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Superemt79 Posts: 47
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So all of you know the basic story of me but i feel like I need to talk about whats going wrong in my life right now and i cant talk to my family about it because i feel like they wont understand. please don't judge me this is really hard to even come out and say. Well lets start at the top my boyfriend: My boyfriend has been unemployed and living on friends couches in Ohio and i live in Illinois, when i started getting worse off he decided to sell his Xbox and come out here (with out my knowledge and become homeless just so he could be here for me). He wanted to buy a tent in the middle of winter and stay outside..i wasn't having that so i contacted a friend and hes currently living on there couch. The people hes staying with I love these people but there youngest daughter so help me is unbearable and so not understanding. Shes 16 and i know that's the age of hating everyone but it really pissed me off when i " forgot" (which seems to be getting worse my forgetfulness) to throw away a plastic cup that i used. As my fibro is getting worse my memory is to. She sent me a message saying " Dont come into my house and leave a mess, I do not enjoy cleaning up after you". When i called he she proceeded to tell me that i was a bad person that i kept disrespecting her and her family by forgetting to do the dumbest things. God knows im trying my hardest to remember and when i tried telling her about fibro she told me that i should go on medication and it will all be fixed. I cant seem to explain to her that i can not be fixed its so hard to deal with. I would never disrespect anyone on purpose Thats not how i was raised. My Family I love them to death but oh so help me they don't understand at all. When i told my mom about this she just said "well lets just get you on some more antidepressants that should help" I Dont want more medications the reason im in so much pain is that my back between my shoulders never stops hurting and its always knotted. I had her read the information but she still is so stubborn about accepting it. My little sister is 17 and is like " stop complaining about your feet and your back its no that bad." to me the pain makes me wanna give up most of the days and to her that pain doesn't even exist. Finical Burden I honestly feel like i'm wasting my whole family's money by seeking help for this. I know how much pain im in but they Dont. So by me asking for help like PT and massage therapy makes me feel like i Dont even know how to explain it. But to them its like im spending there money for something that "doesn't exist". End of rant i guess for the day. I'm so glad i found this website with out this website without it... I would feel so alone Please note that I am not a doctor. If you belive you are in need of medical attention please do so.
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FibroCFS Posts: 1430
Senior Member
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Super, There is something wrong with your boyfriend. You don't expect ANYONE to live in a tent. He is homeless. Not telling you what he was doing tells me he did not really do this for you, somehow he did this for himself but said he came out for you. Sold his X-Box? None of this makes sense. The people he is staying with are nice/nuts to take him in. Sorry. Why are you talking to a 16 year old? Talk to the parents. Post edited by: FibroCFS, at: 03/11/2012 09:44 AM Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt (Hormones) PM Severe Hot Flashes
Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.
D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 400mg PM 1 Upon 1st Awakening at Night
Malic Acid 800mg AM/PM
Vitamin C 1,000mg 2x day
B1 Capsule 100mg AM/PM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM
Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
Omgega Fish Oil Capsule 1,000mg
I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions. |
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broken Posts: 9223
Group Leader
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always know you can talk openly here,first boyfriend,umm is he worth this?he sounds like a few family mambers I have that as long as they have a free ride they will due nothing to help themselves,you dont want to live like that. your friend?I dont know where to begin but would say at least they are open to how they feel,but sounds like you might stay away family is a wonderful thing but when it comes to this they dont understand and wont, you might concider bringing a family member with you to the docs and let them ask questions? your memory is resoponing to stress and the way the brain works trying to get the pain figured out.the more stress and pain the more memory will fail.. keep fighting you will make it through we are here to help we all have alot to give if one gets the help then some of this suffering is worth it..
remeber I am not a doctor I just say what I think |
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girlfriend Posts: 1601
Senior Member
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The boyfriend that 'does it for you' is not worth having.... btdt.... let him take care of himself... you are not responsible....for him or his family or friends.. You are responsible for yourself not the rest of the world....he put himself in that position, not you nor did you ask him to sell his xbosx...he really sacraficied alot didn't he...people never cease to amaze me.... sounds like he is trying to trap you into something you probably don't want.... Post edited by: girlfriend, at: 03/11/2012 11:00 AM Don't dread the storm, Learn to dance in the rain! |
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maryandjimmie Posts: 1849
VIP Member
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Super, I am so sorry you are going through all this. I just want to say only you know the pain you are in just because people cant see the pain alot of people think we are faking it or making it up like who would want to make up pain like this. If your family is willing to help you with things you need for therapy dont worry about what your little sister says just accept it. I know you feel bad for taking their money but maybe writing them a note to tell them how much you appreciate all their help will make you feel better im sure they would like it also. We are all here for you. Mary My mom use to say God dont like ugly and he aint to fond of pretty. Wow that speaks loudly to me.
