MDJunction - People Helping People
 

Why wear a ribbon?

 
"My mother suffered from alzheimers as well as parkinsons, I suffer from fibromya..." (Lancs)

MDJunction to me

tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

more testimonials
Fibromyalgia Online Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
Join This Group
Group Home   Forums   Articles   Members (7603)   Diaries   Videos   Leaders   Guidelines
FMS Group RSS Feed
FMS ForumsGeneral & SupportMoving is agony
01/08/2012 08:57 PM
Kaileybb
 
Posts: 7
New Member

We are in the middle of moving. All our so called helpers bailed on us so it was me and my hubby. To say I am sore and tired would be an understatement. It so difficult when I cant find pain relief and still have no appointment with a specialist booked. Its been 10 months and still waiting!! Sorry, just feeling a bit sorry for myself. No one really understands FM and i feel very alone. I try not to say much to my husband as I dont want to complain all the time. But with our weather changes (we get chinooks which means temperatures can increase 25 degrees in an hour and then back done again a few hours later or the next day) I get wicked headaches and sometimes migraines. I am so tired.....
Reply

01/08/2012 09:41 PM  Top
ushie
 
Posts: 1928
Senior Member

Moving is awful even when you're 100% fine! You're not alone here; can you show your hubs some of the posts and linked videos? Look for hatbox's posts, among others. Can you take a nice hot bath and drink some tea?

01/09/2012 06:52 AM  Top
hatbox121
hatbox121
 
Posts: 10501
Group Leader

I'm sorry that you are hurting so much. Sounds like you overdid it a lot! Can you take epsom salt baths? That might help. It should relax your muscles and get that soreness out. Or using a heating pad when you sit. I know you have loads of unpacking to do now, but try to only do the ones you HAVE to do, like toothbrushes and plates and the like and save the rest for later. Take breaks in between boxes too.
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

Previous discussions I participated in:
is it bordem
Pain in the BODY!!
Hearing date letter

01/09/2012 07:43 AM  Top
broken
broken
 
Posts: 9238
Group Leader

wow what sever weather changes must be hard..we all agree weather changes are not kind to us..

I am so sorry your help bailed,I guess telling you to take it easy wont work since you are moving..

If I havent welcomed you yet Im glad you found us,one of the great gifts this group gives is the fact you are no longer alone...

we all have alot to give if one gets the help then some of this suffering is worth it..

remeber I am not a doctor I just say what I think

Previous discussions I participated in:
is it bordem
Pain in the BODY!!
Fibro and Divorce

01/09/2012 07:50 AM  Top
jmbrooks0819
jmbrooks0819
 
Posts: 159
Member

moving is such a pain, add in fibro and no help and it is torture. i know how u feel, no one understands fibro and some people dont want to be bothered to understand.

i am moving too, to hawaii from the midwest! i dont have help either, my husband is in hawaii and i am at home with our 3 kids, (ages 8,6, 7 months).

he is in the army so we will haqve movers come to take our stuff and pack some things for us, but we can only take a certain amount of things so i have to go through every thing to decided what is important that i need to keep and what to throw out (which is going to be a lot and include lots of furniture!).

my mom and grandmother offered to help, but when i asked them to come over and get started with me, they were mad and appalled that i had the nerve to ask them!

Then my mom stops by and her and my grandma call to say i havent gotten much done and i better hurry up and get packing, esp since i am not working right now. ! i tell them that it is really difficult with the baby, the kids, and the fibro, to do more than clean cook and care for them (which is hard enough!).

Im sorry that you are in a similar situation. it would be nice for friends and family to understand what we go through, but unless they are in our shoes, they never really will. and attempting to explain it to them only annoys them.

but we will both find a way to get it done in the end, those of us with fibro are fighters and are somehow capable of doing things we never thought possible. Just try to take it slow and do what you can when you can. (sorry not trying to steal your post with my vent!)

