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FibroFemme Posts: 3
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hi I'm new here and I was wondering if anyone knows of places for water therapy in northern nj. I've tried acupuncture but that seems to work only on smaller concentrated areas like migraines and digestive issues. The widespread pain seems difficult to treat. I currenlty take savella 2x/day, tramadol 4x/day, 6,000iu of vitamin D3 every day, magnesium, calcium and zinc supplements, synthroid, ambien, maxalt, clarinex and protonix. I've tried Cymbalta, Lyrica, Neurontin, Lexapro, and Ativan. I'm in the middle of the worst flare up I've ever had. It started the second week in December and I don't know how long it will last. I feel like I have severe flu symptoms every day. I'm getting migraines 2-3 times a week. The fatigue is so strong but the more I lay down, the more my body hurts! If I push myself to do things like pick up the kids from school and do a load of laundry, I feel like a truck ran over me. I've been out of work for three weeks. I've had fibro for two years after getting Lyme Disease. I need to get better and get back to work! I'm a teacher! If the pain doesn't do me in, the guilt will! Any advise??
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Moiaddy Posts: 384
Member
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Hi and welcome to the group.....there is a nice bunch of people here.... Sorry I'm in Oregon but my Fibro Specialist suggested warm water pools for arthritic people there is one in the town I'm moving to, but in the event you can't find one, because in the town I currently live in just has a standard pool...try the hot tub at the pool...even if you just stand and walk in the hot tub...that is the advice she gave me... Let us know what you do... Big Hugs... Victoria
"Every soul you meet has a lesson to learn from you and a lesson to teach you, be giving and be receptive" ~Me
My quote above is copywrited and all my postings are just my opinion and are not medical advice, please talk with your doctor :) |
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mem1318
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Hello and WELCOME TO THE GROUP. I hate that your are having a medical issues. Neither do I live in your State, here is a few things you may be able to look into. Is the a YMCA, Community Center, Rush or something like that there. The Community Center would be a good choice most of them does not cost much if any charge at all. Also some physical therapy has the pool. Dr may have to give you a RX the use. Migraines, I also have them daily. How is you BP doing a low BP can be just as bad as a high one. Some of you meds may be some of your problem. Try taking just the synthroid first, after waiting the 30 mins. Eat something before taking the others. Emotional and stress can do this also. Migraines is one of the symptoms of Fibro. Blessings |
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hatbox121 Posts: 10500
Group Leader
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Welcome to the group! I'd suggest either finding a local Y or parks and recreation center for an indoor pool. If you want actual therapy by a licensed therapist, you should contact your dr. They require referrals like regular PT. Or all the ones I know do anyway. I'd also suggest contacting your dr about the migraines. Some OTC things for migraines are putting an ice pack on your neck or forehead, placing your feet in a warm water bath or on a heating pad, or rubbing the area between you thumb and forefinger. Some OTC things for the rest are heating pads(or ice packs whichever you prefer), epsom salt baths, stretching exercises, and getting enough rest. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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FibroFemme Posts: 3
New Member
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Thanks! I will look into some local places and pt as well. I hope you all are feeling well. |
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broken Posts: 9231
Group Leader
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another thing if it is affordable is make a deal with a hotel with an indoor pool for so much a week for use.. I encourage water theropy because for me it is great,though I will warn you when you begin you will feel so sore,because your muscels are tighter then you even know..another thing is make sure they clean their pools I went to one and I promise you there was skin floating around,yuck I couldnt keep going it was gross,but I did get a pool from Wal mart and live in it during the summer it is great we all have alot to give if one gets the help then some of this suffering is worth it..
remeber I am not a doctor I just say what I think |
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hatbox121 Posts: 10500
Group Leader
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We also have one of the larger above ground pools. My daughter's rheumy insists that she do some kind of swimming since that's easy on the joints and exercise. I love the pool but for some reason last summer, almost every time I got in I got a migraine. And no it wasn't the chlorine, I do the same thing in the tub. Anyway, I hope you find somewhere affordable for you. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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FibroCFS Posts: 1438
Senior Member
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Welcome FibroFemme, I live in NM and did live in PA so sorry, I do not know of anywhere you can go. In PA there was a hospital near me that had an indoor pool they would do PT at. See if your doctor knows of any facilities because that is how I found the one in PA and here in NM I found them through my doctor also except they are too far away and I cannot get there. Acupuncture never worked on me neither. I think your explanation of it working on smaller concentrated areas, not widespread pain (which basically has no originating cause like a strain or nerve damage) is correct. Tramadol 50mg AM Noon 6PM Fibromyalgia/Pain
Fludrocort .1mg AM & 6PM Hypotension
Zolpidem 5mg 6PM & 8PM RLS/Sleep
Gabapentin 300mg 6PM RLS/Sleep/Fibro
Gabapentin 100mg Upon 1st and 2nd Awakening at night RLS/Sleep/Fibro
Simvastatin 20mg 6PM Cholesterol
Tizanidine 4mg Upon 1st Awakening at night and 2mg AM and PM Fibro/Sleep
FemHrt (Hormones) PM Severe Hot Flashes
Voltaran Gel as needed on hands and rib cage.
Ibuprofen or Naproxen as needed for hands, arms, feet, legs, knees, rib cage, back.
D3 1,000IU & K2 90mcg - Sublingual
D3 Gel Caps 2,000IU AM 4,000IU PM
Calcium Citrate 2,000 2x day w/food
Manganese 10mg PM And Upon 1st, 2nd, 3rd Awakening At Night
Magnesium Taurate 400mg PM 1 Upon 1st Awakening at Night
Malic Acid 800mg AM/PM
Vitamin C 1,000mg 2x day
B1 Capsule 100mg AM/PM
Liquid Vitamin B Complex - Sublingual AM
Includes: B2 17mg, B3 20mg, B5 30mg, B6 2mg,
B12 1,000mcg, Folic Acid 40mcg
Benfotiamine 300mg PM
Chromium Picolinate AM
Bromelain and Broad Spectrum Enzymes before meals.
Cranbery Extract Capsule w/C 400mg
Omgega Fish Oil Capsule 1,000mg
I am not a doctor nor do I work in the medical field. My opinions and suggestions are just that, just what I think and have to offer that I hope is helpful to you. Always rely on your doctor when making medical decisions. |
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FibroFemme Posts: 3
New Member
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Thanks for all the suggestions. I didn't think of some of them! I will post the results of my search! |
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Adewyn Posts: 4967
Group Leader
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the first few times you go to water therapy when you get out of the water you will feel like lead this is normal  good luck! |
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