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"My mother in law and an aunt suffered terribly with Alzheimer's. My mom has Sjo..." (linp)

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JAYEPAWS"It means that finally I have someone to relate too. that I'm not the only one with these kind of problems. it really feels good not to be alone in this. I've made some good friends. I appreciated the support that I have found here at this site,

where as other parts of my life I don't get.
Thank you for being there & creating this site.
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05/09/2012 08:09 AM
Julzy
Julzy
 
Posts: 503
Member

This is very unfortunate

http://www.painfoundation.org/

Be well in mind and spirit even though your body fights you daily with pain....love and light. Julz.
Reply

05/09/2012 08:19 AM  Top
Beeleeg
Beeleeg
 
Posts: 114
Member

wow Sad That is sad!
Brenda
Arthritis, Fibromyalgia

05/09/2012 10:41 AM  Top
MoiraWolf
MoiraWolf
 
Posts: 3410
Senior Member

I agree. Stupid economy! They were our advocates and we need them!
I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.

Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week

Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder

www.etsy.com/shop/moirawolf

05/09/2012 10:54 PM  Top
mem6526

This is so sad. I love this group and I am on their mailing list.

WOW!

Thank you Julz for sharing. Unsure


05/10/2012 01:23 AM  Top
oroman
oroman
 
Posts: 1539
Senior Member

I am so sad to see them leave us! I used to get their emails all of the time. Sad sad times we are living.

Olga


05/10/2012 03:38 AM  Top
Julzy
Julzy
 
Posts: 503
Member

One day I'm going to BE a spokesperson for Fibro! I'll travel the country, tell my story and those of others I've met. This mission has to continue and brought out into the publics consciousness. If one more person says, oh that's just a blanket term, I'm going to take off my shoes, hand them to them and say, HERE WALK IN THESE FOR AWHILE!!!!!!!!

Off to the Rheumy !! Wish me luck.... I'm mad as hell!!

Post edited by: Julzy, at: 05/10/2012 03:42 AM

Post edited by: Julzy, at: 05/10/2012 03:43 AM

Post edited by: Julzy, at: 05/10/2012 03:44 AM

Post edited by: Julzy, at: 05/10/2012 03:44 AM

Be well in mind and spirit even though your body fights you daily with pain....love and light. Julz.

05/10/2012 04:15 AM  Top
kelly917
kelly917
 
Posts: 55
Member

AMEN AMEN!!!! I so much agree with you. good luck at the Rheumy !!!
KELLY917

Previous discussions I participated in:
pain management Doctor's
RAIN GO AWAY
rainy days

05/10/2012 06:54 AM  Top
Remster
 
Posts: 30
Member

This is a sad day for those in pain...Julzy I'd love to join you in your quest...both for campaigning AND letting someone walk in my shoes. I'd love a day off from fibro. Good luck with your Rhemy appt.

05/10/2012 06:55 AM  Top
mem6526


05/10/2012 07:40 AM  Top
broken
broken
 
Posts: 9268
Group Leader

sad for sure
we all have alot to give if one gets the help then some of this suffering is worth it..

remeber I am not a doctor I just say what I think

Previous discussions I participated in:
AMBIEN
Eyes in such pain
Flu-Like Symptoms
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