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phsmom Posts: 9
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To start with some happy news, my 9 mo old daughter stood up all by herself for 10 seconds for the first time ever today! Hooray Anna! Such a big girl! And I took my other daughter to an open house at a Kindergarten last night..how is that possibe?! She was just born, it feels like! Anyway, now to vent again! I am seriously considering stopping Cymbalta.. I've tried it for a month, but it doesn't seem to be helping, and these muscle spasms and twitches are driving me crazy..and the headaches daily are wearing me out. I was taking these tricyclic antidepressants before that, and they did help my body feel somewhat better, but my eyes were getting so dry that i was seeing double, and eye drops did nothing..and my eye dr said my eyes were fine.. I just wish there was something I could do that would help me at least feel functional most of the time without side effects that are awful. Sometimes I'm not sure what's worse...being in pain from the Fibro, or being spacey and having side effects from the meds! Honestly, I used to think about taking my girls to Disneyland one day and how much fun that would be, and now I always add to that thought, "But I hope my body is functional enough to do it!" The thought of all that walking, having to take breaks, not fully enjoying it, ugh! It drives me nuts! I'm 33, not 93! I am seeing a new rheumatologist on the 12th, maybe she can give me some ideas. If anyone has any ideas, let me know.
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Montag Posts: 252
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Yay for Anna & mom! I`ve never taken Cymbalta, but it doesn`t sound like its helping you. Only you`ll know whats helpful to you..good luck with your new doc..! I just went thru a "First" appt wth my new R. I take Effexor 75 mgs x 3 in the am. I was told by my rheumy Effexor works much like any of the new meds. i was thrilled b/c Effexor is nasty to come off of. take care of you. I share from my experiences Only- I am not a medical or legal professional.
"Some of our greatest victories come from knowing when to retreat." author unknown
"Everyday is exactly the same but different..." |
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girlfriend Posts: 1790
Senior Member
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I did not like the side of effects of cymbalta.... like a walking zombie.... your new doc should be able to help you find something that works... congrats on the walking baby they are so adorable when they are that age! Don't dread the storm, Learn to dance in the rain! |
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Moiaddy Posts: 384
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Congrats Anna! Cymbalta worked for me but I got diagnosed with glaucoma so I had to get off of it...still trying to find the right mix.... Good luck... Victoria
"Every soul you meet has a lesson to learn from you and a lesson to teach you, be giving and be receptive" ~Me
My quote above is copywrited and all my postings are just my opinion and are not medical advice, please talk with your doctor :) |
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MoiraWolf Posts: 3410
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When you go to Disneyland (or world) get a motorized wheelchair. I'm pretty sure you can rent one there, sort of like those hoverounds. I knew a guy who's wife was diagnosed with MS and they went to take their kids. She had to have one of those chairs to get around, but they LOVED it, said that they got to cut to the head of every line for every ride instead of waiting an hour or more. And it helped her not get so worn out that she couldn't enjoy it, and the memories they had of that wonderful vacation helped her get over some of the bad days she had later. I am not a medical doctor and any medical opinion I give is based on personal experience and/or research. It is not intended to suppliment or replace your doctor. Follow at your own risk.
