Fibromyalgia Support Group

Wen u hear tht bad luck happens in 3's thts NT TRUE its more lke 6 it started on the 2nd Sep I failed my driving test 1, then the respite care were our daughter goes they didn't listen 2 us wen we asks them not 2 give her build me up drinks in the morn wen she is only suppose to hv them at nite which made her sick constantly tht day so we HD to rush her to hospital (she's ok now), plus I'm coming of bu-trans patches cos I gt dermatitis bt 2day I'm in so much pain I couldn't even wlk without it hurting I only HD 1hrs sleep last nite so slept today which makes me feel lazy & useless which makes me cry god I'm such a miserable cow soz 4 boring u all josie

When it rains it pours!! Im sorry to hear that things are so tough lately. Know that this too will pass. Try and get some rest,maybe a hot bath with Epsom salts will help.

Josie,

First of all, do not apologize for "boring us" We are never bored by anyone here, and welcome any/all cries for help, or just plain whining. We all do it, because for most of us, this is the only safe place where we can do it without being judged or ridiculed because of it. We are here for you, no matter how you are feeling, ranting, rambling or whatever...again, we welcome it.

Now...has your dr replaced the patches with anything to help control the pain? I am sorry that you are having such a bad time....but, like Sunny said, this too shall pass. One way to make it through these times is to remember and remind ourselves that no matter how bad it is, tommorrow will be a new day, and we can hope and pray for better times then. If not, then we wait for the following day. wish I had an easy answer or trick, but if I did, all these people would be wanting every moment of my time! LOL. Sorry, just trying to make you smile!! you are in my thoughts and prayers. Keep hanging out with us, and I guarantee you will feel better just knowing and feeling that you are not alone...HUGS

Josie, I want to add what Sunny and Becky said...I am so sorry you are having a string of bad luck. You are always welcome to vent with us!

I am so glad your daughter is OK will pray that you get some sleep and better luck for the coming week. Also, i dont know if it is the weather or in the water, but my pain has been off the charts this week. I also hope that you have some pain control. Like Becky said, hang with us! We are here for you and will try to make you feel better. I don't think I have felt so cared about since starting to get to know these fabulous ladies. It won't take away the bad luck; it will just make it easier to bear sometimes! Hang in there sweetie!

Post edited by: Kvasconez, at: 09/09/2011 09:45 PM

Thank u so much every 1 when I come of the patches (this coming Thurs) the doc has given me tramadol + stronger amitriptyline tabs (from 10mg to 25mg) so hopefully they,LL work? Plus in Jan to c my pain management dr to find out if I can hv the infusions again (intravenous lignocaine infusions) they really worked, I can't believe im saying this bt I really hope she does let me hv them even Though I hv a massive fear of injections. The prob with the bath bcos I hv a disabled daughter (plz don't say u feel soz 4 me & her) we don't hv a bath we hv a wet room with a shower tray 4 her but thank u for the suggestion sunnydays I love this site so much thank you evry 1 Josie hope evry has a better day then me

I know its easy to assume ppl will feel sry for your situation, the pain and a daughter who has her own challeges, I honestly can assure you no one on here feels sorry for you in that sense, if they are anything like me I am always impressed with everyone who stands proud and keeps fighting no matter what life hands you.I believe every child is a blessing no matter what battles they come with. I had a few injections in my back and they arent so bad, the doctor can actually put at ease with valium or something if you want and you can take it prior to the appt. I even once had her put me out when I was getting more than one injection but I don't know if every docotor does this. my son suffers from a fear of needles too.

Once it took 4 nurses , 6 med students and 2 docs to hold him in bed and give him an IV but when he was in the hosital last time my hubby gave him alittle pressure point massage to ease his muscles during the needle injection so if you have someone who can come with you for this it does help so that taking more meds arent needed. I hope you feel better soon and you and your daughter have a wonderful weekend.

Thank u tisfirestar wen I said about the feeling soz 4 me & my daughter I meant ppl hv based it on the fact thts she's disabled tht her life is not worth living which makes me mad cos she has every right 2 b here & she can still hv a gd life plus I hate ppl who take life 4 granted (NO 1 ON HERE) & complain about silly things wen there's every 1 on here who has REAL PROBLEMS yet just wants to help evry 1 seriously evry 1 (including yourself) are brilliant thank u so much xxxx

well it was already said dont apologize for needing to vent,lord have mercy they have heard it all from me,lol.

I always heard it goes in three's the father,son, and holy spirit challenges is what they are called..

we have disabled children in our lives here and I get so mad when I hear of things like this..fight is all you can do you are in my prayers

I think that we all have empathy for your situation. I feel like you are a strong woman to be able to have the ability to meet the needs of a child with special needs and then to also try to handle your pain on top of all of that. It speaks so much of your character and your ability to push through adversity. I sometimes say outloud..........I know you aren't supposed to give me more than I can handle but seriously....I am at capacity. My daughter is 18 and so I don't have small ones to also have to manage. It takes a special mom to be able to handle all this so I think you are doing a great job. You need your rest to though so try to make time for yourself. Many hugs to you.

April

Thnk u so much every 1 it means the world but to me being in pain & bringing up chels is the norm I've been doing it 4 nearly 7yrs (Feb 28th) I enjoy been a mum so much and trust me recently I'm lucky 2 hv her here, a little while ago she HD to hv an anthrogram (a more detailed xray with dye injected in 2 her) plus soft tissue release in her left leg & tht went ok bt afterwards she gt really sick to the point tht she HD to b sedated and transferred to s diff hospital and put in an I.C.U unit for 5days on s life support machine, felt more 5yrs, she pulled thro thnk god & eventually got home she's NT the same any more thou she has panic attacks alot more now,I hope u don't mind me telling u all this I've jst HD an arguement with my partner cos he doesn't tlk about it & he's just accused me of " feeling sorry 4 myself" cos I've been tlking about tht plus the pain I'm having I just font know wot 2 do if I tlk 2 him I'm feeling soz 4 myself if I don't tlk to him he accuses me of keeping things from him josie