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FMS ForumsGeneral & Supportwhy i'm thankful i have fibromyalgia
01/09/2009 10:45 AM
taurus1982
 
Posts: 28
Member

this is a little lengthy, but i tried to post it in my diary and i couldn't, so here is my story:

January 9th, oh January 9th….  My husband had hernia surgery yesterday. Funny actually, because of my “work relationship” I couldn’t be there. He acted as if he was completely ok with me not being there because he understood. I felt horrible, faught back tears the whole day at work. We are a young couple and it’s not even that, but he was there for me through every little thing that I have been through. Every emergency room trip, the entire miscarriage, he never left my side at either hospital stay, he’s always been there. He’s the same way with our son. Then he has to have something done (which he never does---- he is generally healthy as heck), and I couldn’t be there.

…I couldn’t be there. How is that supposed to make me feel about my work? Then my husband asked me to please try to stay home with him today because I take better care of him than anyone else…I’ve been there. So I asked my work if they could take my PTO time out of my accrual, because they do. As of Monday I will have a day to take off, but they would let me. So I couldn’t be there. I did, however, have to run home to take care of him and then come back. …

Of course, last night after the anestethia, he let me know how he couldn’t believe that I didn’t take him to the hospital and how he really needs me to take care of him (today).

On another note…

I feel really good today. I’m not sure if it is because I took one of my husband’s percocet’s and he took one of my vicodin’s or what. I think the precocet last’s a lot longer. I woke up today at a bright 6:18 a.m. after I took my sleeping pill last night, I finally fell asleep at 1 a.m., but the important part is that when I woke up, I actually woke up…ready for the day, not groggy and tired and hurting.

So, hopefully (fingers crossed), my flare up is over.

My 7 (8 in 9 days) noticed my “Fibromyalgia for Dummies” book this morning. I heard his dad explaining to him that Fibromyalgia is something only Dummies get so that is why it is titled that…lol. I got a good laugh when my son said, well then why is mom reading it because she is not a dummy!!! My husband is a jokester he always has a caddy remark before he tells the truth, and I love him for that, we all laugh a lot more. Then he explained that Fibromyalgia is a disease that I have and that book is written for people who do not know much about it so they can understand. So when I went home today for a brief moment. My son said, “Mom how’s your Sibiology today” I said biology what, he said that stuff you have that Sibiology you are studying…lol……kids are funny. He’s very articulate too so it isn’t often that I can catch him in saying a word wrong.

So, I’m having to consider Bankruptcy. That scares the crap out of me, because I work in lending. I see no way out though. My health has impacted our finances exponentially and it has been going on for an entire year. We pay almost $800.00 per month out to credit cards. We can’t do it anymore!!!!! I’m sure we will probably have to put our child in public school because the BR court probably won’t understand how we can afford private school although they would never understand that his tuition is cheaper than B/A school care.

Amazingly despite the fact that there are a lot of days I can’t get out of bed, the fact that I now realize I cannot make future commitments because I do not know if I can follow through, I still am keeping a positive outlook. I’ve lost a lot this year. I lost a child (unborn), I lost my life, I lost my ability to have more children (which I wanted deeply), but I’ve gained more than I’ve lost. I’ve gained a sort of unspoken stronger bond with my family, I know now that they will be there, especially my husband, through sickness and healthy. I’ve learned that he understands more than I give him credit for and empathizes more than I tend to think sometimes. I’ve learned that he is incredibly dedicated to me and our family. I’ve learned that I can no longer take any day for granted. Each day that I have with my child, with my life, with anyone, is a day that I must be thankful for and use accordingly. I’ve learned that there are a lot of things that I CAN put of until tomorrow because if tomorrow never comes, then they wouldn’t matter. The mundane tasks of life, do not matter when there is no tomorrow, and because of that I’ve learned what matters. It’s not my finances, or how nice my house is, it’s life ..life in general. I’ve always known this, it was not a sudden epiphany but life in this last year, has forced me to not only “know” it, but embrace it and fully understand it. Because of my illness, I will have a better life.

Reply

01/09/2009 10:51 AM  Top
Skyla
Skyla
 
Posts: 155
Member

Taurus...this made me cry, it's so true..some parts felt like I was reading about me, my life! Big hugs to you!
Everyone sees who I appear to be,
But only a few know the real me.
You only see what I choose to show.
There's so much behind this smile...
So much you don't know.

01/09/2009 12:19 PM  Top
taurus1982
 
Posts: 28
Member

Thank you.....my resolution this year is to start journaling. but honestly my hands hurt too bad to write all of that. it really puts me out there...and the great thing is that i can share with people who understand.

now..if i can just get it to go in my diary.

skyla i look forward to having you as a friend.


01/09/2009 12:39 PM  Top
Donyia
Donyia
 
Posts: 184
Member

:hug:

I really liked what you said and you are definately a very blessed woman to have such a wonderful son and husband.


01/09/2009 12:41 PM  Top
Skyla
Skyla
 
Posts: 155
Member

thank you taurus, likewise! And i agree with donyia, you are very lucky to have such a caring family
Everyone sees who I appear to be,
But only a few know the real me.
You only see what I choose to show.
There's so much behind this smile...
So much you don't know.

01/09/2009 12:49 PM  Top
Midnyte

You are blessed to have an understanding family. Although some of us have family that understand in different ranges, there are probaby just as many that have family that doesn't understand.

01/09/2009 12:54 PM  Top
livn4jc4evr
livn4jc4evr
 
Posts: 453
Member

Taurus that was so moving I know I feel so blessed as well to have my husband and my family. Thank you for your wonderful words of wisdom. It had great meaning on my heart. Thanks.
Spread love everywhere you go. Let no one ever come to you without leaving happier. "Mother Teresa"

"Judge your success by what you had to give up to get it."

01/09/2009 02:41 PM  Top
taurus1982
 
Posts: 28
Member

thank you all for taking the time to read and reply. it is hard to share some of this stuff, but easier here. however, i am blessed to have the family that i have. sometimes though it does take fighting through the fibro fog to see that. our disease is very stressful on ourselves and ALL of the people around us, including our co-workers.

midnyte..i absolutely love your signature. it is beautiful.


01/09/2009 03:01 PM  Top
Nitalynn
Nitalynn
 
Posts: 1404
Senior Member

That was wonderful Taurus, maybe if you have job problems because of the bankruptcy you could do some sort of financial counseling for people with medical problems. Sorry, not my business, but just a thought.

01/09/2009 03:15 PM  Top
bits
bits
 
Posts: 10313
VIP Member

Taurus, you have learned, in a short time, what many people never learn until it's too late. Hugs
When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
bits
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