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sbryant Posts: 2
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I haven't been able to sleep in a bed for years. I have slept in the couch sitting up or on the recliner but I can't put it all the way back or the pain gets too unbearable.
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Adewyn Posts: 4961
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i sleep better at nap time then sleep time lol.. and the bed feels more comfortabe at nap time then bed time... lol cant figure that one out its the same damn mattress lol |
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broken Posts: 9222
Group Leader
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me to why is that... we all have alot to give if one gets the help then some of this suffering is worth it..
remeber I am not a doctor I just say what I think |
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MoiraWolf Posts: 3410
Senior Member
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It may have something to do with those cortisol levels mentioned in another thread. Daytime they are low, so sleep is easier and nighttime they are high, and so sleep is harder. At least, that's what I think I remember from the old topic. With me, it's also RLS. My leg twitching is less in the morning than at night, so it's easier for me to sleep during the day, than in the evening. Right now, I'm absolutely backwards. I go to bed around dawn, and sleep til mid-afternoon, then am up all night. I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
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faieriemama Posts: 3345
VIP Member
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I know what you mean Mo. I don't sleep well at night either and sleep better in the morning that's even with my Amitryptilene and Topamax. So I don't go to bed until 4:30 or around there and sleep til noon which works out alright with my hubby who has the bed all to himself. I would love to try the air mattress idea, and will do so as soon as I have the money to buy a couple, one for me and one for my hubby. Hugz and Love I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.
Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das |
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hatbox121 Posts: 10493
Group Leader
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Sometimes you have to do whatever works! I'm having a hard time picturing exactly how you do your legs. Not sure if they are straight up or if you are just bending them at the knee. Anyway, if it's the latter and you want to try to sleep in your bed you can get those blocks to place under you and sleep against the wall. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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kdk Posts: 34
New Member
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Hi guys. I know this sounds crazy but I went to doc and got med for RLS. I couldn't take it. It made me wanna throw up and theres nothing I hate more than that. ANYWAY. I thought I gotta do something. I googled RLS and I read you can put a bar of soap (except dial or dove) in your bed that it will help with RLS. I thought I got nothing else. So, yea I tried it and it completely stopped my RLS. Crazy I know but at least try it. It stopped my husbands night time leg cramps too. When I change the bed he always asks did I put the soap under the sheet. lol kdk--ONE DAY AT A TIME |
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hatbox121 Posts: 10493
Group Leader
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We've had that on here several times before. People swear by it. I don't understand how it works myself but hey if it works and it isn't hurting you then I'm all for it! Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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MoiraWolf Posts: 3410
Senior Member
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I've never heard of that for RLS. The med that made you really sick, was it Mirapex? I started out on Sinemet (generic is carbidopa/levadopa). Worked really well, but I was building a tolerance to it and had to take more and more to get the same effect. So a general practioner put me on Requip. I was allergic to it. Then he put me on Mirapex. Worked good, but I've never thrown up so much in my life! So, when I refused to take it anymore, he tried me on Klonipin. But that's a class 2 narcotic, and I was still driving truck at the time, and it was absolutely against the law for me to take that and drive a commercial vehicle! So, I was switched yet again, this time to Gabapentin, which is what I still take. Tho the new rheumy has reduced the nighttime dose and added a muscle relaxer instead. Working well so far. I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
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