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anamore"MDJ has saved my life, I was a recoverying addict, feeling so alone and helpless, then I found MDJ. Sharing my story w/ others and getting support and comfort has made me a stronger person. Being able to help someone who is all alone and in so much pain is so rewarding
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01/16/2009 08:46 AM
Donyia
Donyia  
Posts: 184
Member

I start work again tomorrow morning at 6am for 5 hrs. I am nervous and I don't really want to go. I hurt all the time already and I know that I am going to be hurting a lot more after sitting there for 5 hrs. I also don't want to struggle with staying awake during that time. People just don't understand how awful that is. I will not have anything to take to ease the pain after working.

I know that I just can't stay at home and hide under the covers, but - - - - - I wish that I could.

I used to love my job and it makes me miserable to know that my job is only about pain right now. That is how I see it. It is not fun - it is not enjoyable - it is only painful.

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01/16/2009 09:08 AM  Top
Mispati3
Mispati3  
Posts: 1024
Member

Donyia, I work part time, too and am very grateful that I don't have to work 8 hours each day. I, too, would love to stay home in bed most days. But I make myself get up and go to work. You know what? Almost always I find that working takes my mind off the pain and I'm glad I went. Maybe that will be the case with you. Good luck tomorrow! ~ Patti

Previous discussions I participated in:
WooHoo!
Hips/fingers
What makes your pain worse

01/16/2009 09:37 AM  Top
redundant33
redundant33Posts: 154
Member

I am sorry that your work has become so miserable. I haven't worked in over a year because of the fibro. I do really miss getting out and having somewhere to go and something to do though. Just try to hang in there and take it a day at a time.

Previous discussions I participated in:
Brrrr Cold Weather
new to the group
MI Fibro Items

01/16/2009 10:44 AM  Top
Donyia
Donyia  
Posts: 184
Member

I am trying. I love my job. I have a very interesting job.

We need the money and I, too need to get out of the house and do something.

I am just tired of hurting so much from sitting there and trying to keep my eyes open. It is like it is a battle from Hell that I am not winning.

Do others feel this way - or am I the only one?


01/16/2009 11:00 AM  Top
McFoggy
McFoggy  
Posts: 393
Member

I haven't worked in a few years but whenever I have to get up and leave the house, which is usually for dr appts, I dread it so much. I find that bathing or showering that morning, instead of the night before helps loosen my stiff joints which makes it easier to motivate while getting dressed.

Good luck tomorrow. I hope you have a pain free day. Perhaps once you get there and start concentrating on work the pain will ease up.

I'll be thinking about you!

[IMG]http://i125.photobucket.com/albums/p65/greygal/maxine13.jpg[/IMG]

01/16/2009 11:08 AM  Top
Iknowpain
Iknowpain  
Posts: 1841
Senior Member

I think we all feel that way from time to time. I am feeling that way now. I have not worked for 2 1/2 years because of fibro and now get disability. I was first told to go for disability in 97 so I fought it as long as I could. I am very glad I don't have to go anywhere right now, but on my good days I go stir crazy. I am always stuck at home unless I am with someone because I only drive if my mother needs to go to the ER and noone else can go with her. Luckily this only happens once in a blue moon. I still have a license and the doctors haven't said don't drive. I have just heard too many horror stories of people getting duis on pain meds, so I choose not to drive. I miss the independence of driving and working and I am sure you would to if you didn't work. I know how difficult it is to work especially on a bad day, but be thankful you still can and be thankful you even have a job in todays world. I hope you have a good day and that it does take your mind off your suffering rather than increase it. I wish I could help you.
Favorite Poem :
It is such a relief when you first find out.
That the pain really does have a name,
And then you will ask (and everyone does),
"Just where can i place all the blame".
No matter the limits, no matter the pain,
There's no evil, cruel "Master Plan".
It just simply happens, It just simply is.
You adapt, and you change what you can.
But even with the knowing the best and the worst,
All the pitfalls the future could hold,
You still have a choice, you quit or you fight.
You determine the story that's told.
And every small step that we take, my dear friends,
Each battle that we slowly win,
Just credits the love and the caring we share
With the FMily that we call our friends.

