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FMS ForumsGeneral & Supportcant take this no more
04/14/2012 12:49 AM
nikky2677
nikky2677
 
Posts: 8
New Member

Hi everyone i am nicole i live in australia near sydney i am 35 i have a very loving and supportive husband and 4 amazing children as long as i can remember i have always been in some pain 8 months ago i asked my father whom i not seen in 20 years if i was in pain as a baby and small child he told me i was always crying and saying i was in pain over the last 3 4 years its getting worse now the last year is getting unbearable went to my dr he told me i had carpal tunnel i knew it wasnt that so looked for a dr tht would listen to me and take me serious i found a great dr and he got to work with me right away ive had ultra sounds xrays every blood test im shocked i dont leak Tongue he was stummped fr a few weeks then i went back to him and told him i cant take the pain anymore he said he had been doing research and he thinks i have fibro he told me to research it and i have every symptom of fibro i am still waiting for an appoinment at the pain clinc and have a 2 month wait for the Rheumatologist i am on medication but it dont do much i get headaches everyday i am in pain 24/7 i just cant take it no more this is not living my hubby was going to shop today he asked me if i wanted anything i asked for a new body i have even told him to leave me he deserves a wife that can help him not someone he has to look after all the time i am at the end of this i just do not want to live like this no more i cant do it Sad Sad Sad
Reply

04/14/2012 01:47 AM  Top
bc1028
bc1028
 
Posts: 3377
Senior Member

NIkky, I am so sorry that you are feeling this way. Has your md given you anything to take while waiting on the pain mgmt md? If not, I would ask him to. I hope that the pain md helps you out, unfortunately, I have been to one and they somehow put it back on you about your pain. I know it is hard to sit when you are hurting so bad. Please take it from someone who has 4 kids also, it is not easy to rest and try heat or ice during the day but you need to make sure that you are taking care of yourself also. Take a hot bath or shower, rest often, and take the time in the car to relax. I hate that your dx is fibro but am glad they have found the problem and can now work on controlling it. Let me know if there is anything I can do to help. I hope you feel better.

04/14/2012 04:29 AM  Top
Adewyn
Adewyn
 
Posts: 4963
Group Leader

We have all been at this point... hang in there there is still hope... although my pain is still there every day even on meds it is nothing like it was.... and I am glad my husband never gave up on me.... there is a life worth living.. you are half way there... hang in there once you find you combonation of meds (you wont be completely pain free) BUT i can tell you it i way better and more managable.. hang in there!! pm me anytime... i am on lyrica and flexril thats my arsnal Smile

04/14/2012 04:37 AM  Top
mem6526

nikky2677,

You are not alone. I think that we all understand how you feel.

Just do not give up! Take life 1 moment at a time and know that there are moments that are overwhelming. But "this too shall pass"

I am so glad that you have a supportive Husband. Just hang in there.

Welcome to the group! Smile


04/14/2012 06:24 AM  Top
MoiraWolf
MoiraWolf
 
Posts: 3410
Senior Member

My arsenal is Tramadol and Gabapentin. I'm not 100% pain free, but it's a lot better than it was. Hang in there! I have said for years that "I'm sick and tired of being sick and tired!" And it was true, and still is. I'm not in great shape. But my pain and anxiety and depression are managable now.

Everyone here "gets it" because we all have it. This is a great community of people. You're allowed to vent, rant, rave, cry and laugh here. Lord and Lady know, I've done enough whining when I was having a bad day. And not one condemnation... just support, hugs and love. Once your doctor figures out your particular cocktail of meds that help you (and it's highly individualized) you'll feel better. I strongly suggest anti-depressants. Almost all of us are on something. For one, Fibro makes us depressed as it's a neurological disorder and affects brain chemistry, and for two, we all go thru a grieving process. We've lost the person we used to be and it feels like a death. Grief, denial, anger, fear, depression... it's part of the greiving process and we all go thru that. It's ok to feel the way you do.

And then there's the guilt. I'm 47 and live with my husband in Cheyenne Wyoming, USA. He works and then comes home to doing laundry and housework because I can't. I feel guilt about that. He works, I stay home, I should work on the house, chores, cleaning, dishes... He shouldn't have to do both. But I just can't do it most days. He understands and doesn't complain. But the guilt is hard to deal with. Vent to us, tell us all about it. We may make suggestions to lighten the load. We may just give you virtual hugs. But you're not alone, and we all understand because we've gone thru the same thing that you're going thru right now. You may need to find a therapist, someone to talk to about your feelings. They are legitimate and real. But they can be destructive, and you need to work thru those feelings.

Talk to us. Do what you can. Get a doctor to give you pain meds if you don't have any right now. And if you are taking pain meds now, they obviously ain't working, so you need to change them. Hang in there. You're not alone.

I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.

Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week

Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder

www.etsy.com/shop/moirawolf

04/14/2012 07:02 AM  Top
nikky2677
nikky2677
 
Posts: 8
New Member

hi all thank u all so much really felt like taking my own life thought it would be better to go so my family n kids didnt have to see me go through this or have to help me now i no that is not the answer and im only hurting them which i dont want to do well hubby rubbed me down with deepheat and dr came gave me some pain meds i am taking zoloft for deppression and taking lyrica i still in agony would rather give birth which i did with no pain relieve fo 3 out of 4 of my kids i have beaten cancer and i will get through this and learn how to live agin and work out whats good for me i have always been a strong independant woman and its very hard for me o ask for help but i have to learn to do it if im going to deal with this hand i have been given i used to think why me what did i do to deserve this now i say to myself it was given to me as god knew i would fight it and deal with this ITS JUST ANOTHER HURDLE tonight i told my hubby to leave he is only 29 should have to look after me but he told me he wasnt going no where that i would have to kill him first before he wouldd go made me feel like nicole what are you doing stop pushing everyone away i have also decided that i dont want to gie up my family days where we woukld go to zoo go to park or anywhere i really enjoy these days and i no my kids do to so if i can i will get a scooter for these days does anyone think its a good idea or am i being a goose also talked bout getting a cane with my hubby still dont know what to do i want MY life back and i know i cant do what i used to but im not deAD and want to look back at my life and say yes i had carp days but the look on my kids faces far outways my crappy days

thank u all for listening to me rave on i seriously was going to take myself off to heaven tonight


04/14/2012 07:03 AM  Top
nikky2677
nikky2677
 
Posts: 8
New Member

i was on tramadol when i had the cancer but it gave me massive migraines

what else can i try ?


04/14/2012 07:04 AM  Top
nikky2677
nikky2677
 
Posts: 8
New Member

is there any exercises i can do that wont cause pain?

is there a diet i should follow ?


04/14/2012 07:43 AM  Top
Adewyn
Adewyn
 
Posts: 4963
Group Leader

lyrica.. how long have you been on it and what is your dosage....mine is 100mg 3 times a day and i still have room to up it....exercise.... walking is good for now... then pool therapy ... diet.. just make sure it is as healthy as it can be with ruits and veggies and lean protiens....if you are allergic to anything then stay away from them... but get your meds under control first....keep moving.. take it from someone that knows ...

this is a skimmed over story but you will get the point:

http://www.mdjunction.com/forums/fibromyalgia-discussions/ general-support/3404899-adewyns-story-very-long


04/14/2012 07:56 AM  Top
nikky2677
nikky2677
 
Posts: 8
New Member

im on lyrica 75mg 2 x daily
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