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adllmag Posts: 2494
VIP Member
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hello, anyone out there flare for months at a time with blurred vision, auras, constipation, gas, fatigue? I suppose theres more I just can't think right now, feel so sorry for my husband who doesn't have a wife and my son who doesnt have much of a mother, i cry all the time medications are
gabapentin
clonazepam
flexaril
norvasc
estradiol
medroxypr I am not a doctor, this is not medical advice from a physician, just my opinion or observation.
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MoiraWolf Posts: 3410
Senior Member
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I've never had a flare that lasted that long, no. But it sounds like you've got something besides just a flare going on. Especially when you say you cry all the time. Do you have depression, or anxiety? Those often go along with Fibro, and can cause the symptoms you describe. Blurred vision and auras sounds like migraines, constipation and gas sound like Irritable Bowel, fatigue sounds like Chronic Fatigue Syndrome. It really sounds like you need to speak to your doctor and get him/her to address ALL your symptoms, not just pain. Post edited by: MoiraWolf, at: 04/17/2012 07:08 AM I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
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ouchee Posts: 615
Member
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I have............still on it. Almost a year. I don't think I can call it a flare though. Just normal. My flares get longer and longer the older I get. I'm trying new methods now (herbal), hopefully will get some sort of relief there. Doctors obviously don't know what the heck is going on and I refuse to be on pharmaceuticals any longer. I'm taking my health into my own hands and those that are trained in herbs. I'll let you know if I find out anything new. So far, I seem to be a little better and over time I EXPECT things to get way better. Hang in there sweetie. Do the best you can with whatever method you choose. I know this isn't much help but after having this soooooooo long you eventually choose to do whatever it takes and try new things if the things you are doing don't work. I hope you can find something to work for you. My heart goes out to you. Keep us posted. Love and prayers to you!!!!  Carol
May today there be peace within. May you trust God that you are exactly where you are meant to be. May you not forget the infinite possibilites that are born of faith. May you use those gifts that you have received, and pass on the love that has been given to you.....May you be content knowing you are a child of God.....Let this presence settle into your bones, and allow your soul the freedom to sing, dance, praise and love. It is there for each and every one of you.
Mother Theresa |
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ushie Posts: 1928
Senior Member
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Sorry to hear you're feeling so badly. Your hubs and son will be fine--you have to look after yourself first, so that you can then look after them. |
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Adewyn Posts: 5027
Group Leader
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Hang in there... talk to your doctor... you hubby and son will be fine.. worry aout you and getting yourself back to where you want to be.... hang in there you can do it! |
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adllmag Posts: 2494
VIP Member
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ouchie why is it that on the day I have to go to the doc I start feeling better! I don't remember what to tell him was bothering me I guess i'd better get a paper and pen and write down everything that was happening. medications are
gabapentin
clonazepam
flexaril
norvasc
estradiol
medroxypr I am not a doctor, this is not medical advice from a physician, just my opinion or observation. |
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cscwem Posts: 93
Member
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I have had a flare that has lasted almost a month or so in the winter, I live in WA state so the snow and cold do me no good. Generally at that time my pcp will put me on the 2 day round of steroids to knock the flare out. She has tried to put me on the longer dosage, but in the end coming off that one, just sends my body back into flare up. The constipation and gas, that has been me lately and I am hating it!! As far as the fatigue I am always that way, matter of fact when I seen the rheumy at the beginning of the month he referred me back to the sleep doc that I saw before I was diagnosed with the fibro so I see his nurse practionier next week. Every day may not be good, but there is something good in every day..... |
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FibroCFS Posts: 1487
Senior Member
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Yes, although not all the symptoms are the same. But, you always have to go that extra mile and rule things out. Make sure your doctor knows. Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt or Aviane (Hormones) PM Severe Hot Flashes
Naltrexone 1.5-3-4.5 mg (Start low 4 weeks to 4.5)
Fibromyalgia - Off Label Use - Still Experimental
Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.
D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 200mg PM
Malic Acid 800mg AM
Vitamin C 1,000mg AM/PM
B1 Capsule 100mg AM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM
Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions. |
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oroman Posts: 1539
Senior Member
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I seem to also have pain all of the time so when I have a flare I can't tell the difference between arthritis, fibro and a flare. Its like I don't know my own body. And I too do not take meds that often. I wait and wait and wait before taking a prescribed medication. And I have been to my rheumy for about 3 1/2 yrs so I can't think of what else to do in terms of treatment doctor. Take it easy take care and be good to your self. Olga |
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faieriemama Posts: 3345
VIP Member
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Yep. My flares seem to trigger my depression which make my flares worse, it's like a big vicious circle, that can last for a month or two. I'm just getting out of one now, and if there's any extra stress in life that just adds to it all. Your idea of writing down what is bothering you before you go to the doc is a good one. Since my insurance only pays for one visit a month to my PCP I have to write down any questions I have or I'd forget them for sure.lol For your pains try a warm bath, heat pads, massages if you can get them. Hope you feel better soon, and try to relax and not stress. Hugs and Love. I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.
Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das |
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