Fibromyalgia Support Group

Hey, I've been thinking of this for a long time and I don't know if it would be okay or not, but I'm sure someone out there would know. What if we started some sort of list of pain clinics that work with us? Maybe roy would know if we could and how we could do this. So many of us waste our time and money in the wrong place and this list obviously would be no guarantee, but it might help or could we list where we live i we have any good ones and not list who and have interested parties pm us if they live in our area. If we can someone let us know. I am lucky because I have had two good ones and one okay one. Just needed something closer to my house and just found him and changed insurance. I don't want to break any rules so if it's a no let me know and I wont do anything and actually don't know how to do this anyway. Hugs DeeDee

Please anybody, could I get some opinions or directions on this topic. DeeDee

I see a LLMD/IM Dr. for my CFIDS. I know on the Lyme Board, the Leaders have an active, "GOOD" list. A new comer can request a Dr. by telling the leader where they live, their age & length of time infected.

The leader then PM that person a list in their area so no info is posted on the board. If a person has a bad experience, they can PM a leader & let them know. Too many complaints, the Dr. is taken of the "GOOD" list.

I hope this can help.

Well leaders and Roy, is this something we could do. I'm in so Cal so I'm probably one of the lucky ones in that there is always another pain doc and even then, I have two for the bad list and two for the good. I don't work for a doc or for anyone for that matter and am on full disability. Please us know how we could do this without looking like nuts, it's just that over and over I see fibromites on her who got from bad and don't have the money to waste on another jack ass. I do see thenegative though. Someone could be good for one patient and not another, but at least it would give patients somewhere to start. DeeDeee