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FMS ForumsGeneral & SupportSOON TO BE HOMLESS BECAUSE OF FIBRO
06/20/2012 06:33 AM
Remster
 
Posts: 30
Member

Sad Here in the UK, the Govt have changed all the Wefare Benefits and the new rules will mean that I will lose my home in 6 months.

A new welfare Benefit called Employment Support Allowance is forcing very sick people to face unjust interrogation with a lack of properly conducted independent medicals. Some people, of which I am one, will only get ESA for 12 months (I have had it for 6 months already). Then it is taken away and not replaced with anything else so if you don't find a job OR can't work you are left penniless.

Worse than this, the Welfare Benefit that is given to help with housing rental is linked to ESA. No ESA, then no housing help. For me, this means I will be on the streets with my 16 year old daughter by March next year before she even has the chance to finish and graduate from high school.

I don't know what I'm supposed to do and I'm scared. I've been looking at sending my daughter to her grandparents but it's not possible for me to stay there too. V long story and not nice. I can either live on the streets in a doorway begging or rip off my current bank for a good tent and survival equipment in the hope I can learn what is called BUSHCRAFT - living off natures plants and animals.

How is it that in a 21st Century, and supposed civilised society a head of government with a 6 figure salary can justify punishing disabled people and their children.

I know that you all cannot help me find a roof but I just wondered what you all thought of my situation....

Reply

06/20/2012 08:38 AM  Top
Clarita
Clarita
 
Posts: 10831
VIP Member

Remster, Am from the Uk too, am outraged at the way our government are treating disabled individuals in this country, too, yes it is totally outrageous at the way you plus trousands of others are being treated at the moment- like us vulnerable people are being penalised due to the economic situation! Heart feels greatly for you and your daughter! Have you any friends who can help you out close by? Will ask heaven to help you for certain! Feel free to lean on this British batgirl fibromite anytime,okay! Think the vulnerable in society are always targeted when recessions hit in any nation whatever the government- not right or fair yet just the way it seems to work! Heart goes out to you massively+ pray you will not end up on streets or in a tent,truly! Hoping for a miracle for you! warmest wishes, fellow uk fibromite Clarita

06/20/2012 09:25 AM  Top
nembery
nembery
 
Posts: 504
Member

The u.s. is getting there too. I brake down a few times a week because i feel like i should just curl up and die instead of fighting. Theworld makes me sick today. By what grace of god did they end up in their mansions while the rest of us claw by in agony? The world needs a wake up call. I'm so upset right now i cant even put my thoughts out coherently but needless to say i'll be thinking of you
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tylenol w/ codeine

06/24/2012 09:18 AM  Top
Remster
 
Posts: 30
Member

Thank you for your support and sympathy...unfortunately I don't have any freinds left. About 2 years ago, I was hospitalised because of a mental and physical breakdown ...the reumatologist I eventually saw that diagnosed fibro three years later said the breakdown was probably because I over did things back then... any how 2/3 of the 'friends' I had didn't want to know me simply coz I spent a couple of weeks in a psychiatric ward.

The others faded away because they simply didn't understand that I couldn't leave the house anymore being so tired. None of them made any effort to come and see me either ... it's tragic but the people like you I chat to on the forum are the only adult conversation I ever have.

So.no.. I don't have anyone that can lend me a sofa for a while. Most days I too feel like I want to crawl under my duvet and just stop living. BUT I have to keep going for my daughter's sake. You are so kind to send me such feelings when you too are all feeling so unwell.

I might have had a miracle... I don't know. Out of the blue yesterday, a new ESA application form and medical request form turned up in the post. It seems as though I am going to be re processed from the beginning.

I didn't request this form so I don't know how it's come about. My original medical was cancelled because I was told there was enough evidence on my first form and ATOS never spoke to my doctors. This time, I will insist that I am assessed face to face and that my GP includes a report...and I will appeal all the way.

I just hope it all gets sorted out before March next year. Wish me luck. And big hugs to all of you


06/24/2012 09:40 AM  Top
broken
broken
 
Posts: 9268
Group Leader

remster great news, Must be a relif to at least have a starting point again..we will keep you in prayers for a good outcome...

its so sad when we lose people due to an illness the story goes about true friends stick with you,but when you lose the not true friends it is still hard..

keep us in the loop..

we all have alot to give if one gets the help then some of this suffering is worth it..

remeber I am not a doctor I just say what I think

Previous discussions I participated in:
every friggin day
Swelling ....
More than fibro

06/24/2012 03:29 PM  Top
MoiraWolf
MoiraWolf
 
Posts: 3410
Senior Member

Renee, where are you? Canada? I mean, I've never heard of this concierge service. It's confusing to me.

Remster, thank goodness for the restart! At least you're going to be re-evaluated. It's better than a "no" and a slammed door!

We're almost as bad here in the states on disability. It takes, on average, 3 years to get disability. During that time, you cant' work at all, because if you work, you obviously aren't disabled, so you don't need disability. Yet, what are you spposed to live on for the 3 years it takes them to process you? Come on, three YEARS? Better hope you're either married and the spouse can work, or have family or friends to live with during those 3 years!

It sucks. Government is politics... and politics suck!

I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.

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Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder

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06/24/2012 06:27 PM  Top
DanaW
DanaW
 
Posts: 2222
Senior Member

Remster, I am so sorry for all you are going through. I/we all know that being stressed over such serious issues only makes our condition worse. I would let you and your daughter come live with me ... if we can get you over to Arkansas! As so many others, I'm currently fighting for my disability over here but I have a wonderful landlord who understands and would rather have me here than have the place empty. I pay what I can and she accepts it. I will keep you in my prayers that your miracle pans out and they reevaluate you from the beginning. Hopefully it's a circumstance that they will renew yearly but make you do the papers over and over...sounds silly but better then them disbanding the program and putting everyone out on the streets!

My favorite jelly bean is the blue speckled one

I am not a doctor but I play one on TV
Seriously, I am not a medical professional, my posts are not meant to be a susbstitute any medical advice or treatment. Never take chances when it comes to your health!

Previous discussions I participated in:
Thank you everyone
prayers for my Dad

06/24/2012 11:16 PM  Top
Sswelteer

Remster, today someone here in the U.S. Had a post about financial problems, and someone suggested checking in with churches that sometimes have housing. We also have xhurches running food banks, and that's a way to save up some money, too. I know these are tough times all the way around, but are there any charitable groups that direct people to various resources? maybe in the phone book or internet or gov't agency. Any help for people who need help with their electric bills? You may find ways to stretch the money over the next year. For my disability, I have to show I seek medical care, so I'm trying to think of ways to demonstrate to them that you are still disabled, and a bit of money saved can go toward another doctor's appointment.

06/25/2012 11:07 AM  Top
girlfriend
girlfriend
 
Posts: 1630
Senior Member

I have no advice for you but I send you my prayers...
Don't dread the storm, Learn to dance in the rain!

06/26/2012 05:56 AM  Top
Remster
 
Posts: 30
Member

Wow, so many replies and all so kind. I don't known how you all cope in the US with your Welfare and Health System. If we had the same healthcare here in the UK - I wouldn't even be able to afford to seek basic care let alone my Fibro. I wonder as our Goverments are so 'freindly' whether our lot are borrowing ideas from your lot ... maybe someday all of us here will have to have health insurance to see a doctor.

I'm making a list at the moment of some charities that might be able to help me ... best to have it in advance then I might be able to find something. But all the same ... I've also made a list of all the the things I need to have to 'live under canvas just in case too. Will keep you all posted...Might start a new diary.

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