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04/20/2012 06:00 AM

Checklist for RHeumy visits

Julzy
Julzy  
Posts: 503
Member

Thanks to FibroCFS!

http://www.fibroknowledge.com/site/diagnose.htm

Smile

Download the 2010 checklist, complete and bring to your doctor.

Post edited by: Julzy, at: 04/20/2012 06:06 AM

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04/20/2012 06:59 AM
bfly
bfly  
Posts: 4078
VIP Member

Thanks for the post!

04/20/2012 07:03 AM
Julzy
Julzy  
Posts: 503
Member

It's works well. I am certainly well within the guidelines...ouch!

04/20/2012 07:11 AM
bfly
bfly  
Posts: 4078
VIP Member

Right?! Grrrrrr to pain!

04/20/2012 07:10 PM
MoiraWolf
MoiraWolf  
Posts: 3416
Senior Member

Wow, I just looked at that and I definately fall into the "it's Fibro" category. I think one said "if it's at 9 or above" and I was sitting at like 20 or so.

You know, sometimes, maybe it's just denial, but sometimes, when you're having a pretty good day, not hurting too bad... you go "this can't really be fibro, can it?" Then I look at something like this and go "oh yeah, it's definately Fibro."

And today's being a "bad hip day" for me. *sighs*


04/21/2012 01:32 PM
hatbox121
hatbox121  
Posts: 11022
Group Leader

I'm out on number 3 of the criteria. I do have another condition that would explain the pain. So while I still have FM on my official forms, I don't actually meet the criteria. I do like the way they have it laid out. Simple to use.

04/21/2012 07:24 PM
MoiraWolf
MoiraWolf  
Posts: 3416
Senior Member

Well, Hat, I think 90% of us here is going to have a co-morbid condition that the symptoms of which mimic Fibro. I don't have a thyroid gland, low Vit D, IBS and others.

But I still think it's Fibro that explains all the others, not the other way around.


04/21/2012 08:34 PM
mabri
mabri  
Posts: 4769
VIP Member

I'll have to print this out tomorrow, but it surely looks like it's a perfect match. Thanks for the info.

HUGS


04/21/2012 11:47 PM
gerinaz
 
Posts: 413
Member

thanks for that, Julzy. Whenever I read information about fibro, I always focus on the tender points or symptoms that I DON'T have. Then I tell myself "Self, maybe you don't really have fms after all. Maybe it is something else that is just being missed. Maybe it is something curable". That occasional feeling of denial is , I'm sure, something that crosses the minds of everyone with fms. If right now, I knew that this is bad as it gets, I think that I could more easily adapt my life to living within this. The realization that my condition has worsened a bit each year of the 8 years since diagnosed really makes me wonder what the future holds. I particularly feel so sorry for those of you in the group who are young, have growing families and should have promising futures. Physical activity, though painful and difficult is one of the key things that we need to keep up with. Right now, I am not going to the gym like I did for many years, because I am caring for my disabled son. I definitely notice the difference in my condition when I do not have any "healthy " exercise. We should all follow Adewyn's example and start doing whatever level of exercise our bodies and pain level will allow. It can make an enormous difference. .....And the mental boost it gives you is great. My first pain specialist had fms himself and he dragged himself to the gym daily. He swore that helped him more than anything else.......keeps the blood flowing to all of those muscles and helps with the "firing" nerves. Love Y'all. Geri

04/22/2012 06:38 AM
Julzy
Julzy  
Posts: 503
Member

Moirai- check your scores again. The first time I added the numbers it came to 19. I goofed and reread the directions. I still fell within the range but it was a much lower number. I brought it to my Rheumy appointment on Friday. She thought it was great and asked if she could hold onto it. Then I would fill one out for the next visit and compare my numbers!

Geri- I too am in that denial phase, probably bc I'm so early on in this. I still hold out hope. Plus, I truly do not know how I am with any medication in my system! I'm sorry that yours continued to get worse. I'm finding that if I do my best to hold onto a positive attitude I feel soooo much better. Of course I get my hopes up and sure enough I get knocked down again! I keep wondering how I will feel in a year from now. Yes, I do feel badly for people who are young and have to deal with this.

My therapist said keep thinking of finding a

Positive balance with your mind, body spirit connection which I'm really working on! My mind often over works, which then hurts my body, then my spirit.

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