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JackieOnyc Posts: 9
New Member
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Hello, I am joining because i feel so alone, and am so in need of support, I also can give support, I am a 41 yr old mother of two girls 14yo and 8yo, wife of 15 yrs to my hubbie, who I've been blessed to be in a relationship for the past 22 yrs. Since we were 18yo'rs old. I was diagnosed with disc disease, bulging, herniated discs and spinal stenosis when i was just 27 yo, right after my first pregnancy/labor...I was diagnosed with fybromylgia at about 35 yrs old and have symtoms of osteoarthritis since for about ten yrs now... I have had my bouts of anxiety and depression, but just recently started lyrica, and am thinking of changing it...i'm not feeling myself, and find that i'm more depressed,,,, which is why im reaching out,,,has anyone had bad experiences with lyrica? i'm on low dosage...just 50mg, three times a day.... |
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FibroCFS Posts: 1448
Senior Member
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Hi JackieOnyc, I wanted to welcome you even though I have not tried Lyrica. Instead they put me on Gabapentin which is Neurontin. My other medications are in my signature. They had to take me off Cymbalta as it did not do much for pain and I was very drugged. Same with Savella. Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt (Hormones) PM Severe Hot Flashes
Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.
D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 400mg PM 1 Upon 1st Awakening at Night
Malic Acid 800mg AM/PM
Vitamin C 1,000mg 2x day
B1 Capsule 100mg AM/PM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM
Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
Omgega Fish Oil Capsule 1,000mg
I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions. |
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mabri Posts: 4710
Group Leader
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Welcome to the fibro group, Jackie. I am sorry that you are dealing with so many issues. Just to let you know, this is a great support group, with a lot of great people. There is a lot of good information in some of the older posts, I urge you to read over some of them. We are here to offer support, help, understand, listen to venting, spreading laughter and unjudgemental caring. I'm sure you will make friends here and hope that you will feel comfortable here. We hope to get to know you better. Welcome to the fibro family!! HUGS Please do not take anything I say as medical advice. I am not a doctor.
**Becky** |
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gerinaz Posts: 413
Member
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JackieOnyc. WELCOME. I have been a member of this wonderful group for less than a month, and I am totally amazed at the number of people who have found us over this time. I am even more amazed at the caring people who "hang out" here. You'll get empathy, sympathy, hugs, and all the warm and fuzzy feelings that we all sometimes need, but beware.......you will also get very frank advice if it seems that you are not caring for yourself. My experience with lyrics was several years ago. I took it for years, but it became time to change because it was making me too lethargic. There are many group members who currently take lyrics and there are also many past discussions about it if you look back a bit. Good luck. I'll "talk" to you soon. Geri |
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bc1028 Posts: 3377
Senior Member
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Welcome to the group. Your story sounds so much like mine it is not funny. I was dx with back issues at 26 although I have had back pain since I was in 6th grade. I had back surgery at 32 and the back pain continued...Eventually, I was hurting everywhere and would get so tired that I could fall asleep sitting up. I was dx with fibro at 38. I know the kids can wear you out (I have a 17, 15, 12 and 10 yo) but I am blessed with a husband of 21 years that will help and will tell me when I need to sit and stop for the day. Welcome to the group, I hope this will help you. |
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ushie Posts: 1928
Senior Member
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Hi and welcome. I had a different bad reaction to Lyrica. I take Cymbalta and Savella and Gabapentin instead. Glad you are here, and talking with us! |
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MoiraWolf Posts: 3410
Senior Member
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Hello Jackie! You'll find that your'e allowed to vent, rant, rave, laugh, question, love and just about anything else here. We're a great bunch of people and we "get it" which a lot of the world doesn't. We all have it, so we understand everything you say. I've never taken Lyrica. I'm on Gabapentin, Tramadol and Flexiril. So I can't help you there. You said you get really depressed, does the doc have you on anything for depression? Because Fibro is a neurologic condition, depression seems to go hand-in-hand with it, and many times AD meds can help both with the depression and sometimes with the pain itself. I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
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mem6526
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JackieOnyc, Welcome to the group! Are you taking an Anti-Depressant? Maybe you can talk to your Doctor about changing your Meds and trying an anti-depressant and a different Med and talk about weaning yourself off of Lyrica. Do not just stop taking Lyrica on your own. You have to be weaned off of it under a Doctor's supervision. Please let us know what happens after you talk to your Doctor. Hang in there. You are not alone. 
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faieriemama Posts: 3345
VIP Member
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Welcome so glad you found us dear and sorry you had reason to. You are definitely not alone you have joined a wonderful group of friends who have been where you are and are happy to support you and just be there for you.  I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.
Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das |
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Rubberman Posts: 1681
Senior Member
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Welcome Jackie you have come to the right place everyone here is very caring & surportive and will help you any way we can take care Bobby Fibromyalgia 6 buldging discs Hashimotos Thyroid
syndrome asthma.
Life Is There to be lived am still working on how
but will never give up Trying.
I am not a doctor so can only advise and try and help if I can |
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