01/16/2009 11:31 AM  Top
Rainmist
Rainmist  
Posts: 490
Member

I feel that way every day. I'm seriously considering having to go part time. I find having some high energy bits to snack on seems to help a bit with the fatigue - nuts, crackers, cheese, it seems to keep the blood sugar steady. I also find the hypnosis CDs helpful, I've got a couple on calming down and relaxing and I do now think to breathe deeper when it really hurts and I'm zoning out. I wonder how many of us are mildly oxygen deprived a lot of the time, it's difficult to hurt and breathe properly.

Hugs to you honey. Dress up warm, take a favourite cuddly jumper or socks or whatever's most comfortable, hot chocolate or coffee or whatever is your favourite, and take it an hour at a time. I admire your courage in keeping on trying.

Rainmist

Previous discussions I participated in:
Assisted Living Devices
I need a hug!
Having Problems...

01/16/2009 11:47 AM  Top
Donyia
Donyia  
Posts: 184
Member

I know that I should be greatful for a job in today's world and one that I love...and that what makes it even more discouraging for feeling as I do. I don't know if it is just depression today that I am fighting tears or fear of being in more pain tomorrow - then more then next - and not able to breath by the 3rd day. My Dr. does not understand and will not give me anything for the pain at night.....I am already in pain before I even start working - then I get home and do not have anything to take the pain away. So - the next day I start out in more pain and so on and so on. So those 3 days are miserable painful days. so my fear is that I will be right back there this weekend. I do have a tens unit now and I am hoping that it will help me a lot. I am praying that this is all that I need.

I do snack at work on nuts, fruit, crackers and such. I don't want to do that all the time as I have already gained 30lbs since the accidents last summer and I do not want to gain any more....I really want to lose those and more right now.

Sigh.......... Smile

Please forgive me everyone. This is a new life that I am having to deal with and I am not good at it yet.


01/16/2009 12:03 PM  Top
Iknowpain
Iknowpain  
Posts: 1841
Senior Member

I hate to say it and I know it is easier said then done, but I would get a new doctor. Remember, we pay them. They work for us and if they are not doing what we need we have the right to fire them and get a new one. It took me over 10 years, 2 of refusing to see a doctor, and almost dying to find the right doctor. I would never suggest anyone stop seeing a doctor all together, but don't settle for a doctor that is not giving you the help you need.

Also, I hope you did not think I was implying you were ungrateful for your job because that was not my intention.

I hope tomarrow goes better then you think it will and I hope the tens unit works for you. I know it has made a big difference for a lot of people.

There is nothing to forgive you are intitled to feel the way you do and we have all been there. I hope you are getting the support you need. Feel free to PM me anytime if you need to talk. I have had this stupid thing for as long as I can remember and can't remember at the moment (fibrofog) when I was diagnosed. I would be more then happy to help you if I can and if you have questions if I can't answer them, I will find the answers for you.

I hope you feel better soon.

Favorite Poem :
It is such a relief when you first find out.
That the pain really does have a name,
And then you will ask (and everyone does),
"Just where can i place all the blame".
No matter the limits, no matter the pain,
There's no evil, cruel "Master Plan".
It just simply happens, It just simply is.
You adapt, and you change what you can.
But even with the knowing the best and the worst,
All the pitfalls the future could hold,
You still have a choice, you quit or you fight.
You determine the story that's told.
And every small step that we take, my dear friends,
Each battle that we slowly win,
Just credits the love and the caring we share
With the FMily that we call our friends.

01/16/2009 12:41 PM  Top
Donyia
Donyia  
Posts: 184
Member

Thank you so much Iknowpain.

I didn't think that you were implying that. It is a feeling that I have for myself and struggle with. There are people at my job that got laid off - they may be more this month. I feel bad, because I know that they want and NEED their job....and here I am....hurting like crazy and wishing that they would lay me off. It is not a fun struggle to have. My hubby would also think that I was weak. He does not understand what I am really going through.

I have thought about getting a new dr. however, the issue is....this dr has been dealing with my 2 car accidents last summer. They have all the paperwork and dealing with the insurance companies and my FMLA and short term disability people at work. So - it makes it difficult to change. I am going to go to another pain management clinic, because the one that I was sent to - just walked in - said blah blah blah - have a nice day. Did not even say she wanted to see me again. I felt like - what??? Nothing. So - I am seeing a rhumatologist on Feb. 9th and I am giving him a chance, but if he is the same. I am going to another one.

I don't need to be treated like I am insane.....or a druggie.....or I am trying to take advantage of the system. I would MUCH rather have my life back the way it was instead of having to live with this. Know what I mean? I am sure that you do. Smile

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