of mattress. The absolute cheapest mattress is the twin size one in the camping department of Walmart. Forget the name, it's something like AirTex or Artech. It's about $11.98. I really don't recommend that one. If you look at an air mattress, they come in two basic types. One has ribs that run longwise up and down the mattress. The other has little circular type things all over it. Avoid the lines, get the circles.

The ones with lines, those are little fins inside the air mattress that hold the top to the bottom. But they can easily come loose inside, and make a "pop" kind of noise, and then the top's no longer attached to the bottom along that fin, so you hve this big hump running longwise down the mattress, and it's hard as all heck to sleep on 'em when they get like that. It can also, when it tears loose, make a hole in the top or bottom when it pulls loose and then your mattress will go flat. Get you the air mattress that has the "circles" all up and down it. Those also attach top to bottom, but they don't have as much stress on them at each end, becuase they're circular, and so they don't tear as often. They're a little more expensive. You can get a plain one for about $17, one with a battery operated built in pump for about $29, and an elevated double layer one for about $59. I don't recommend those, you get better support from a just regular size mattress on top of a box spring.

If you're going to get one for you and the boyfriend, on a king bed frame, get 2 twins, so you each don't disturb each other when you roll over or get up. Queen bed or smaller, you have to get a single queen or full mattress. That's not as good, cause if you get it comfortably set for both of you on the bed, then when one's not in bed, it feels flat to the other person still in bed.

We've done this, like I said, for 7 years. We put a couple layers of those "egg crate" mattress pads, and then use a king sized mattress pad to hold the two sides together. Works really well for us. Now, air mattresses aren't made to be slept on every night, only for temporary like camping or company at the holidays or something. So I tend to go thru about 2 mattresses a year. But still, that comes out to $100 or so for both of us for a year, and I can live with that. It's literally the only thing my body can stand to sleep on. If I ever get rich, I'll get a sleep number bed. Until then, this will do.