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tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

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FMS ForumsGeneral & SupportThank you all for all the support...I am at a loss
01/29/2009 09:16 AM
painfree4life

I couldnt possibly answer all the wonderful comments from the people opn this site. I had a bad day the other day.. I woke up after writing how I felt, and asked some questions . Dear Lord..there were 50 replys. I am overwhelmed by the love and support I had gotten. WOW what a site....and what a beutiful thing to have for people in this condition. Thank you all. I will try to reply to all of these wise and wonderful supportive emails..Thank you all from the bottome of my heart. To answer some of the questions. I have two boys, 6 and 15 months. My 6 year old is a very hyper and an ADD type of child...I yelled at him like a monster the other night becuase he continues to hit him, and he doesnt listen... So its h*^$#. I have talked to him till Im blue in the face. He is a wild child. I blame myself becuase I work all the time, and he says I dont spend enough time with him. When I am home I am so tired I sleep.
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01/29/2009 09:59 AM  Top
Adewyn
Adewyn  
Posts: 5027
Group Leader

Don't beat yourself up over this.. i have two boys age 16 and 14 you will make it thru.. i felt like that as they were younger felt like all i did was yell my oldest was the hyper one the second one was the laid back one... just be firm when you need to take deep breaths when he starts to infuriate you .. after awhile they find it funny that you are angry almost like they do it on purpose... and they do...when he does something wrong take a deep breath and put him in his room for a time out or a chair or a corner until you have a chance to calmly speak to him... and when you speak to him get down to his level (eye level) make him look in your eys and tell him why he was in the corner and what you expect from him and make him apoligize and give him a hug... it works...takes time but it requires less anger from you and you arent wasting the precious energy we all seem to lack...and when you have time sit and read with him (use to do this everynight before bedtime) they could pick a book each or if i had more time a short movie and either sit and watch it with them (catnap for me) or read them a book..

and the days you have off go to the playground and let them run.. or throow them out in the snow..(go out in the snow with them for 15 minutes and start a snow man.... on the days off make sure you get a nap in (watching a movie with them *Wink*)

i hope this helps.. i know the tired feeling you have with to young kids.. i have thalasemmmia(which is low blod count very anemic) always wipes me out and then diagnosised with chronic fatigue and now this Fibro ..let me know if you need any other ideas.. i know it is tough hang in there they are worth it Smile and so aren't you Smile

Hugs


Previous discussions I participated in:
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01/29/2009 10:32 AM  Top
painfree4life

Thank you so much....really you made a difference, and thats wonderful...
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