Fibromyalgia Support Group

Hidy Ho everyone - just wanted to give you an update on my eventful day yesterday.

I had the EMG yesterday and I am so fortunate in that I have been granted such good doctors. Like I've said, I love my new Rheumy and the Neurologist I saw yesterday was equally as great. The technician did the nerve conduction part and then told me that the Neurologist was going to come in. I was shocked, quite frankly, as I didn't think I would be seeing the doctor at all.

Doctor came in and did the needle part. Of course, I was PETRIFIED and I told him that. I tell ya' though, I know it was God because I really had nothing to fear because of the way the doctor handled this. He would start talking to me and start mildly thumping the area that he was going to stick and would then start telling me a story and then ask me a question. When I would start talking, he would then stick me. Then he would also start telling me really interesting stories or telling me jokes and then start telling me what I needed to do. Of course, the part after the needle is inserted IS by far the worst part, but before I knew it, it was over. Like I said, I give God and this doctor all the credit for that. He had such a wonderful bedside manner and was really funny...so it was pretty much a combo of tears and laughter.

Doctor told me that there were some nerve abnormalities at first, but borderline. He went on to tell me that, at first, he was thinking that perhaps it was a pinched nerve in my back BUT when he did the muscle part, he said that there was no doubt that there were muscle abnormalities.

Right before I left the room, he came back in and told me that he was calling my Rheumatologist immediately and telling him the results. So I looked at him and said, 'So this is muscular?' He shook his head and said, 'You have a muscular disease. Just remember that I did all of this on your left side as you will more than likely have a biopsy done and it must be done on the opposite side.'

So that's where I am at now. I really wasn't experiencing much pain afterwards, but good golly, this last night and this morning was VERY interesting. My muscles are EXTREMELY weak and I am just really tired and of course, have muscle pain.

I was really taken aback that I got an answer so quickly. Of course, I prayed ALL the way there and as usual God was quick to respond to my prayers and for that I am truly grateful. I was afraid that I would have to wait weeks to find out anything from Neurologist. Like I said, I am in awe that he told me the results right then and that the doctor actually did the testing. Now, I just have to wait on Rheumatologist to call to point me in the next direction.

I'm anxious, apprehensive and of course, scared, but I feel blessed in that I am one step closer in all of this. I'm trying not to dwell on it too much.

I am sooooo very, very sorry for all of you who had such horrible experiences with this same test. I would blame the person that did it to you. The doctor that I had needs to teach classes in this.

You know as crazy as this sounds, God is teaching me so much through this. Humility, patience, how important friendship and family is, how life really can pass you by quickly if you allow it, enjoying everyday that you have, just to name a few.

I know I haven't been on very much here lately and when I have, I haven't been of much help and for that, I apologize. I value each and everyone of you and your friendship - don't know what I'd do without it. All in all, I know that whatever the final diagnosis is, I know that you guys will be there. I am a very blessed woman.

Hugs,

Kay

Kay, no need to apologize. You have been going through alot. I am so happy that the test went so well for you. I am a big believer that the right docotr can make all the difference. I am also happy you are getting answers. I really hope when you are done with this that they will be able to either fix or at least be able to provide you with more comfort. I am interested to know what they do because as you know I have been through all of that and so far your results have been similiar to mine. I am wondering if iit would be worth going through it again now that I have a good doctor. I hope you do not have to suffer through too much more. Stay on top of those doctors when they do the biopsy and make sure they do it on the side they are supposed too. You are sounding very positive and that is great. I know how much of a struggle that is. You are a very strong woman and this too shall pass. Hopefully with some very good results. You are in my prayers.

I am glad to be on this web site, it is teaching me on what I must do for the sake of others as well. I do not have a problem sharing what I am going thru with the doctors visit, the meds, etc...

My next step to also see a neurologist before my health coverage is ended.

Glad the test went well. Hopefully they will find something treatable and get you back on your feet.

Kay, I'm so glad that all went well and you got your results quickly. Hopefully when all is said and done there will be a treatment to help eliminate your pain.

Don't feel bad for not being able to be here as much as you would like. Here lately my back and legs have been hurting so much I don't want to sit or talk.

You're in my thoughts and prayers, hoping you will soon get some relief.

{HUGS}

Donna

What is an EMG? I have an appointment with a Neurologist for next week Thursday. This coming Monday I have an appt with the Rheumotologist.

