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04/05/2012 11:02 PM

Needing some help and advice please

tmrobinson
tmrobinson  
Posts: 25
Member

I've been diagnosed with Fibro and RA back in Aug. of last year. At first I was able to see a specialist for it, but since my husband was able to get his disability I have lost my medicade. I havent been able to go back to see him since Oct. I will admit that what meds he did give me sure wasnt helping either of my problems. Now I'm in a situation where I hurt more and more everyday and I have such bad joint pain in my hands, wrists, and fingers that I can't do the simplest things anymore. Its getting harder and harder to get out of bed and face the day let alone take care of the house and my family. I was wanting to know if anyone has any kind of advice they can give me on some kind of help I can get so I can see a Dr and get the meds I need? I have went from a active person that was going to college and taking care of my family, to having to quit school and having my family take care of me.. I can't deal with this anymore and I'm about to go crazy.. Its bad when you have to ask your 13 year old son to get you a can of soda and have to have him open it for you. I also alot of times have to ask my husband or my son to help me out of the bed or the chair.. I feel so helpless.. I pray that someone can help me with some advice on any kind of help... Thanks for reading and let me dump my problems on you all...
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04/05/2012 11:41 PM
gerinaz
 
Posts: 413
Member

hi.... and welcome to the group. Hopefully, someone will respond with more suggestions for you, but I just recently read a posting where one of the members was able to get several months of Lyrica for free. she said that you just go onto the Pfizer website, print and fill out a an application and submit it with a doctor's prescription. If you are eligible, you can receive up to 12 months of medication. I don't have any suggestions as far as a doctor visit, however. Good luck. hang in there. Don't forget hot baths, heating pads, ice packs (and sometimes anti-inflammatories help as a last resort).

04/05/2012 11:49 PM
MoiraWolf
MoiraWolf  
Posts: 3416
Senior Member

Welcome to the group! You will find that anything from ranting, raving, complaining, whining, laughing, loving... it's all allowed. You will never be critisized, told to "suck it up" or anything of the like. We "get it."

And while I welcome you, I will also say, sorry you needed to find us (have these awful syndromes).

Now... Is it that since he's on disability, you have too much income now to be covered under medicaid? What about your own disability? If you're as bad as it sounds, you may be able to get your own SSI disability. Something to look into at least.

I don't know the laws in your state (don't even know what that state is!) but here's some ideas. Call your state's department of health and human services. I know Texas has a type of insurance called Combined Health Insurance Pool, or CHIP for people who are denied other insurance because of pre-existing conditions. You can also contact area churches to see if they have any help or advice. It sounds like you don't just need medicines, you need to figure out what cocktail of drugs is right for you (we're all on a different group of meds). You need to see a rheumatologist. They are the ones who treat for both Fibro and RA. I know California has a health insurance for uninsured people, several states do. DHS is usually the first place to start.

I'm sure tho, some of the other ladies on here will have more information or advice.

In the meantime... hot baths with epsom salt is good. A heating pad with a moist washrag (moist heat) is good for localized pain. Fibro is not an inflammatory disease, and RA is, so OTC anti-inflammatories like Ibuprophen or Naprosym might help. If you have access to a hottub either your own, someone you know, or the local YMCA, a hot whirlpool tub will help both. I take Osteo-biflex for my osteoarthritis.


04/06/2012 04:47 AM
Montag
Montag  
Posts: 252
Member

Welcome to the group TM !!

Sorry you feel so awful. You`ve had alot taken away from you.

From being very active to having your family take care of you is a hell of a shock compared to everything you used to be able to do.

Please stick around...everyone on this site has helpful ideas and are very unique in caring for and supporting each person thru this nightmare.

Try to be patient with yourself. It isn`t easy but I`ve found it one of the necessary tools for surviving with these illnesses.

sending you gentle hugs...


04/06/2012 04:59 AM
broken
broken  
Posts: 11053
Group Leader

welcome to the group.we are full of advice..some good some weird,lol..

okay there is a perfin wax hand soak i belive in the beauty section at WAl MART IT IS GREAT FOR HAND PAIN. ALSO WE ALL LOVE RICE SOCKS,fill a sock with rice(uncooked)tigh a know in the end and heat in microwave..

for localized pain several of us use salon pas also I found stop pain helps(not as long), Epsion salt baths are great to help muscels pain and aches.. and one thing that really has helped me,is make small goals dont say Im going to clean the house say Im going to clean the bathroom...it does help..also know we are always here to listen and advice..Hatbox has put up a great link for under insured you can find it in the furom section If you cant find it let me know or HAtbox and we will get it for you


04/06/2012 02:41 PM
DanaW
DanaW  
Posts: 2222
Senior Member

hi TM...looks like there is alot of advice already given...which is just one of the great things about this group! I don't have alot to add except that there probably is some sort of charitable health care program in your area, you have to find them. DHS is the best place to turn for help in locating some assistance.

I hope you stick around and get to know some of these fine folks!


04/06/2012 02:53 PM
hatbox121
hatbox121  
Posts: 11022
Group Leader

Hey there and welcome. Here's a link to a thread with lots of various agencies you can contact for help. http://www.mdjunction.com/forums/fibromyalgia-discussions/ general-support/3137312-resources-for-low-income-people-or- no-insurance Once you see a doc, if you decide on a DMARD for the RA, the companies have programs for people that can't afford the biologics or other DMARDs. For example, my daughter is on Enbrel and I only pay $10/month. I do have insurance but they pay the remainder of my co pay. They will not pay anything if you have any form of govt sponsored health care(medicare, medicaid, CHIPS, etc). The fact that you aren't medicated for the RA is more worrisome than the FM. The RA does long term damage and it sounds as though you are having some done right now and suffering the after effects of what's already been done. Look through that list above and see if it helps. If not, let me know. Here's another list(some of which is redundant) that I did for the arthritis board.

http://www.mdjunction.com/forums/arthritis-discussions/ general-support/814463-websites-to-help-those-with- illnesses


04/06/2012 05:22 PM
FibroCFS
FibroCFS  
Posts: 1911
Senior Member

Welcome.

My hands are getting worse as time goes on. I was diagnosed with Osteoarthritis in both and some days it is really bad.

We are all on different medications. What works for one does not for another and sometimes with bad side effects.

I used Tramadol and Gabapentin for the Fibro and for sleep Ambien and also that is why I use Gabapentin. Fludrocort is for Hypotention (Low blood pressure).


04/06/2012 05:50 PM
girlfriend
girlfriend  
Posts: 4027
VIP Member

Welcome to our family! Tons of great people here... is there a local or county health center that could help you?

04/06/2012 05:52 PM
mabri
mabri  
Posts: 4769
VIP Member

TM,

We are so glad that you found this group. We are very happy to have you as a part of it, and are looking forward to getting to know you better. You have already received a lot of great advice from some of our wonderful members. Feel free to post anytime, and welcome to the fibro family!! HUGS

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