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jfibroscks Posts: 2
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hi, my dr. won't support me and disability, not because im not disabled but he just doesnt get involved with disability. i have been going to hime for over 5 yrs. i am so upset, does anyone know a dr. that treats fibro and or arthriis? in the St. Louis, MO. area Post edited by: jfibroscks, at: 02/15/2012 09:34 AM |
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mem1318
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 All he has to do is fill out the freaking paper which is not a lot. He may only get paid $20 but it is not that hard. Until you find some oneelse see if he will do a rfc form for you. You can print that from the SS web site. Just give his info to SSD, let them send him the request and see what he does. Also if you have an atty they will also reguest records. Good Luck |
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Plo83 Posts: 1315
Senior Member
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Wow what a horrible doctor. I hope you find yourself a more compassionate and humane doctor soon. I am not a medical doctor. Anything said on here is my personal opinion. Seeking help from a health professional is always for the best!
** I have a broad knowledge about psychoactive medications and the mind since I have studied psychology/therapy. Any information that I give concerning any medication is to be considered generic since everyone reacts slightly differently to any foreign substance. I do not fully know your health history/case. Any suggestion that I made which peaked your interest MUST be discussed with your doctor. Do NOT change your medication intake based on any information which was not provided by your doctor. All that we can offer on MDJ is suggestions to discuss with your physician. |
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FibroCFS Posts: 1487
Senior Member
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Welcome, Try healthgrades.com. I used it when I moved from PA to NM. When you call make sure he/she treats Fibro patients and is willing to be involved with a disability case, most are. Make sure all copies of your records are transferred. It really helps the next doctor pick up from where you are and not start all over again although your new doctor will probably run all new blood tests to be sure. Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt or Aviane (Hormones) PM Severe Hot Flashes
Naltrexone 1.5-3-4.5 mg (Start low 4 weeks to 4.5)
Fibromyalgia - Off Label Use - Still Experimental
Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.
D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 200mg PM
Malic Acid 800mg AM
Vitamin C 1,000mg AM/PM
B1 Capsule 100mg AM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM
Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions. |
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hatbox121 Posts: 10647
Group Leader
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Hey there. I don't as I'm not in that area. I did however, go through my disability fight with all my drs being like that. I won anyway. But they all refused to get involved with the SSA. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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FibroCFS Posts: 1487
Senior Member
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Also, is your doctor a Rheumatologist/Specialist? Rheumatologists treat Fibromyalgia, PRIMARIES are NEVER involved with Disability paperwork. Post edited by: FibroCFS, at: 02/15/2012 11:39 AM Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt or Aviane (Hormones) PM Severe Hot Flashes
Naltrexone 1.5-3-4.5 mg (Start low 4 weeks to 4.5)
Fibromyalgia - Off Label Use - Still Experimental
Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.
D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 200mg PM
Malic Acid 800mg AM
Vitamin C 1,000mg AM/PM
B1 Capsule 100mg AM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM
Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions. |
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mem1318
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Fibro, My PCP was my stepping stone. My Rheumy was not backing me up at all. But I won. Think my age was a big plus also. |
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FibroCFS Posts: 1487
Senior Member
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I had the best Primary in the world, but he said he does not get involved because Disability wants the information from the specialists. They can go that extra mile for you, a letter or co-ordinate things with you. But it all comes down to your paperwork from specialists, their records and tests. If the Primary decides to submit tests in your behalf they can do that too but Disability does not rely on the Primary, they rely on the Specialists. So that is why my Primary never got involved. Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt or Aviane (Hormones) PM Severe Hot Flashes
Naltrexone 1.5-3-4.5 mg (Start low 4 weeks to 4.5)
Fibromyalgia - Off Label Use - Still Experimental
Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.
D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 200mg PM
Malic Acid 800mg AM
Vitamin C 1,000mg AM/PM
B1 Capsule 100mg AM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM
Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions. |
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mabri Posts: 4710
Group Leader
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jfibroscks, I cannot believe a dr would just say "I don't deal with SSDI" That is ridiculous! I agree, if the information is requested from him, he will have to provide it. He can't tell the court system that he doesn't wanna... Like RW said, it's a form..It's not like you are asking him to go to great lengths, or out of his way...the nurses fill out the forms anyway, all he has to do is sign...Can't stand drs. BTW, Welcome to the fibro group. Sometimes i get so upset by these things that I forget what I was supposed to be doing, which is making sure you have been welcomed and let you know we are glad to have you as a part of our fibro family. I urge you to read some of the older posts as there is a lot of good info there. HUGS Please do not take anything I say as medical advice. I am not a doctor.
**Becky** |
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brimrn2003 Posts: 52
Member
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This is something I have been thinking about also. I am a home health nurse and it is horrible to have to be in and out of your car. Also I have been getting in trouble lately for forgetting meetings and things like that my "fog" only seems to be getting worse. I forget to pay bills. I am only 31 and not sure how much of a fight it will be. My mom had breast cancer and we had to appeal hers and get a lawyer and all that. |
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