Jamie

01/09/2012 07:52 AM  Top
ouchee
ouchee
 
Posts: 604
Member

I'm so sorry to hear about your pain. I understand totally. The last time we moved I was going through a horrible pain and had some real bad problems with my back. Fortunately for me, we did have help. I don't know what I would have done if we didn't. I wasn't even allowed to pack up the house at all. All I could do was lay in bed. It was so bad that they even had to help me take care of my mother at that time.

I really do feel for you. I'm sooooo sorry. I wish I could have hired a crew for you to get you through!!!! Hang in there the best you can. Smile

Carol

May today there be peace within. May you trust God that you are exactly where you are meant to be. May you not forget the infinite possibilites that are born of faith. May you use those gifts that you have received, and pass on the love that has been given to you.....May you be content knowing you are a child of God.....Let this presence settle into your bones, and allow your soul the freedom to sing, dance, praise and love. It is there for each and every one of you.

Mother Theresa

01/09/2012 08:33 AM  Top
anitafolkers
anitafolkers
 
Posts: 305
Member

I'm so sorry you're feeling alone. I am to a newbie in this group, honey I feel for you.....I'll be moving here in about a week and I dread the move as I'm gonna end up feeling like you're feeling......and I totally understand trying not to complain to your hubby, same here, I had found a letter out in the internet world that you can revise and send to family and friends about how you feel, I sent this and so many understand, including my hubby, I sent via email to him too. I can send it to you via persaonl email, and I'll friend request you. This group has been very supportive, I've been with the group a short time but you can vent, complain, tell funny stuff, etc, these people are here for us and are in the same boat as us. Dont give up. Hugs to you.I'm not a doctor, just giving thoughts on life experiences and what works for me.
~mama fockers~
call my hubby gaylord lol
--------
cymbalta 60mg
xanax 0.5mg
flexeril
dicfluenec??
fioricet 50/325/40mg
propranolol 80mg
omperazole 40-60mg
imitrix 100mg
Pro air inhaler
hot baths
and a partridge in a freaking pear tree...
~im no dr and have no means of dx anyone. i say whats on me mind. i may offer suggestions on what may work for you if ive tried it and it works for me. not everyone responds the same. so on that not..~ ..~blessed be~ :-)

Previous discussions I participated in:
new to me symptom
New
Swollen and Frustrated

01/09/2012 09:34 AM  Top
Kaileybb
 
Posts: 7
New Member

Thank you all so much for you support. I am feeling really let down by my friends and my sister. I asked my sister on Saturday morning if she could come and help as my friend was unable to. She told me she was too tired!! She is a massage therapist and works only 3 or 4 hours every other day. Really why is she so tired! I am up at 5:30 every morning to be in a work for 7:30am and I dont get home until 6pm. Then I am helping pack, taking care of my three dogs. Now that is tired.

My dad ended up in the hospital last week for heart problems and we had to run my mom back and forth between the hospital. I feel stretched so thinly. It was big of my sister to take my mom twice!

The move is so hard as my husband is a stroke survivor and while he is very mobile, she does not have the energy and strength he use to have. We had to declare bankruptcy in Oct as he cannot work and I was being harassed and had to leave my last job. Its been really hard. I am so happy to be working again (been back for a month) and my time off was only 5 weeks. I am embarassed that we had to do this but our house devalued by $130,000, medical costs etc.

I love the fact that this forum is available as chatting with people who get it is so refreshing. I have a hot bath with espom salts every night and sometimes 2 times a day on the weekends. I also stretch and walk.

JM: I get how family can be so difficult. I could spend hours talking about the dysfunction in my home. I made the decision to distance myself as they are too toxic. I slowly removed myself from visiting or calling so frequently. It has been awesome. Baby steps work well and then they dont notice. Also, you might shock them when they make a statement to say "and really, how does that help me?"

Ciao my friends.

Sara


Previous discussions I participated in:
In Canada, on Dr. wait list - suffering alone
Reply

Health Topics: alone
Share this discussion with your friends:
Members who viewed this page also read:

FMSFMS ForumsGeneral & SupportMoving is agony

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved