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11/09/2011 02:21 PM
maykay
Posts: 8
New Member

i keep hearing the word flare up with fibromyalgia...dont really understand it ..do you have flare up or is the pain just all the time...mine is everyday 90 percent of the time..for the last 4 months plz tell me if thats 1 flare up or one everytime i have pain is one
Reply

11/09/2011 02:57 PM  Top
lilachynstiff
 
Posts: 175
Member

Everyone is different. I went through a time last year where I guess I might say I was even in 'remission'. Minimal stiffness, I could work out 5-6 times a week, minimal need for meds and yet I was working full time and taking on an intense grad program. That changed about a year ago. I thought it was just school getting to me but now its over and things are still rough. Some days are really bad so are ok. These past 2 days I feel a bit 'run over' to borrow from another thread. Activity causes some great grief, and yet for me it seems largely about getting enough sleep.

I tend to think of a flare as someone turned on the overhead light when the room was dark. Its shocking and very sad at the time and you just seek to find the dimmer switch.

Gentle hugs,

Julie


11/09/2011 04:34 PM  Top
hatbox121
hatbox121
 
Posts: 10493
Group Leader

Flares do vary between individuals. First off time frame. Some last a day, some last months for the same individual. Secondly symptoms. Sometimes it's an increase in mostly pain, others the fatigue and others the worst problem is an increase in the fog. You have your normal pain levels, then you have flare pain levels. Once you find your normal, you'll know what the flare is because it's a good bit different.
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

Previous discussions I participated in:
heat
Ambien for sleep.
oh so miserable!

11/09/2011 04:38 PM  Top
broken
broken
 
Posts: 9224
Group Leader

for me I have 24 hour 7 day a week pain but it has degrees and with a flair I have more flu like feeling and the fatuig is really bad..but you are not alone its just bad to worse for me
we all have alot to give if one gets the help then some of this suffering is worth it..

remeber I am not a doctor I just say what I think

11/10/2011 12:53 AM  Top
Chocovan
 
Posts: 253
Member

I know for me flare ups are when the pain intensify's to a level that is very difficult to cope with, and then comes the fog and the insomnia and sometimes it lasts for 1 or 2 days sometimes a week. It has a mind of its own and I feel that when I'm stressed usually the flare up occur I'm sure if I was able to control my stress level and sleep properly I might not have has many flare ups but who knows with this sickness. Hope we are helpful to you have a good one hugs Chocovan

11/10/2011 04:17 AM  Top
fibromom23
fibromom23
 
Posts: 172
Member

for me I flare with stress and weather changes...the pain and fatigue are at there worst at this time, I take lots of baths and use my breakthrough meds and pretty much do nothing else because for me time stops and sometimes its just a chore to get out of bed...I hope this helps a little bit...

Previous discussions I participated in:
need to vent....
Where do i go from here?
Hey everyone!!

11/10/2011 05:13 AM  Top
broken
broken
 
Posts: 9224
Group Leader

maykay has you quetion been answerd?
we all have alot to give if one gets the help then some of this suffering is worth it..

remeber I am not a doctor I just say what I think

11/10/2011 06:13 AM  Top
hatbox121
hatbox121
 
Posts: 10493
Group Leader

Pain in FM is commonly constant. However, in a flare up the pain or other symptoms will intensify followed by a remission period of your normal or base pain levels.
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

Previous discussions I participated in:
heat
Ambien for sleep.
oh so miserable!

11/10/2011 12:02 PM  Top
llstrutz
 
Posts: 27
Member

Seem like I always have pain? I don't know what my normal is anymore.

Previous discussions I participated in:
I'm new here.
Sick and tired of being in pain

11/10/2011 12:51 PM  Top
txjen
txjen
 
Posts: 12
Member

I am always in pain and the drs think i am crazy so i have to deal with it all on my own no breakthrough meds or nothing bc they dont believe me
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