And next week Tuesday I have an appt with a Dr at a Sport and Spine office.

So far I have to gather all of my inform. because I have whats called CHIARI 1 Malformation, Fibro and Arthritis.

Help me with some information so that I make all of these appointments as smooth as possible since I believe I will be made a part time employee and on the last day of working full time I loose all medical/dental benefits. And vaccations days, sick days and my mine.... No just kidding !

Kay, yours was the first post I read as I sat down here today and what a happy and informative one it is.

I am soooo glad to hear someone here finally say that they love their dr. and have so much confidence in him/her. I know, from reading many posts here in the forums, that I, too, am very fortunate to have a caring and informative PCP and Rhuemy.

It definitely sounds like you will now get the care and treatment that you need and deserve. I sincerely hope others fighting Fibro (and other diseases) will also find competent medical professionals to help them as well.

{{{HUGS}}} Marilyn

Kay weren't you dx'd with poly something? Is that what all these tests are for now? What is the biopsy for? Gosh, I hope you're going to be okay. I'm glad you have drs in whom you have confidence. That's half the battle there. I have lost confidence in my rheumy because he didn't want to approach the fibro. He just wanted to give me the epidural in my back and see if it worked. If it did, yahoo. If it didn't, I don't know what was to be next. It worked pretty well for my legs but the rest is still with me. I don't know where to go next. Maybe I'll have to go to Spokane but that's a 2-hour trip and you know how car trips are on fibromites. Well, anyway, I'm happy for you that you didn't have a lot of pain with your emg. I hate those things.

I'm so glad your test went well Kay and it does sound like you have a wonderful doctor. Good for you for keeping so positive and upbeat about it all.

I hope you're not feeling residual pain now...I know sometimes we do have delayed reactions and you don't take pain pills. Take it easy, relax all you can and lean on your rock, Mac today!

You're in my thoughts...

Sistrozzie, my rheumy thinks I may have a form of myositis. There are different type of myositis - he is leaning towards one called polymyositis. It is an autoimmune disorder that attacks your muscles. The EMG test was for that and it did show the normal abnormalities for muscle disease. Next will more than likely be the biopsy. Still waiting on call from rheumy. I'm so very sorry for you and others that cannot find good doctors to treat you that way that you should be.

It's so nice that you all say I'm so strong and positive, but that has flown right out the window. I feel bitter, cynical, angry, depressed...not strong at all. When I get like this, the OCD kicks in big time and makes me fearful of everything. It's easy to cover it sometimes with a joke or a really good analogy, but you guys give me more credit than I deserve.

So basically right now I'm saying that this is all a facade because I basically feel like I'm gonna break. I HATE playing the victim and HATE being a complainer and I don't want this to sound like I'm trying to do that right now but for now, I'm not strong at all. I feel very alone.

Mac is struggling with not only this 'thing' but with my fears and OCD as well and even though he may be that 'perfect husband', he has a tendency to take his frustration out on me. So on that happy note, he is now sleeping in the guest room tonight because we've been fighting all evening.

You know to be totally honest, I'm sick and tired of people trying to take away what I am dealing with right now. **By people, I mean family/friends...not you guys.** I'm tired of what few people call me, trying to 'top my story.' I have always been THE STRONG ONE in my family. I was always the one who always takes care of everything. I always have all the answers. I DON'T HAVE ALL THE ANSWERS.

So naturally when something happens to me, it goes in one ear and right out the other. I'm tired of everyone not allowing me to FEEL what I need to feel right now. Yeah, I don't want to get out of bed; yeah, I am afraid of getting sick right now with a cold or something because I know it may screw things up; yeah, I'm tired of fixing everyone's problems but my own; yeah, I'm tired of people getting butt hurt because I am not giving them enough attention; yeah, I'm tired of being tired.

If I didn't have my faith right now and wasn't able to lean on that, I WOULD be all alone, but I do have God to lean on and help me through this.

Residual pain? Yep, big time. That and I can't even walk from the bed to the bathroom without getting out of breath from fatigue, muscle fatigue and weakness.

Sorry for venting but I am so tired, physically, mentally, and emotionally. Again, I hate the whole whiner thing, and this has nothing to do with you guys - I am speaking about others in my life (family/friends, you know what I mean).

It's weird - I feel so alone, but I wish everyone would just leave me alone.