Gabapentin 600mg, tid
Tramadol 50mg, bid
Enalapril 10mg
Metoprolol ER 50mg
Citalopram 40mg
Levothyroid 125mcg
Cyclobenzaprine 10mg
Hydroxyzine 25mg
Carbidopa/Levadopa 25/100mg
Fish Oil Omega 3 - 1400mg
multi-vitamin pack
Vitamin C 500mg
Vitamin D3 50,000units, once a week
Dx: Fibromyalgia, chronic fatigue syndrome, obstructive sleep apnea, restless leg syndrome, degnerative joint disease, hypertension, diabetes type II, irritable bowel syndrome, plantar fasciitis, reactive airway disease, chronic allergies, hashimoto's disease, TMJ, morbid obesity, major depressive disorder, generalized anxiety disorder, post traumatic stress disorder, seasonal affective disorder
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LilyRose4 Posts: 261
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Yes, take MoiraWolf's suggestion. This is what I did before I left CA, I had a season pass to Disneyland. I would rent the cart (if I remember correctly it was $50.00 plus a $20 deposit you get back-before) Pricey, but then I could still afford it and totally worth it. You do get to skip ahead in line on a lot of the rides but not all of them and you can take people who are in your group with you. You don't need a handicap sign or proof of disability it is sort of an on your honor system (although I did have paperwork with me just in case). They give you a Disneyland handicap card so you can enter through the handicap area onto the rides. It was so great zipping around on that thing, I was able to feel half human again (I too am in my 30s and feel in my 90s). I also did this at Dollywood when I was living in NC. Hope you can make it to Disneyland with your daughters and have a great time. |
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starkeeper Posts: 145
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When I go to Disneyland we go and rent a collapsible scooter as it's cheaper then renting one at Disneyland. You then go to Customer Service there and get a front of the line pass meaning up to 6 people including yourself get to go to the front of the line for every ride. It really is worth going, just bring a friend to push the stroller. Depending on where you are located I recommend Sherman Oaks medical for renting chairs as they have been great with me. Mostly because I got my specialty wheelchair through them and my motorized scooter. Anyways, Enjoy Disneyland and I really hope you feel better soon! Conditions: Type 1 Diabetic, Purchers Retinopathy, Legally Blind 07’, Chronic Pancreatitis 07’ with Malabsorbtion, Herniated Disc at C-7 07’, 3 fractures in spine upper, middle, lower, Fibromyalgia, and Cutaneous Lupus, Chronic Sinusitis, Plantar Fasciitis, Migraine Headaches, Anxiety Disorder, Severe Social Phobia, Seizures, Stroke 08’, Not all mental health issues listed.
Medications:
Lyrica 100 mg in morning 150mg at night
Zolpiderm 10 mg at night
Omeprazole Dr 20mg 2 x @ day
Camrese .15mg/0.03mg 1 tab once a day
Tramadol 50 mg 1 tablet 2 x @ day
Naproxen 500 mg 1 tablet 2 x @ day
Sertraline HCL 50 mg 1 tablet at bedtime
Pancreaze 21,000 units 2-6 with each meal 1-2 with each snack
Fentanyl patch 100mcg Apply patch once every 60 hours
Levemir pen 40 units at bedtime
Humalog 4 units per 50 over 150 and 1 ui per 5 grams of carbs at meals
Odansetron 4 mg 1 tab every 6 hours
Losartan Potassium 100mg 1 tablet @ day
Hydroxychloroquine 200 mg 2 tablets @ day
Savella 25mg 2 times @ day
Metaxalone 800 mg 1 tablet 3 times @ day
Prochlorperazine 10mg 1 tablet 2 times @ day
Metoclopramide 10mg 1 tablet 3 times @ day before meals
Advair 250/50 1 puff 2 times @ day
Pro-Air HFA Inhaler As needed
Lorazepam 1 mg 1 tablet @ 12 hours
Morphine Sulfate 100mg/5ml Soln – 1/2ml by mouth @ 2-4 hours as needed
Albuterol Nebulizer 3 x @ day
Please note that I am not a doctor, psychiatrist, or psychologist. My opinions are personal only.
Please help me to get my surgery any little bit helps: http://www.youcaring.com/medical-fundraiser/Fighting-Chronic-Pancreatitis/26044
Resource for the Disabled : http://www.disabilityhelpsite.org/governmentbenefits.htm |
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hedap Posts: 2009
Senior Member
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phsmom, Disney is so much fun, I hope you find a way to manage. My husband loves it more than my kids ever did. Congrats on little one walking. Having fibro with young ones must be very difficult for you. Young kids don't really understand Mommy needs a nap. lol. hugs, heather Savella 50 mg 2x daily
Lortab 10's 4x day
Tramadol 50 mg 4x day
Nuvigil 123 mg day
Klonopin o.5 mg 4 doses daily
Aplenzin 348 mg 2x day
Abilify 5 mg day
Lamictal 50 mg 2x day
Misc.
Levothyroxine 150 mcg 1x day
Vitamin D 50000 IU's 1x weekly
Pravastatin 10 mg day |
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