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 "I have Cystic Fibrosis " (Psalm121)

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FMS Forums › General & Support › A song I wrote about Fibromyalgia and its effect
01/20/2012 02:44 PM
alonensidemyhead
alonensidemyhead
 
Posts: 16
Member
I wrote this song about 6 months ago. I am not usually one to share my music as I am not the greatest singer and I only write for therapeutic reasons, but I see how much my poems can help people so I thought I would go ahead and share. I thought about re-recording now that I am a little better at guitar and singing and such but I felt I should leave this because it was probably the most emotion I could put into it.

This is unlisted on youtube so only those with the link can see. It also has a painting I did to show my struggles as well. The painting is wrapped with barbed wire I made.

http://www.youtube.com/watch?v=7hFDh3qLXGw&feature=g-upl&context=G268cb69AUAAAAAAAFAA
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01/20/2012 03:41 PM  Top
copgirl125
copgirl125
 
Posts: 107
Member
That is wonderful! Had to listen twice Smile
Taking it day by day!

01/20/2012 03:44 PM  Top
LilyRose4
LilyRose4
 
Posts: 261
Member
This is absolutely beautiful...it brought tears to my eyes. You have really captured the pain that is in our hearts. Thank you so much for sharing and keep creating and please keep sharing with us! xoxo LilyRose

01/20/2012 04:17 PM  Top
1331
 
Posts: 101
Member
Beautiful....I felt every word you sang. You have a great talent. Thank you so much for sharing. Please continue to follow your dreams and share with us.
I have found the paradox, that if you love until it hurts, there can be no more hurt, only more love.
Mother Teresa

01/20/2012 04:54 PM  Top
mabri
mabri
 
Posts: 4710
Group Leader
Wow...That was awesome! The picture only added to it the prison that we feel like we are in sometimes. As the others have said, please continue and we definately want you to share with us. You have nailed it!! HUGS
Please do not take anything I say as medical advice. I am not a doctor.

**Becky**

01/20/2012 10:28 PM  Top
FibroCFS
FibroCFS
 
Posts: 1434
Senior Member
That was very, very good. I really liked the art work that went with it. Thanks for posting this.
Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt (Hormones) PM Severe Hot Flashes

Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.

D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 400mg PM 1 Upon 1st Awakening at Night
Malic Acid 800mg AM/PM
Vitamin C 1,000mg 2x day
B1 Capsule 100mg AM/PM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM

Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
Omgega Fish Oil Capsule 1,000mg


I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions.

01/21/2012 02:25 PM  Top
faieriemama
faieriemama
 
Posts: 3345
VIP Member
I'm an Advocate
Wow what a truly amazing song, you sang what is in my heart, it is sad yet beautiful too. Raw talent, keep singing and writing what is in you for the world to hear... they need to hear it and be blown away by it. Please share with us anymore songs you write. Hugs and Love.
I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.

Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das

01/21/2012 04:11 PM  Top
summerthump
summerthump
 
Posts: 13
New Member
Your song was delightful. Those of us that suffer with this pain absolutely understand your poem/ song. I couldn't have said it better myself. I wish I felt. Enter myself to give you some positive words. Just know that I understand totally what you are experiencing. Hang in there chat soon. TeePinch

Previous discussions I participated in:
hmmmmm, something to think about...

01/22/2012 10:06 AM  Top
leorising
Thank you for this. I was supposed to go hang out with a bunch of friends today, and have to call off because I feel like crap on a cracker.

My motto lately is, "I'm not living, I'm just waiting to die."

Your song and especially your drawing moved me a great deal. Thanks again.

01/22/2012 04:18 PM  Top
mrsmadtux
mrsmadtux
 
Posts: 9
New Member
This is so beautiful and moving. I'm glad you kept the original version, it gives it a fragile vulnerability that conveys the feeling of hanging on by a thread. Keep singing and writing! You are very talented and I think your songs could touch many and increase awareness of FM and other autoimmune disorders. You put the Bra(ve) in Bravo!
Mrs. Madtux ~Fibromyalgia, Undifferentiated Connective Tissue Disease (pointing to Lupus, Polymyositis, and Sjögren's Syndrome).

Mother of depressed & addicted teen.

Raven haired super-hero

Previous discussions I participated in:
My name is Jenifer, and I have fibro-ism
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