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05/09/2012 08:09 AM

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Julzy
Julzy  
Posts: 503
Member

This is very unfortunate

http://www.painfoundation.org/

Reply

05/09/2012 08:19 AM
Beeleeg
Beeleeg  
Posts: 117
Member

wow Sad That is sad!

05/09/2012 10:41 AM
MoiraWolf
MoiraWolf  
Posts: 3416
Senior Member

I agree. Stupid economy! They were our advocates and we need them!

05/09/2012 10:54 PM
mem6526

This is so sad. I love this group and I am on their mailing list.

WOW!

Thank you Julz for sharing. Unsure


05/10/2012 01:23 AM
oroman
oroman  
Posts: 1539
Senior Member

I am so sad to see them leave us! I used to get their emails all of the time. Sad sad times we are living.

Olga


05/10/2012 03:38 AM
Julzy
Julzy  
Posts: 503
Member

One day I'm going to BE a spokesperson for Fibro! I'll travel the country, tell my story and those of others I've met. This mission has to continue and brought out into the publics consciousness. If one more person says, oh that's just a blanket term, I'm going to take off my shoes, hand them to them and say, HERE WALK IN THESE FOR AWHILE!!!!!!!!

Off to the Rheumy !! Wish me luck.... I'm mad as hell!!

Post edited by: Julzy, at: 05/10/2012 03:42 AM

Post edited by: Julzy, at: 05/10/2012 03:43 AM

Post edited by: Julzy, at: 05/10/2012 03:44 AM

Post edited by: Julzy, at: 05/10/2012 03:44 AM


05/10/2012 04:15 AM
kelly917
kelly917  
Posts: 55
Member

AMEN AMEN!!!! I so much agree with you. good luck at the Rheumy !!!

05/10/2012 06:54 AM
Remster
 
Posts: 31
Member

This is a sad day for those in pain...Julzy I'd love to join you in your quest...both for campaigning AND letting someone walk in my shoes. I'd love a day off from fibro. Good luck with your Rhemy appt.

05/10/2012 06:55 AM
mem6526


05/10/2012 07:40 AM
broken
broken  
Posts: 11053
Group Leader

sad for sure
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