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christa33 Posts: 148
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does that make me bad for being jealous of healthy people? i try not to be but it is hard. do u think this is a normal thing people with illnesses go through? or does it make me bad or something? like i often wonder why these things happen to good people who deserve good things, others get that all the time, and others end up with lupus or cancer or MS, etc.... do you know what i mean? i think a lot of times also i feel ALONE in my illness , even when i feel better, like no one gets it . i find it sooo hard to talk to healthy people cuz they could never imagine what it is like. so i feel like an alien half the time in this other world. alone and isolated. like no one can relate. i wish i didnt feel like that but it is so hard when everyone around me is soooooooooo healthy, glowing, energetic, vibrant, can run and walk and such, and i just wonder why others, not just me, get the short end of the stick. ive been thinking on this quesiton for a year now, and i have thought of some things but wondering if others had any insights. since ive always been into phlisophy, lol i was just curious into the WHYS of ilness and WHY some get it and some dont, etc...i know this might sound dumb, lol but it has been on my mind for so long. thanks! Love Maureen |
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Adewyn Posts: 4975
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on occassion....when i was at my worst i would wonder things like that.... now that i have fought my way back.. there are still things i cant do just yet... but i am not giving up hope...i put the energy into what can i do today... and if i do look at person and think they are lucky they can do that.. i find out how i can make myself stronger to do that.... I Will Not ever let me self EVER get back to where i can barely move. NEVER... i will sit in the ER till they do something for me but i will never ever ever go back to where I was 4 years ago . I woud have be in a coma or shoot down before i end up barely walking.. i thank the gods and the goddess for helping me fight my way back and i am here to stay.... So.. yeah i did once... i wont again.. i will only strive for better  hugs and love. let me know if there is anything i can do for you ... |
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LilyRose4 Posts: 261
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You are not alone in feeling this way. I have a hard time being around "normal" healthy people as well, especially listing to them complain about "regular" problems. I think, what I wouldn't give just to go back to dealing with regular life issues without having to do it in constant physical pain all the time and with the emotional aspects as well. It has made me a lot more aware of how insensitive I was in the past. I am working through this with too and trying to have more patience with people and be grateful/adjust...it's not easy.  |
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livewithhope Posts: 398
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Wow! Have you been peeking inside my brain? That's spooky, b/c I feel that way so much of the time. I don't know what the answer is, though, but you're not alone. |
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christa33 Posts: 148
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thanks guys, lol ahhahahahahaha adewyn, yeah, i know how u feel, i couldnt walk just a couple months ago, now i can, i feel the same way , im going to fight n not lost hope, i know,i know i can, i have before!!! ok my walking is weak but i need help with it. and with cfs it is awful. we have to be our own docs, docs dont knwo crap!!!!! that is what i beleive. so be ur won doc and trial and error see what works!!!!! i mean , it takes time to get better but i , i have hope now. im so much better then before, like u , i couldnt move n i did it myself! still have the bad days but hey. thanks lily rose, u r so pretty, yes i agree, i totally agree. it is so hard i know! i do try though. to be grateful for what i do have. but hard to relate though. live with hope, apparently , i HAVE been peeking into ur brain!!!!!!!!!!!!!!!!!!!!!!! ahahahahahhaa see? i guess im not alone i felt so bad fror this. |
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Raoul  Posts: 3327
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deleted Post edited by: Raoul, at: 05/11/2012 07:15 AM I am not a doctor - and my advice is purely from my personal experience and my opinion!! |
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MoiraWolf Posts: 3410
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I think having fibro is, for me anyway, sort of a "course correction." I wasn't doing with my life what I was supposed to, or the Universe had another plan for me. I've been fighting Fibro my whole adult life. I barely remember what it was to be "normal." I was only diagnosed this year, but I believe I've had it a lot longer. It's the fatigue that gets me the most. My pain isn't as bad as some of you (well, doesn't seem like it unless I forget my meds, THEN I notice it!) but like today. I slept for the sleep study last night. I got about 6 hours of sleep. I came home, went to bed, and slept another 2 or 3 hours. I got up, fiddled around on the computer for a bit, but was still sleepy, so went back to bed and slept another 2 hours. Here I am now, it's just 7pm and I'm STILL sleepy! I haven't done anything all day except drive home, fiddle on the forums and Facebook, and sleep. But I'm as tired as if I've run a race. And yes, sometimes, I look at others and think "it's not fair, I'm sick and they aren't." Everything happens for a reason. I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
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hatbox121 Posts: 10501
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Nope, I'm not. First it does me no good. It takes more energy that is already in short supply. Second I've never felt good so I wouldn't know what to do with it if I did. And third, for whatever reason, I'm meant to be this way. Perhaps I'm strong enough to handle it when others aren't or whatever but there's some reason and I'm ok with it. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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bfly Posts: 4061
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@Raoul- guess your feelings on the matter are why you are a senior member! Impressive. I don't think you should be so hard on yourself... don't judge your feelings as bad... they just are. It's frustrating- and I'm still working on the acceptance aspect (diagnosed 11/11)... An interesting definition to Envy - just for fun- I know you don't mean it this way at all... "I like what you have, I want what you have (i.e. health), I don't want you to have what you have"... potent definition in my opinion! Your feeling are normal and your perspective will change and grow and then regress, and grow again... this is very hard to deal with- everyday it seems- some better than others but never quite groovy! I agree with hatbox about it taking up a lot of energy- so I really try not to play the comparison game... I wish you success in dealing with your feelings and the pain. Blessings! Your joy is your sorrow unmasked. And the selfsame well from which your laughter rises was oftentimes filled with your tears. And how else can it be? The deeper that sorrow carves into your being, the more joy you can contain. Kahlil Gibran
"The sole purpose of human existence is to kindle a light in the darkness of mere being." Carl Jung
"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.” Leo F. Buscaglia
"Always fall in with what you're asked to accept. Take what is given, and make it over your way. My aim in life has always been to hold my own with whatever's going. Not against: with."
Robert Frost
"God doesn't give us more than we can handle, I just think He overestimates my strength!" lol- me
Bipolar I, PTSD, Bulimia, Anxiety, Fibromyalgia
Lithium 1500 mg; Lamictal 400mg; Busparone 60 mg; Armour Thyroid 30; Visteril as needed |
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Montag Posts: 252
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I don`t get jealous. I`ve had many awakenings over the last 22 yrs with fibro. Seems like it was a necessary evil into the world I know & love now. I`m happy to see kids jumping, skipping, hopping.....ppl dancing, having fun. I, too have lots of fun ~ life has much more meaning - its deeper & richer b/c of the senses I`ve had to learn how to use. As long as the ppl who aren`t like me leave me alone, or try to understand then the let the world spin!!!!!! Post edited by: Montag, at: 05/11/2012 02:33 AM I share from my experiences Only- I am not a medical or legal professional.
"Some of our greatest victories come from knowing when to retreat." author unknown
"Everyday is exactly the same but different..." |
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