|
|
|
|
hatbox121 Posts: 10502
Group Leader
|
Well I'm done. I'm in the middle of changing cycles do my nights alternate now. I did get a couple rem cycles and a few deep sleeps but not normal. I had numerous breath holding periods but no major apnea. I did have some RLS episodes but I didn't think last night a bad leg night. They were calm before bed. I'm on a med for the RLS as needed and doing sleep diaries. Apparently my test was decent(though not normal) yet I'm still very sleepy. Oh the fun. My med is a Parkinson's med. my official dx is intermittent restless leg syndrome. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.
|
|
Reply |
|
|
|
broken Posts: 9265
Group Leader
|
you know when I had my sleep study done,I kind of thought it was crap,I know I had rls during the night...but I was told nothing... But I woke up a few times becuase of it,and the use of sleeping pill always threw me.. so they are saying the apneia is not enough to worry about? we all have alot to give if one gets the help then some of this suffering is worth it..
remeber I am not a doctor I just say what I think |
|
|
|
|
|
hatbox121 Posts: 10502
Group Leader
|
The apnea is minor. I'm strange in that it's different every night. So who knows what tonight will bring. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
|
|
|
|
|
MoiraWolf Posts: 3410
Senior Member
|
What parkison's med did they put you on? Sinemet (generic is carbidopa/levadopa)? I have severe RLS. I even get the crawly/crampy feeling in the middle of the day. It never really goes away, tho it's low enough I can tolerate it most days. Would never, EVER sleep if I had to do without the leg meds. I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
|
|
|
|
|
hatbox121 Posts: 10502
Group Leader
|
Yep. That's the med. haven't tried it obviously. I'm supposed to take it on my bad leg nights. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
|
|
|
|
|
Kerryjess Posts: 59
Member
|
They gave me Ropinirole for the RLS which I think is an anti- epileptic drug. I didn't like the side effects so gradually came off it last year. My RLS seems to have quietened down a good bit (hope I don't speak too soon, lol!) I don't get the crawly sensations during the day now, but it definitely interrupts my sleep. Who knows- maybe the meds did more good than I thought! Hope you get some relief from this horrible thing. Xo |
|
|
|
|
|
hatbox121 Posts: 10502
Group Leader
|
I just hate that I had an in between night while there. I'm one extreme or the other with the transition being a toss up and smash up of the two. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
|
|
|
|
|
mabri Posts: 4710
Group Leader
|
Hatbox, That's the problem with the sleep studies. I had one about 2 years ago, and although i was having terrible horrible RLS, no problems on the night I went for the study..They need to watch you for more than one night I believe...Hope they can figure out something for you. Ropinole is what they give to my step mom for her Parkinson's. It doesn't help her though..they are gonna try something else. Just a thought...I had the worst RLS for many years, many nights I would cry because I couldn't get to sleep because of it. When all this fun first started I was anemic. My dr told me to take iron pills cuz that was one of the causes of RLS, low iron. I still have it at times, but it is nowhere near what it was before...Just thought I would share, and hope maybe it will help someone. HUGS Please do not take anything I say as medical advice. I am not a doctor.
**Becky** |
|
|
|
|
|
MoiraWolf Posts: 3410
Senior Member
|
Ropinole is generic for Requip. Hubbs takes that one, but I'm allergic. Took it once and wound up in the hospital having some shots, my airway started to close off! But it works well for him. I originally took Sinemet too. I kept having to increase the dosage gradually over several years as my body got used to it, it's called augmentation, where it takes more and more to have the same effect. Then I tried Requip, then was put in Mirapex. I took it several months, but I've never in my life thrown up more than when I took that stuff. Horrible, horrible stuff. Then I was put on Klonipin, but I was still driving trucks at the time and Klonipin is a controlled substance and illegal for a truck driver to use. So I was put on Gabapentin, which is what I'm still taking. Although the Rheumy cut down my bedtime does and added Flexiril. The sleep tech Wednesday said I had some leg movement but not a lot. Which my original study showed me having arousals every 3.5 minutes, or over 250 times a night. Not much rest that way! I have severe RLS. Without meds to calm my legs, I literally would never, ever fall asleep. I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
|
|
|
|
|
Bananers Posts: 301
Member
|
Mabri I agree with you about the sleep study. The 9 days before my sleep study were particularly bad in the insomnia category...so the night that I had the sleep study done, I actually slept better than I normally do.  Current Dx: Chronic Thyroiditis (Hashimoto's)/Hypothyroid; Fibromyalgia; Bipolar II; Depression.
Meds: Synthroid 137 mcg
Cytomel 5 mcg
Gabapentin 600mg 3xday (1800 mg total)
Lithium 1500 mg
Depakote 1000 mg
Wellbutrin 450 mg
Flexeril 10 mg 2/day as needed
Vitamin D 2000iu |
|
Reply |
|
