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04/20/2012 06:00 AM
Julzy
Julzy
 
Posts: 503
Member

Thanks to FibroCFS!

http://www.fibroknowledge.com/site/diagnose.htm

Smile

Download the 2010 checklist, complete and bring to your doctor.

Post edited by: Julzy, at: 04/20/2012 06:06 AM

Be well in mind and spirit even though your body fights you daily with pain....love and light. Julz.
Reply

04/20/2012 06:59 AM  Top
bfly
bfly
 
Posts: 4061
VIP Member

Thanks for the post!
Your joy is your sorrow unmasked. And the selfsame well from which your laughter rises was oftentimes filled with your tears. And how else can it be? The deeper that sorrow carves into your being, the more joy you can contain. Kahlil Gibran

"The sole purpose of human existence is to kindle a light in the darkness of mere being." Carl Jung

"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.” Leo F. Buscaglia

"Always fall in with what you're asked to accept. Take what is given, and make it over your way. My aim in life has always been to hold my own with whatever's going. Not against: with."
Robert Frost

"God doesn't give us more than we can handle, I just think He overestimates my strength!" lol- me

Bipolar I, PTSD, Bulimia, Anxiety, Fibromyalgia

Lithium 1500 mg; Lamictal 400mg; Busparone 60 mg; Armour Thyroid 30; Visteril as needed

04/20/2012 07:03 AM  Top
Julzy
Julzy
 
Posts: 503
Member

It's works well. I am certainly well within the guidelines...ouch!
Be well in mind and spirit even though your body fights you daily with pain....love and light. Julz.

04/20/2012 07:11 AM  Top
bfly
bfly
 
Posts: 4061
VIP Member

Right?! Grrrrrr to pain!
Your joy is your sorrow unmasked. And the selfsame well from which your laughter rises was oftentimes filled with your tears. And how else can it be? The deeper that sorrow carves into your being, the more joy you can contain. Kahlil Gibran

"The sole purpose of human existence is to kindle a light in the darkness of mere being." Carl Jung

"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.” Leo F. Buscaglia

"Always fall in with what you're asked to accept. Take what is given, and make it over your way. My aim in life has always been to hold my own with whatever's going. Not against: with."
Robert Frost

"God doesn't give us more than we can handle, I just think He overestimates my strength!" lol- me

Bipolar I, PTSD, Bulimia, Anxiety, Fibromyalgia

Lithium 1500 mg; Lamictal 400mg; Busparone 60 mg; Armour Thyroid 30; Visteril as needed

04/20/2012 07:10 PM  Top
MoiraWolf
MoiraWolf
 
Posts: 3410
Senior Member

Wow, I just looked at that and I definately fall into the "it's Fibro" category. I think one said "if it's at 9 or above" and I was sitting at like 20 or so.

You know, sometimes, maybe it's just denial, but sometimes, when you're having a pretty good day, not hurting too bad... you go "this can't really be fibro, can it?" Then I look at something like this and go "oh yeah, it's definately Fibro."

And today's being a "bad hip day" for me. *sighs*

I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.

Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week

Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder

www.etsy.com/shop/moirawolf

04/21/2012 01:32 PM  Top
hatbox121
hatbox121
 
Posts: 10501
Group Leader

I'm out on number 3 of the criteria. I do have another condition that would explain the pain. So while I still have FM on my official forms, I don't actually meet the criteria. I do like the way they have it laid out. Simple to use.
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

04/21/2012 07:24 PM  Top
MoiraWolf
MoiraWolf
 
Posts: 3410
Senior Member

Well, Hat, I think 90% of us here is going to have a co-morbid condition that the symptoms of which mimic Fibro. I don't have a thyroid gland, low Vit D, IBS and others.

But I still think it's Fibro that explains all the others, not the other way around.

I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.

Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week

Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder

www.etsy.com/shop/moirawolf

04/21/2012 08:34 PM  Top
mabri
mabri
 
Posts: 4710
Group Leader

I'll have to print this out tomorrow, but it surely looks like it's a perfect match. Thanks for the info.

HUGS

Please do not take anything I say as medical advice. I am not a doctor.

**Becky**

04/21/2012 11:47 PM  Top
gerinaz
 
Posts: 413
Member

thanks for that, Julzy. Whenever I read information about fibro, I always focus on the tender points or symptoms that I DON'T have. Then I tell myself "Self, maybe you don't really have fms after all. Maybe it is something else that is just being missed. Maybe it is something curable". That occasional feeling of denial is , I'm sure, something that crosses the minds of everyone with fms. If right now, I knew that this is bad as it gets, I think that I could more easily adapt my life to living within this. The realization that my condition has worsened a bit each year of the 8 years since diagnosed really makes me wonder what the future holds. I particularly feel so sorry for those of you in the group who are young, have growing families and should have promising futures. Physical activity, though painful and difficult is one of the key things that we need to keep up with. Right now, I am not going to the gym like I did for many years, because I am caring for my disabled son. I definitely notice the difference in my condition when I do not have any "healthy " exercise. We should all follow Adewyn's example and start doing whatever level of exercise our bodies and pain level will allow. It can make an enormous difference. .....And the mental boost it gives you is great. My first pain specialist had fms himself and he dragged himself to the gym daily. He swore that helped him more than anything else.......keeps the blood flowing to all of those muscles and helps with the "firing" nerves. Love Y'all. Geri

Previous discussions I participated in:
THANK YOU!!!
Congrats to BHartford
Word Game

04/22/2012 06:38 AM  Top
Julzy
Julzy
 
Posts: 503
Member

Moirai- check your scores again. The first time I added the numbers it came to 19. I goofed and reread the directions. I still fell within the range but it was a much lower number. I brought it to my Rheumy appointment on Friday. She thought it was great and asked if she could hold onto it. Then I would fill one out for the next visit and compare my numbers!

Geri- I too am in that denial phase, probably bc I'm so early on in this. I still hold out hope. Plus, I truly do not know how I am with any medication in my system! I'm sorry that yours continued to get worse. I'm finding that if I do my best to hold onto a positive attitude I feel soooo much better. Of course I get my hopes up and sure enough I get knocked down again! I keep wondering how I will feel in a year from now. Yes, I do feel badly for people who are young and have to deal with this.

My therapist said keep thinking of finding a

Positive balance with your mind, body spirit connection which I'm really working on! My mind often over works, which then hurts my body, then my spirit.

Be well in mind and spirit even though your body fights you daily with pain....love and light. Julz.
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