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LilyRose4 Posts: 261
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I feel like throwing up now. I can't believe I put myself out there, but I felt it was better than feeling people were gossiping and getting misinformation about my health. It is about 1,000 words. I posted it in my diary if you want to read it. You may be able to cut and paste change a few things and use it to share with your family or friends? Feel weird now, like naked in public weird. |
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FibroCFS Posts: 1487
Senior Member
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Congratulations. This is a big step in taking control of your illness and the information people around you have. Maybe in a couple weeks you can post informative links. One of my favorites is from fibroknowledge.com. Very simple videos and slide show. A lengthy bit of information is the expanded symptoms list. http://abarnabas.tripod.com/indexfibrosymptoms.html Just hold off, let them digest what you posted. In a couple weeks post something, in a month post something, wait a few months and post something. Your REAL friends and family will be accepting. Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt or Aviane (Hormones) PM Severe Hot Flashes
Naltrexone 1.5-3-4.5 mg (Start low 4 weeks to 4.5)
Fibromyalgia - Off Label Use - Still Experimental
Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.
D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 200mg PM
Malic Acid 800mg AM
Vitamin C 1,000mg AM/PM
B1 Capsule 100mg AM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM
Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions. |
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girlfriend Posts: 1790
Senior Member
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You go girl!!! Don't dread the storm, Learn to dance in the rain! |
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LilyRose4 Posts: 261
Member
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Thanks FiboCSF and girlfriend and thanks for the links. Yes, I gave them the option to de friend me but said I hope they don't and said they could also follow my blog if they wanted to during this "radio silence" on my part. I was just thinking that too FibroCFS I showed my underbelly and now we will see who really cares and who just thinks I am a crazy hypochondriac. I like that I did take control that feels good. |
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MoiraWolf Posts: 3410
Senior Member
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Lily, I imagine what you're feeling, and why you did it, are similiar to what a gay person feels when they come out of the closet, or what I felt when I decided to quit hiding that I was a pagan, and not a christian (my entire family are southern baptist, and not very accepting of ANY other religious choice). My mother even disowned me for a while and said some rather nasty things, although in the last few months, she's apologized and we are taking baby steps to repair the relationship. I applaude you for taking the step. I know how hard that must've been. But, in the end, it'll be for the best. *gentle hugs* Hang in there. We'll always be here for you. I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
www.etsy.com/shop/moirawolf |
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Adewyn Posts: 5027
Group Leader
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itis a big step.. i like moira understand also.. beside coming out about fibro lol.. i came out a few years earlier as a tarot reader and my religon was spiritual.. NOT roman catholic... I lost alot of family members over my religious views lol then my sickness... oh i am sorry does it offend you that i dont believe in one god.. but in many gods and goddesses and that i believe that there is a connection with all beings of the world... including fairies/ elves....oh well.. to each there own.. and dont worry about them just worry about you.. and who will be therewill be there and who wont wont.... i am on FB also.. under Adewyn Le Blanc you may friend me anytime  i dont judge hugs and love.. congrads on your big step |
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MountainMary Posts: 16
Member
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Dear Lily- What you did today took a lot of courage and strength. Be proud of yourself. You are absolutely AWESOME. Would you like a new friend? Lots and Lots of Hugshttp://cdn.mdjunction.com/components/com_joomlaboard/
emoticons/smile.png |
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hatbox121 Posts: 10659
Group Leader
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People will do what they will so don't spend too much time on what they will think or do. You can't control anyone or their thoughts. I hope you feel some weight off your shoulders now. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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