Fibromyalgia Support Group

Looking, I myself have never heard of those programs, but they sound like they would be worthwhile. If you have the opportunity to participate in one or both, I would say go for it! There is so little available for fibromites (us) that if programs like that were established, you can pretty well bet that whoever created them did so to really help us. Let us know if you do participate. Again, welcome to our family!!

I was just out on their site this morning. Interesting yes but I get a little nervous with those who don't take any insurance.

Please post if you get other responses as PM's, I'm curious as well as there is a site about 15 miles from my home.

Julie

Their website says:

Your 30-minute complimentary consultation includes the following:

1.A 30 minute examination with one of our doctors

2.A thorough review of your health history

3.A comprehensive symptom assessment

4.A recommendation for necessary testing

5.Finally, a recommended treatment plan based on our physician’s findings

There was no examination. None. There was absolutely NO review of my health history. I've worked in medical coding, I know what a review of systems, history and physical, etc entails. It didn't happen, even when I tried to volunteer the info, she didn't listen. She did ask me a couple of questions about my symptoms but it was nowhere near comprehensive. She did not give me a recommendation for necessary testing. She said there would be standard tests run that were more in depth than a regular doctors but it was not tailored to my individual needs. And the only recommended treatment plan that was mentioned had to do with the cost.

It was a one size fits all doctor's visit with what seems like a one size fits all treatment plan. The individual treatment stressed at their website just did not happen.

The cost is almost $7000 per year. That covers doctor's visits every 3 months, so four of them, some of the supplements they require you to take, some of the i.v. treatments they give but none of the extensive labwork required. They do not file or accept insurance so your options are to either pay in full before time of service begins or set up a payment plan with 18% interest. Minimum payment is around $500 per month. Again, that only covers some treatment, not lab and not prescriptions. You can file with your insurance yourself but there is no guarantee, of course, that the insurance will pay. Since they have been investigated by the FDA and found to be in multiple violations of FDA policies regarding their treatments, their supplements and their claims (you can find the investigation and conclusions on the fda website)it's doubtful that insurance would pay even at the out of network rate.

It's a good idea and I really wanted it to be real, to work but I wouldn't recommend it.