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FMS ForumsGeneral & SupportSo Fed Up!!!
04/24/2012 10:41 AM
elliskoch
elliskoch
 
Posts: 95
Member

Sorry to vent being I'm not on here very much, but I've had enough of all of this crap. I was told that my pain and anxiety wasn't as bad as I say it is. I feel so worthless, and numb. My lawyer wasn't any help...I feel defeated...I have a hard time expressing myself with the Fibro fog. My pain is high and my energy is low. I feel like crawling in a hole and never coming out.
Gina
Reply

04/24/2012 10:48 AM  Top
ssinnge
 
Posts: 408
Member

I'm right there with you. I know exactly how you feel. I thought I found magnesium to really help me, but that was short lived until I had a major flare and then I couldn't walk for 3 days. My rheumy doesn't know what else to have me try, yet I have my sinus surgeon saying that my problems are all from mold inhalation! He says just ask the Mayo clinic!

I've had fibro for years and now I have advanced fibro as my rheumy calls it. Don't give up and I hope you get to feel better.


04/24/2012 10:49 AM  Top
mem6526

You don't have to be sorry for venting and expressing how you feel.

Nobody will ever fully understand how you feel unless they are going thru this themselves. I totally understand how you feel. You are not alone.

Just don't give up. Be good to yourself. {Hugs} Kissing


04/24/2012 12:58 PM  Top
MoiraWolf
MoiraWolf
 
Posts: 3410
Senior Member

Venting and even ranting and raving are allowed here. You know that. Smile

I'm sorry you're having such a trying time. I'm very lucky in that not a single one of my friends or family gives me "why can't you just get over it." Nor do they try to "fix" me, etc. Hubby worries, that's fine. He wishes he could do more, that's fine too. He does lots of things I used to do (like cleaning house) without complaint.

I know how lucky I am. Yet I still have days when I feel like you do. All you can do is hang in there, and fight for yourself. You are your own patient advocate, and unfortunately, that means you are the one who has to argue with idiots (even doctor idiots) and fight for your own rights. You have the right to care, you have the right to be treated, you have the right to be treated with respect, and the right to live as pain free as modern medicine can make you.

((hugs)) I wish you luck!

I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.

Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week

Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder

www.etsy.com/shop/moirawolf

04/24/2012 03:46 PM  Top
livewithhope
livewithhope
 
Posts: 398
Member

Gina, I'm so sorry, and I understand. One of the things that frustrates me the most about this syndrome is having a hard time expressing myself and explaining it to others.

I hope you feel better soon.

Hugs, Liz


04/24/2012 09:23 PM  Top
ushie
 
Posts: 1928
Senior Member

Hi, I'm sorry you're having a hard time, and some idiot is invalidating the pain you feel. I hope you can get past this person/roadblock--can you treat yourself to a nice little treat of some kind and forget the louse?

04/24/2012 09:31 PM  Top
elliskoch
elliskoch
 
Posts: 95
Member

I forgot to mention I was denied disabity for the second time. Geez Fibro fog hits again!!! The lawyer I had wasn't any help.
Gina

Previous discussions I participated in:
Rough day
fibromyalgia
Troll on the boards

04/24/2012 09:35 PM  Top
mem6526

Find another Lawyer that specializes in disability. Do not give up. That is what they want you to do....DON'T! You can do this and you can win. Wink

04/25/2012 04:59 AM  Top
hatbox121
hatbox121
 
Posts: 10493
Group Leader

I'm sorry to hear that. Hugs
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

04/25/2012 08:10 AM  Top
ushie
 
Posts: 1928
Senior Member

I'm sorry you were denied disability again! Can you get a diff. lawyer or something? Reschedule? Get a new 2nd oopinion on your fibro?
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