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"My mother suffered from alzheimers as well as parkinsons, I suffer from fibromya..." (Lancs)

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Fmsdaddy"Md Junction to me is my safe place. A place where I can feel safe to just open up talk about everything without burdening my wife. With all my health issues its nice to know that I am not alone, suffering form fibromyalgia,depression, and costochondritis with anxiety is a nightmare. Having the great people here at MDjunction is so great its hard to put into words. I dont think I would be getting through what I am going through without this great resource. I think everyone should know about mdjunction!" (Fmsdaddy)

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03/10/2012 10:10 PM
Superemt79
 
Posts: 47
Member

Seems like a lot of people I thought were my friends are not. About 6 of my friends told me that I'm to lazy and never want to do anything anymore and I told them about fibro and now they just claim it's all in my head. I just want to sleep in my bed all day. My boyfriend trys to defend me and tell them that I'm not crazy but no matter how much he sticks up for me I still feel lonely. I miss my friends and I wish I had the engry and the strentgh to go out. I just want one day with no pain one day to be happy.
Please note that I am not a doctor. If you belive you are in need of medical attention please do so.
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03/10/2012 10:18 PM  Top
MoiraWolf
MoiraWolf
 
Posts: 3410
Senior Member

*gentle hugs* I hate to sound like a cliche, but "Those who matter don't mind, and those who mind, don't matter."

That's why you went looking and why you came here. Between moving, loosing my job, and Fibro, I only have very few friends, and 99.9% of those I only see online or occassionally talk to on the phone. I don't have any friends anymore who come over to visit. Which is exactly why I came here.

I'm so sorry that your friends don't get it. And so glad that you have the boyfriend who does.

I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.

Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week

Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder

www.etsy.com/shop/moirawolf

03/10/2012 11:11 PM  Top
ushie
 
Posts: 1928
Senior Member

Hi, sorry you're having a bad time. They are NOT your friends. They're jerks. Forget them.

03/11/2012 11:45 AM  Top
girlfriend
girlfriend
 
Posts: 1630
Senior Member

This seems to be the illness that shows us who our friends really are..... we've all experience the same thing.... but on the happy note, you will meet some real friends!
Don't dread the storm, Learn to dance in the rain!

03/11/2012 11:48 AM  Top
mem6526

Someone called me today several times and I finally answered the phone. I really did not feel like talking. I am in pain and I am crabby and just so irritable. So I tried to tell them in a nice way that I just did not feel like talking.Then they proceeded to totally ignore me and ask if they could come over.

I told them once again that I did not feel well and that I was in a lot of pain and that I had a headache today and just wanted to rest. So they once again proceeded to say that they wanted to come over and just say hello and that they would not stay long. So I finally said to them "Are you going to keep asking me the same question until you hear what you want to hear?"

I said..."Why can't you just accept my answer?" Then they got kinda defensive. So I said that I needed to go and I hung up. My point is that why don't people understand that we are in pain and just want to at times be left alone? I seriously don't think that anyone understands how we feel unless they are going thru it themselves. Sorry for the rant but I just needed someone to understand how I felt today. Thanks! Smile


03/11/2012 11:54 AM  Top
livewithhope
livewithhope
 
Posts: 401
Member

Super...the others are so right that this illness really shows who your friends are. The other so-called "friends" will only cause you stress, and you don't need that in your life.

You're in just the right spot to make real friends who understand and care about you.


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03/11/2012 11:56 AM  Top
mem6526

Superemt79,

Hang in there. We understand. You are not alone. Wink

0hugsssssssssss


03/13/2012 10:21 PM  Top
faieriemama
faieriemama
 
Posts: 3345
VIP Member
I'm an Advocate

Super, sorry I didn't see this until today honey. Real friends would understand that you have good days and bad days so they must not be real friends. I have one offline friend and she's usually pretty understanding, sometimes she gets selfish, but then so do I. lol My point honey is you deserve respect from your friends and if they can't give you any they're not your friends. Hugs and Love.
I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.

Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das

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03/14/2012 09:21 AM  Top
hatbox121
hatbox121
 
Posts: 10510
Group Leader

I agree. You will lose a lot of "friends". However, the way I see it they weren't really friends to begin with. Those who truly care will stick with you no matter what. That being said, it doesn't take away the hurt and anger you feel at not being able to do the "normal" things others do. I'm really sorry for that and I hope that you do get to feeling better. See, I haven't really gone through this as I've always been in pain, etc. So my friends growing up are still my friends now(other than the normal growing apart stuff) and they stick with me because I've always been ill. I have lost friends over other things though and I do know it hurts.
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

03/14/2012 01:18 PM  Top
mabri
mabri
 
Posts: 4710
Group Leader

Super,

I'm sorry you were threated this way. It is so hard when people that you care about act so stupid. They say you are lazy and it's all in your head...Those are the kind of ppl that you don't want in your life anyway. If the shoe was on the other foot, would you just blow off a friend because of an illness? I think not. I can't speak for others, but I think this is usually what happens, and ppl lose friends very quickly and hurtfully because of this illness. Friends are only interested when you can get up and go places and do things. Real friends will come over and sit with you, or help you by vacuuming for you, or just hanging out and watching a movie. I don't have any real friends...It's ok though...I'd rather have none than selfish friends. HUGS

Please do not take anything I say as medical advice. I am not a doctor.

**Becky**
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