Fibromyalgia Support Group

i have so many nerve problems, my toes go numb just from resting on the floor from the weight of my legs, i get pinching, tingling, numbness, burning, coldness down my legs. my butt/legs get tingly after standing up from sitting, i cannot hang my head all the way down forward without it pulling and hurting my spine, the same with my legs, if i point my toes straight and try to stretch it hurts and its all the same nerve pain feelings i get. when i play guitar, my right arm rests on the guitar as i strum and my whole forearm starts tingling. and my hands go numb a lot when im sleeping at night. i am just wondering, because they are finally trying to figure this out (i thought it was my back/spine but now im thinking its just all my nerves in my whole body) and i just want to know if i am searching for answers but its just going to turn around and go right back to the fibromyalgia being the cause. i dont know if nerves can effect your heart too but i feel like my heart speeds up a lot, and its def not anxiety cuz ive pretty much conquered that. i also get this pins and needles feelings in my eyes and my esophagus/throat and its similar to the pins and needles everywhere else. i feel like all my nerves are going crazy. i thought i just had a pinched nerve in my low back but now it just feels like its pinching everywhere, low back, shoulder blades, elbows, wrists sometimes, i am never comfortable no matter what posture or position im in. im losing my mind! 2 weeks and i get mri results for my full spine but is that going to help if its my nerves in my whole body? i dont know what to say/do at the doctors but i just want to make it super clear to them how life disabling this is and how miserable i truly am. any feedback would be great. i only take tylenol and flexeril but they do not do anything for my nerve pain. not even vicodin helps. and i cannot take anti inflammatories as i think i might be allergic so i stopped taking those.

Alone,

I too, have parts of my body "fall asleep" like. I get the tinling and numbness in my hands, toes, feet and fingers. I can't say that I feel it in my eyes or throat, but I know there is some correlation between this and fibro. I also have that same stretchy feeling when I bend my head down. Feels like I am pulling a tight rubberband, and then when I put my head back up, it goes back to a regular (ha) pain. You should talk to your dr and ask him about the nerves and see if he thinks it is fibro, or if you have something else going on, like poor circulation? I know I'm not much help, but maybe someone else with more knowlege will come along. Just wanted you to know that I care. HUGS

Hi there. I am so amazed at reading what you wrote. I joined this group about a month ago and haven't been to the site except for the first week because I was feeling pretty awful and didn't feel like anything would help. I haven't heard of anyone else having exactly the same symptoms I have until now. Even my Dr's aren't sure what I mean when I say that I have nerve pain in my face as well as every other part of my body. I understand what you mean about bending your head and the awful sensations you get from doing that. I take gabapentin and vicodin which help a bit but not enough to make me comfortable. I am going to numerous specialists (again) just to rule out anything else. I sometimes think that I am getting better then I wake up with severe nerve pain and start the cycle all over again. I used to be outgoing, fun, hard-working and fairly positive now I am always in pain, sad, mad, lonely, and trying to figure how to live life this way. This is a particularly bad day as you can tell by what I am sharing but even the good days are hard when we have contant pain. I did take the advice of someone here saying warm baths using epsom salts may help and they do. Best of luck to you and I am soooo sorry to hear that you too have this type of pain.

I get tingling sometimes as well. All the pain you describe I completely understand. No position is comfortable, sometimes if I'm sitting cross-legged, I need help putting my legs back together, even after only 5 minutes, because of how painful and stiff my hips are. But, I've never really read much about tingling going along with fibro. Poor circulation could be a problem, as mabri said. I know while I'm shaving my underarms, having my head turned that way for even that short time, everything goes dark and my head feels tingly...years ago I saw a neurologist about headaches I was having. He said I had poor circulation in my neck. I assume this is the cause for the shaving issues, but he said it wasn't anything to worry about. I don't know. Let us know how the MRI results go!

it sounds like for at least your leg you are having siatic pain..try a heat compress on your butt just to the side of your hip.when you go to the doc you need to mention it..

you want to be sure to rule out a disc problem..

I'm wondering what your MRI results will say too! I still don't understand why they didn't do the brain MRI too. (I hope I'm remembering the right person! lol ) When you look down does it just hurt or is there an electrical like sensation too?

I'm not sure if it's the fibro or the Basilar Artery Migraines causing it but I have similar numbness and tingling in my arms, hands, legs and feet. My hands will go completely numb as will my feet and I have a numb sensation on my forehead all the time. I will be talking with my neurologist on the fifth and asking her if she thinks this is related to the neuropathy in my lower legs and my Basilar Artery Migraines. I will let y'all know what she says and hope fully it can help you get some answers.

I have this all the time too. I have migraine also. I don't really know what is fibro, what is sciatica, what is migraine. It all blends together. Magnesium and zinc supplements help as do hot baths with epsom salts. Gabapentin did not help me and I think made it worse.

Sleep helps. I've been tingling like this horribly for 2 years. I think estrogen and progesterone cream help somewhat. I have not solved this. My face is very often numb and tingly and feels like bugs are crawling on me. I'm sorry this happens to you. Let us know if you solve it. I try hard to ignore it but it's not easy or really possible. I guess I have gotten used to it. It used to scare me but it doesn't anymore.

Hi, Linda R here and YUP the nerve endings will make you hurt just as you discribe and the area effect and and do seem to go numb. I run, didn't walk to my Rheumy the first few times it happend and each time I was assured that it was common, not harmful, with Fibro sufferers. UGH. And there isn't anything that you can take outside of what is prescribed.. I was on Gabapentin and that should have been helping. NOT And I was also told that the feet going numb and turning a blackish color was from Migraine meds.. GR8

Can't win one I guess.

Just thought I'd pipe in that what you've asked about happens to me as well. <<< Soft hugs >>> going out to you.

Linda R.

I also get a lot of tingling and pain from nerves. I do have some permanet damage from a bad back but all of it is not from that. I get places on my back the size of a baseball that will tingle and at times (especially at night) I get it down my leg and into my foot. Sometimes I cannot sleep at all because I have to either rub it or walk around on it. I get the same in my arms, too. It is enough to make me dread night coming on.