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02/11/2008 14:04
Mydragonfly
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pete's husband started one today. Not sure how to find it again. I am still new here.
The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***
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02/11/2008 15:11
teri hayes
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go to forums and look for spouses of fibromites or something close to that. click on and good luck

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02/11/2008 18:10
Fletch2ya
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Good I am glad I hope all will use the this thread...

Thanks

Craig

Post edited by: Fletch2ya, at: 02/11/2008 20:30

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02/11/2008 18:18
earlfo
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I created one called fibro spouses.
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02/11/2008 18:25
Fletch2ya
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I guess it really does not matter which one is used... as long as we have one page here.........

ONE that spouses will use and not have any problems with others....

One that rhey can speak freely on.... and ask the questions that are needed to help them understand....

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02/11/2008 18:38
earlfo
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I'm sure they will both be used...eventually
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02/11/2008 18:42
Fletch2ya
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Well I really would like to see only one used....So I deleted the other thread...I would really like there to be one and only one place for the spouses to go and find help if they want it..... Yours is just fine...... With one place to go there will be no confussion....
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02/11/2008 20:29
cappymuir
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Yes, I do feel that my other half is mad at me because my body does not want to accept our love play like it use too and our connection to being close and loving has gone downhill too. I say that sexual frustration causes lots of problems especially if you are the one that wants more activity and he is afraid to hurt you and puts a leash on their sexual urges.
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02/14/2008 16:01
rockmygypsysoul
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Hi all! This is actually my very first post here...I was just diagnosed with FM this week, but have been dealing with the symptoms for awhile now.

I definitely experience pain with sex. It isnt unbearable or anything, but it can be extremely uncomfortable. This is something Im glad to have found out is related to FM since the doctors think I have something else as well and are still testing for other things, so any symptoms I can idetify are good.

I would have to say that many of Craig's remarks don't apply to me, although Im sure theyre plenty accurate for many people. I have always had a very, very high sex drive; higher, in fact, than my husbands - at least, before I got FM. My husband has anxiety disorders and that use to pose an issue to our sex life - he couldn't have sex unless he felt emotionally safe and secure, whereas I was a fan of having sex in just about any emotion! (sorry to be so blunt, but my job is actually to talk about sex, so its very natural to me!)

So anyway, we've always had a bit of the stereotypical role-reversal when it comes to sex, at least until I started to develop FM symptoms. My drive itself has lessened somewhat - not really due to the pain itself, but rather just how incredibly tired I am. So actually, we're on a more matching cycle of when we do and when we dont want sex than we ever have been before.

But its still hard sometimes. He particularly likes positions that end up hurting more (cause, duh, its when he's deeper). He's extremely responsive and respectful when I tell him something hurts, but I still feel badly about not being able to give him what he wants.

For me, sex if pretty representative about how I feel about the entire FM situation. I used to be very outgoing, very social, very active and he was the opposite. So we've evened out in a lot of ways. But, especially since we just got married before I was diagnosed, I also feel guilty - like he got stuck with something he didnt know was going to happen. And he's such a trooper and so supportive but I still feel like I've failed him somehow, even though I can't control it. Which is how I feel about our sex life and its limitations. Even though he's perfectly okay with it, I still feel inadequate.

P.S. One position we've found that works *really* well for both of us is if he's sitting up - like on the couch - and I straddle him that way rather than from the top - it's MUCH more confortable for me and he loves it

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02/14/2008 17:37
cappymuir
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Sex is a very important part of our relationships with our partners no matter how little or more. I not only have pain form FM but IC a bladder disease that makes my insides sweell and the whole pelvic region outside too. I just went through a major flare-up and of course my other half was in the mood that night, while I in fetal position and putting an Ice pack over my females to help calm down the pain.
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