Fibromyalgia Support Group

I am new to this site and I wanted to ask a question. I am in pain constantly and never really have a good day. I have alot of pain in my rear end and knees. My shoulders,arms and other points do not hurt as much. I have constant weakness to the point of when I go down stairs my legs shake. I am going to the Cleveland Clinic on Friday again to give more blood and probably no answers with more pills. I am wondering if anyone else has dailly pain to this extent. To close I would like to add that my left ear has tngled and intchs non stop. If I told this to just anyone they would think I am a hypochondriac but I know what I feel and just want to find out what I have so I can go on with my life. Any information would be helpfull.

leefamily, welcome! I'm so glad you found us.

Personally, I have pain every day. Some days are better, some days are unbearable, but I am never w/o pain.

My rear end recently got in on the act, too, lol! My knees are a recent addition to my pain inventory.

Here's a link to a recent discussion about various symptoms. It is by no means all inclusive.

http://www.mdjunction.com/forums/fibromyalgia-discussions/ general-support/373771-curious-symptoms#373771

Have you been dx'd with FM or is it one of the things on the table?

Please keep us apprised of what's going on with your appointment, and by all means, jump right in to the discussions where ever you'd like.

I've had the rearend pain. Have them check your coccyx (tailbone)

I broke mine when I was young and every once in awhile I won't be able to sit on anything. Since I got older, I've had problems with my knees and going down stairs, Seems they don't want to bend at the right time and they pop.

leefamily5, you are not alone. I live with chronic pain, too. My pain never goes away. I think I've lived with chronic pain since 1998. I've been misdiagnosed until 2006 and I wasn't given any pain meds until then! My pain level has increased over the years and sometimes it becomes unbearable that I cannot even sleep at night. Simple, easy things like watching TV also becomes impossible with severe pain in the left side of my face/jaw (nerve pain/TMJ).

My entire body hurts constantly. For me, the face/jaw/neck/shoulders/arms/hands hurt the most. The pain in my upper body is more severe and intense(like if needles/sharp objects digging in my muscles) while pain in the lower body is dull.

You are not a hypochondriac. Most FM patients are labeled like that because people, even MDs don't understand this illness. I've also been told that I was hypochondriac or neurotic. People who didn't know me before FM thought I was just lazy and trying to get attention! I used to be a very active, driven, happy, and confident person until I got sick.

I've gotten so much better - I used to be bed-ridden several yrs ago. I had to change my diet, life style, and attitude/thoughts to get healthier so I can manage pain better. I had to learn to avoid certain foods (processed foods, artificial chemicals, sugar, etc), slow myself down (do only what my body can handle), and think positively(keeping hope to get better) although this is the hardest thing to do when you are in severe chronic pain! I am still fighting with FM everyday and I think about suicide often but I still keep going. This group has helped me tremendously to keep that hope going. I hope the group helps you, too...

Thank you for your response and it makes me frrl better to have some people out there that know what I feel.

I think most of us could fill a novel with all our symptoms. My legs shake on stairs, and sometimes on level ground. My pain is always there. It moves around a bit, but is usually worse in certain areas. The weakness also is worse at times than others, but it's always there somewhere. You won't be called a hypochondriac around here. You should see some of our lists of problems. I hope you like it here and feel at home.

My chiro really helps with my butt pain and it is usually what Jan said. The tailbone thingy that I can't even say let alone spell.

Post edited by: Iknowpain, at: 02/18/2009 19:51

You know I can't even begin to list my symptoms because I will get determined to finish and I may never stop. No hypochondriac just sick.

Have you found anything that helps other than a hot bath? I have been told that I should try to work out gradually and then work up to dailly as much as I can take is this realistic? I am a father of three working 55 hours a week how could I find the energy.

My doctor has said I have fibro but he feels that their is something else he can not figure out. Thanks for your support it gets harder each day.