What we go through in life dont dictate who we are going to be or who we are only we have the control over our lives to do that. Never give up and always follow your dreams.
I am not a doctor and my advice is purely from my own experiences. I will always be here for you all if you need me just pm me anytime. |
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mem6526
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Superemt79, Sweetie...Please take care of you! That is what I will say to you. Your pain is real and we all know that. If other people choose to not educate themselves then that is their choice and that is on them. You do not have to keep explaining yourself. Take care of YOU! We understand!  |
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Superemt79 Posts: 47
Member
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I'm not leaving my boyfriend he is the only one here for me and he's trying his hardest. I love him to death Please note that I am not a doctor. If you belive you are in need of medical attention please do so. |
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ushie Posts: 1928
Senior Member
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Hi, Super, AFA your fam, can you turn it around on them? Reframe your life; take control. Smile gently at your sister and say, "I'm so glad I have your understanding and support during my illness." Either she'll get it and feel like the fool she is, or she'll think you're being super-nice and might shut up. Can you take your mom in to the doc's with you, so the doc can explain how the PT and other therapy is necessary? Can you have the doc suggest she come with you to PT or a pain clinic, so she can get with the program? AFA as the mouthy teen, ignore her dumbazz. Dont waste your time talking to her; if she complains in person, just nod and think of something else. AFA boyfriend, only you can make the call. Can you talk with him one-on-one and see what's on his mind, where he is w/regards to your 'ship, what plans he has? |
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livewithhope Posts: 398
Member
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Hey, Super...I agree about taking your Mom with you to a doctor's appt., so she'll hear it from his mouth about what you're dealing with. Doing that was a good thing for my husband. Also, could you print off some material for them to read? There's some great stuff out there that would help explain it. "A letter to normals" and "The spoon theory" are 2 off the top of my head. I think you could google those titles, and they'd come up. About your boyfriend...maybe I read it differently from everybody else, but I thought what he did was sweet...selling his Xbox (or whatever it was) to have money to come help you. Hopefully he'll look for a job and eventually get his own place. About that girl...I wouldn't give her the time of day. She's a stress you don't need in your life! About the financial burden...we all understand about that. It is hard to keep paying for doctor's visits and treatments when it's all a "guessing game." But it has to be done to help you to feel better. Your parents aren't complaining about it, are they? Just let them know how much you appreciate it. I hope you're feeling better. We're always here for you, and we understand! Hugs, Liz |
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MoiraWolf Posts: 3410
Senior Member
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I'll just add my voice to everyone else's. Ignore that little 16 year old. We all know we had no brains at that point of our lives! I don't know if it's possible, but for your mom and your little sister... Pick one day, when you're not feeling good, and have them go with you. They have to be no more than 10 feet away from you all day. Doctor's appointments, showering, everything. Let them see how much you have to do, how many pills you take. Feel those muscles when they knot up. Make them live a day in your shoes and see if they "get it" then. If all they see is you sitting on the couch watching TV, it probably doesn't seem to them like you do much, so how could you hurt. Sort of one of those "take your kid to work" days. Make sure there's a doc visit, or physical therapy or something like that during that day. As an EMT I'm sure you get some calls with those 300+ pound patients you have to pick up, let'm watch how you have to handle that. Maybe THAT will open their eyes. I know you may not be able to do that, because of liability, but it's an idea anyway. I agree that the boyfriend, if he's truely there to support you, needs to find a job. Both for financial support (of himself if nothing else), and to show that he's willing to do what's necessary to help you. Then you'll know what kind of person he truely is. As for the rest. Rest when you can, and don't worry about what others think. I know, that's the hardest to cope with. But like the spoon theory says, you only have so much energy per day, don't waste it worrying about things you can't change. (And I need to take a healthy dose of my own advice there!) I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
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